Can anyone advise about what insurance best covers immunotherapies?

Posted by ksandusky86 @ksandusky86, May 1 4:58am

I'm about to have a career transition. Into what, I don't yet know. I want to choose something that will provide the best possible coverage for the treatment of my CLL that looms on my horizon. What I have seen developing in immunotherapies seems so promising but the cost will certainly preclude me from any chance of receiving it unless i have insurance that will fully cover it. Anyone familiar with the specifics on this?

Interested in more discussions like this? Go to the Blood Cancers & Disorders Support Group.

It may be useful to review the policies of various insurance companies to see what they cover. If you have a teaching hospital in your area, you can check on what insurance companies are associated, clinical trials (which hopefully will be funded through time), and if they have CLL oncology specialists.

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Much of the immuno therapy is done in clinical trials. Best to start at academic center with a research edge. Ie mayos, MD Anderson or City of hope. As clinical trials do not go through insurance usually, that can be a nonissue

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@ksandusky86 You may want to contact the Leukemia and Lymphoma Society (LLS). Their board-certified help line specialists may be able to give you some pointers about navigating insurance transitions. LLS has been a tremendous resource for me regarding financial and healthcare issues.

Here's the link to the website: https://lls.org/support-resources/information-specialists

Explanation of their services from their website:
"Speak one-on-one with a blood cancer Information Specialist who can assist you through blood cancer treatment, and financial and social challenges, and give accurate up-to-date disease treatment and support information. Our Information Specialists are highly trained oncology social workers and nurses located in the United States."

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