Calcium of 10.6 on Tymlos

Hi @daisylou ,
I wish those of us on Tymlos had much more info on this!

I have been on Tymlos for 6 weeks now and on the full dose for about a month. I went to walk-in clinic last week with chest and back pain, only to find out I had broken a rib somehow. They also did blood work and the calcium came back 10.2, which while not as high as yours, according to the following article, it is considered high for an older adult, which I am.

This is a great article that anyone on Forteo or Tymlos should read and share with their doctor!
(Be sure to read the tip) https://www.parathyroid.com/hypercalcemia.htm

The numbers that are considered normal in routine blood tests, are NOT normal for older adults. Young people, (Children, teens, etc.) are still growing bones so it is normal for their numbers to be 10.6. Not so for us. The article also says, it is not how high the number is that counts. Any number in the "high" range can cause symptoms.

I have been having severe muscle cramping throughout my body for the past week, as well as arrhythmia throughout the day. The cramps are severely affecting my sleep. They are so bad I have to get up and walk around for a while. I am wondering if this is because my calcium level is elevated. The thing about all this that is most disturbing is that hypercalcemia actually causes osteoporosis, so now I am wondering if the broken rib is related to higher calcium?

Yes, this disease is perplexing and exhausting. But once we fracture, what choice do we really have? I am going to have my calcium checked again next month and will see what happens. Meanwhile, the endocrinologist made light of it, and doesn't want to see me for a year!

Please TYmlos users, continue to share. We are our own support system.