Over the past year, I have taken2 of the 3 Anastrozole for six months and had to come off because of extreme joint pain. The following 6 months, I took Aromasin, which has given me slightly less joint pain, with similar symptoms – terrible pain from my fingertips through my wrists and above. There is one remaining AI that remains, which I intend to inquire about this coming week, with my oncologist, which I’ve heard has the lesser joint pain than the first 2.
I cannot take Tamoxofin, because of thrombocytosis, so I opt for the 3rd drug and hope that the side effects are less, or choose to live with the pain that is ongoing, that impacts my ability to open bottles, using scissors and the unfortunate difficulty that comes with a trigger finger – which is very sore (I’m wearing a finger brace). When I wake up in the morning, many of my fingers are numb and tingly, which dissipates after a while, but the range of joint pain in both hands is depressing. Not sure that I can do this for another 4 years, as I want to benefit from its impact on reducing estrogen levels and the reoccurrence of (breast) cancer.
Should I expect that when I come off these meds, that my hands will return to “normal” ? I need input from those of you who have taken this journey.