CA-125 Results Went Up: Should I be concerned?

Posted by stparker54 @stparker54, Aug 26, 2020

The results of my CA-125 tumor marker test increased from 16.8 to 20.3. This is the fourth time I've had a tumor marker test and it's the first time there was an increase in the results. How concerned should I be?

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two years ago was diagnosed with stage 4 ovarian cancer, went through surgery and then Chemo its been a year and 4month in remission. In Feb my CA 125 was 13.5 in March first week my numbers went up to 723. CT shows no signs of anything two weeks later my CA 773. Should I wait for signs or get a PET done? My doctor says we might just be treating a number.
any insite on this would be grateful

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@drterry

Oh my, I’m so sorry. Urachal Adenocarcinoma is from failure of the bladder to separate from umbilical cord in third trimester in utero. The tumor grew in a diverticulum. I just had surgery to remove the tumor and urachal tracts. There is no protocol its so rare. Praying for you. 🙏🏻🙏🏻🙏🏻

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Thank you for your prayers. My best to you.

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@chrissiebee

I have a rare bladder cancer also, high grade, but didn't invade the muscle. What treatment did you get for your cancer and did you have your bladder removed? My B.C. is a result of a lot of radiation and lymph node removal years ago for a metastasis on my colon & hip bone. The radiation saved my life but I'm now dealing with the effects of it. Thank you.

Jump to this post

Oh my, I’m so sorry. Urachal Adenocarcinoma is from failure of the bladder to separate from umbilical cord in third trimester in utero. The tumor grew in a diverticulum. I just had surgery to remove the tumor and urachal tracts. There is no protocol its so rare. Praying for you. 🙏🏻🙏🏻🙏🏻

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@sherrill2023

Ovarian cancer starts in the fallopian tubes.

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I guess there are concerns about ovaries, fallopian tubes and peritonitum. 😔

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@drterry

My recent CA 125 was 38.1. I’ve never had abnormal results before. I’m really concerned. I’m also being treated for GERD. I have the best GYNECOLOGIST. I’m going for pelvis/abdominal MRI next week and consult for endoscopy. I know she’s concerned about ovarian CA. Anyone heard of high numbers not related to some type of CA?

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Ovarian cancer starts in the fallopian tubes.

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@drterry

Thank you!!!!! Yes, I’m going for further testing. I had a very rare bladder cancer, urachal Adenocarcinoma. I’m 3 years cancer free! My gynecologist saved my life. We caught it early. I don’t take any chances.

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I have a rare bladder cancer also, high grade, but didn't invade the muscle. What treatment did you get for your cancer and did you have your bladder removed? My B.C. is a result of a lot of radiation and lymph node removal years ago for a metastasis on my colon & hip bone. The radiation saved my life but I'm now dealing with the effects of it. Thank you.

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My recent CA125 result was 40. My oncologist wants me to start Lynparza. Has anyone had experience with this pill?

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@carole2022

Yes. However, they are now going to try something else, which sounds hopeful as to prolonging things. Overall, she still is coping well. Thank you for caring.

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Praying for you! 🙏🏻🙏🏻🙏🏻

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@smalayman4016

This is still in the normal range, however I would consult with your doctor to see if he wants to do further tests

Jump to this post

Thank you!!!!! Yes, I’m going for further testing. I had a very rare bladder cancer, urachal Adenocarcinoma. I’m 3 years cancer free! My gynecologist saved my life. We caught it early. I don’t take any chances.

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This is still in the normal range, however I would consult with your doctor to see if he wants to do further tests

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