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CA 27-29 numbers rising: Does anyone else have an issue like this?

Posted by sandyjr @sandyjr, Jul 1, 2019

My Ca 27.29 seems to be high....in the 40’s....and my oncologist says that that is probably normal for me. He checked the records from my first bc. Does anyone else have an issue like this?

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Sue Ellen Murrey | @semurrey | 3 days ago

I don’t understand how breast massage is helpful-thx so much for sharing but could you elaborate? Xo

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sharon35981 | @sharon35981 | 3 days ago
In reply to @windyshores "My oncologist doesn't do these blood markers at all. I am 9 years out and stopped..." + (show)
@windyshores

My oncologist doesn't do these blood markers at all. I am 9 years out and stopped letrozole at 5 years. I have no idea how I will know I am stage 4. How many of you have docs who do this testing?

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Signatera liquid blood tests can help ease your mind and give you a heads up if BC is coming back. Medicare pays for this.

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anjalima | @anjalima | 3 days ago
In reply to @keepmoving2 "Hi all - circling back on what is a thread that started in 2019 about rising..." + (show)
@keepmoving2

Hi all - circling back on what is a thread that started in 2019 about rising tumor markers & morphed slightly about good diet, exercise & staying on top on things. It just popped back into my feed by a “like” & it reminded me that it is all still relevant. And stories change.

In July 2024 I will be 5 years in with Stage 4 breast cancer & yes now Stage 4 Mallarian (reproductive) cancer that we did not know I had until a growing brain tumor presented itself in early January 2024. Pathology identified it. Brain surgery in January, and radiation in February did their jobs.
The reproductive cancer was likely nipped when I did chemo back in mid 2021 for my breast cancer return. It just didn’t/couldn’t get this little offshoot that went to the brain & slowly grew. Physical problems presented themselves - not bloodwork - & scans confirmed. Breast cancer now turned down, malarian percolating in the special Natera/Signatera DNA disease test & in PET, not physically nor other bloodwork. And yes I have since gone skiing & did a 10 mile hike today.
My docs want me to be a person with cancer that is a small “c” - I am living with it. My “chronic” condition. We don’t react when monthly numbers change. Time of day, bad draws, diet, moon phase, really anything - can impact. We look for trends. We look at scans. We look at me. And how I am living my life. And then we react. I help myself & give them the best patient I can be through tracking my numbers, eating well, exercising, working & spending quality time with my family & friends. Who knows what will come but new treatments & sites like this give me hope! Good luck!

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Keep on truckin’! Inspirational and thank you for sharing.

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anjalima | @anjalima | 3 days ago
In reply to @windyshores "My oncologist doesn't do these blood markers at all. I am 9 years out and stopped..." + (show)
@windyshores

My oncologist doesn't do these blood markers at all. I am 9 years out and stopped letrozole at 5 years. I have no idea how I will know I am stage 4. How many of you have docs who do this testing?

Jump to this post

I am submitting blood every 6 mos. To Signatera. Due in August. I’ve had 3 negative results . Oncology will still say they don’t know what to do with a positive result.

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windyshores | @windyshores | 3 days ago

@sharon35981 and @anjalima I asked my oncologist some months ago about Signatera and they said no, they only prescribe if for those with metastasis, to keep track of treatment. Do either of you pay out of pocket and does the company let you order it yourselves?

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sharon35981 | @sharon35981 | 3 days ago

I have Medicare—Stage1–at lumpectomy. I get a Signatera test every three months. My oncologist orders this blood test to be taken every three months at my home. I pay $0.00.

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