C3GN Does anyone else have this disease and what is your journey?
Hi, I am 26 Female and was recently diagnosed with C3GN. It Showed it self in Sept 2025 and really kicked off in Dec 2025 where it is continuing to get worse. I was wondering if anyone else has had this disease and had it ramp up so quickly. I have lots of questions about this disease and my big question is for anyone who has this disease where you able to go back to regular life before being diagnosed or life without significant changes in your daily activities? I felt totally fine before december and no between all the medicine they have me on and my disease progressing so rapidly I just feel so tired all the time and I am unable to do all the physical activities I used to be able to do. I have recently started the Empaveli injection so hopefully that will work but I am worried I am getting every closer to needing to go thrugh a kidney transplant. I just want to know if I will be able to have my old life back. I am currently in Veterinary school in my last year so I would really like to finish school and get to practice but I am worried this disease is going to limit my activity.
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