Can small fiber nerves regenerate?
I first became plagued with small fiber neuropathy in 2017 due to an environmental exposure to abnormally high levels of carbon dioxide and carbon monoxide from an unvented construction space heater. I had numerous polyneuropathy symptoms including hyperacusis (reduced tolerance to sound), tinnitus, heart arrythmia , chest pain, headache, night sweats, urge incontinence, and non painful numbness and tingling in my feet. Also fasciculations in my lower legs. It lasted about 6 months and then all the symptoms completely resolved. Then the numbness and tingling in my feet and the lower leg fasciculations returned in 2020. My SFN was confirmed by a skin biopsy. So the question is, did the small fiber nerves in my feet regenerate between 2017 and 2020? Has anyone else had a complete resolution of their numbness and tingling symptoms, only to have them return? I now struggle with balance. My body sways when I try to stand motionless. Is this due to the SFN, or are the fasciculations in my legs indicative of large fiber neuropathy? I guess only another EMG will tell. It will be my fifth.
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@kitcatsheart I do feel like my numbness has improved some but it's still there. Kind of hard to describe for me since I also have to wear compression socks up to my knees daily for lymphedema in my legs and that squeezing all day provides a feeling all of it's own. I have had some feeling return to the bottoms of my feet that I really notice when I wear some barefoot shoes with no cushion.
Sorry your doctors aren't interested in talking about supplements. Right before I saw the neurologist for a diagnosis my PCP gave me gabapentin which I took for a couple of weeks and it did nothing for the numbness. After I told my PCP, she discussed it with my care team and the lead doc who explained it only helps with nerve pain and not numbness so I quit taking it.