Support Group for Those of Us Living With Mild Dementia

I know there is a Dementia Caregiver Support Group https://connect.mayoclinic.org/group/caregivers-dementia/

I would like to have a group for people like me. I am entering the Mild Dementia phase from Mild Cognitive Impairment.
It’s frightening to think about my future.

I'm grateful for this group for Dementia Patients https://connect.mayoclinic.org/group/early-dementia-mild-cognitive-impairment-mci/

Interested in more discussions like this? Go to the Early Dementia & Mild Cognitive Impairment (MCI) Support Group.

Profile picture for susanejw @susanejw

@ann80 You poor thing! That’s awful! Here I thought we oldsters were pretty safe from that type of assault. Was it the delivery guy did it?

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@susanejw Thank you! No it was a teenager that was running from the police and ran in my house while I was carrying in grociers.. He was 6/4 I'm 5 feet. The judge said he is pure evil and a threat to society. If not for God I would be dead .

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Profile picture for ann80 @ann80

@susanejw Thank you! No it was a teenager that was running from the police and ran in my house while I was carrying in grociers.. He was 6/4 I'm 5 feet. The judge said he is pure evil and a threat to society. If not for God I would be dead .

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@ann80 Awful!! I’m surprised he didn’t get life.

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The problem with some of these meds I've seen listed for dementia is the precaution for possible heart issues. I take a blood thinner for A-Fib and do have very low heart rate a times, sometimes below 60. I immediately read about donepezil which was suggested to me and saw the low heart rate precaution. It won't be until the end of August that I get to see another neurologist at UCLA to hopefully get more information.

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Profile picture for renee1941 @renee1941

I have read Still Alice twice and watched the movie once very good.

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renee1941 wasn't kind of scarey when the movie just stoppee
d
wasn't it scarey when the movie just stopped I thought if you kwpt your mind learning all the time dementia wouldn't get you, but look how smart she was. My husband has done crossword puzzles for years and look at him

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Profile picture for rashida @rashida

@SusanEllen66 I have been having a problem with housekeeping too. In my younger days I cleaned every week, with three little ones running around, now over the years with no kids and just husband and I rattling around, have lost all motivation and not caring about it (husband did vacuuming and other heavy work till he fell ill). I was embarrassed at the condition of our house when friends dropped in recently, so now I have hired a cleaning lady to come in once a month (it’s all we can afford!) and am going to find a way to fit that expense into our budget! It was such a mood lifter to go out for a couple of hours and return to a clean house!

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@rashida
I agree! Getting my house cleaned has been so helpful in many ways.

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Profile picture for SusanEllen66 Susan McMichael @SusanEllen66

@johnbishop

That is great for prevention. Those of us who already have dementia find it absolutely frustrating when we try to learn something new. Our brains simply cannot handle the needed concentration when learning new things.

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@SusanEllen66
Did you ever locate a group for MCI? I wish we could find one.

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Profile picture for muchlefttolearn @muchlefttolearn

@alju

I was diagnosed with MCI in April 2026. The only cognitive med I'm taking is donepezil (Aricept). I've been taking 5mg daily for about 3 weeks. For the last few days, I've seen an improvement in my memory. It's not a big improvement, but it's noticeable. 2-3 times a day I easily remember something I wouldn’t have remembered before. But there are still dozens of things I can't remember.

I can increase to the standard 10mg dose in 1-3 weeks. Interestingly donepezil has been an Alzheimer’s drug for 30 years. In the US it is the longest-established Alzheimer’s medication that remains in routine use. Two similar other acetylcholinesterase inhibitor drugs are Rivastigmine (Exelon) and Galantamine (Razadyne). My MD confirms that donepezil has been around the longest and is the safest.

One great thing is that donepezil is one of the least expensive of any prescription drugs, not just Alzheimer’s drugs. It should be free with any reasonable insurance plan. But even without insurance, it should only cost about $10/month out of pocket for a daily 10mg dose. I wouldn't bother with the original brand name Aricept. It can be really, really expensive.

Here's what ChatGPT 5.5 Medium says: "Donepezil is an acetylcholinesterase inhibitor. It increases the availability of acetylcholine, a neurotransmitter important for attention, learning, encoding new information, and retrieving information already stored.
A responder may notice things such as: holding onto a thought or intention longer; remembering recent conversations or requests more reliably; less frequently losing track of what they were doing; greater mental clarity or alertness; easier word retrieval; better concentration and organization; fewer episodes in which information disappears almost immediately."

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@muchlefI ttolearn I feel generic for aricept is working on my husband. He acts like nothing is wrong but he does have short term memory but only to me
Do you think he just wants to talk to me and that is a safe conversation (just thought of that)

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Profile picture for hinsopa @hinsopa

@SusanEllen66
Did you ever locate a group for MCI? I wish we could find one.

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@hinsopa yes, a group was recently created for those of us with MCI.

The group is :
Early Dementia and Mild Cognitive Impairment

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Hi to all
Thank you for starting group. A nice forum to read candid experiences. I am 71 years old and would like to share about 3 or 4 incidents that have happened to me that has me concern if dementia is looking at me.
First, one day asked myself how old I was. Totally unable to recall.
Another day went to buy flea med for my furry children and when it was time to pay realized I did not have my purse. Now I hook keys to purse. Has worked very well
Another day went to ost office to send a package and could not remember my address.
Last expert, could only remember zip code and last four numbers, not the first three digests after zip code . Find myself not able to think of words and later they come to me.

I am able to manage daily living without any problem
Pay bills, clean house, cook meals, keep appointments ( write chores down), run errands, etc etc.
Should I be concerned? Someone said about an MRI of the brain, would this be a good place to start?
Would app feed back
Thank you

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Yes. I think it’s a great idea.

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