C. difficile And diverticulosis

Posted by ciebrown @ciebrown, Jun 13, 2023

Guys. I am 32 and stressed out.

I started with diverticulitis and the doctors now think I have C. difficile. I have lost over 20 pounds on this journey of not eating really since January. Can someone please shed some light on how u were feeling with cdiff other than the bowel what else did u experience.

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@ciebrown

Yes. That’s what i have been on. And now I think I have caught something else by being on all that stuff for so long. It’s just one thing bringing on something else.

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@ciebrown have you tried eating plain Greek yoghurt (you can flavour it with a bit of honey or some fresh fruit) and taking a probiotic? That may help replace some of the good bacteria lost by taking those antibiotics long term.

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I've had C. Diff twice. I've also had quite a few episodes of diverticulitis in my life. Every time i have to take antibiotics for diverticulitis, I am deathly afraid the antibiotics will lead to another C. Diff episode. The worse thing I experienced was fear of accidents which made me afraid to leave my house. I also became afraid of food. I went to the grocery store to restock once I felt better, and I got nauseous just looking at all the food. I had become afraid to eat. I lost 19 lbs through the the months I fought it. I am somewhat better now...C Diff is gone, diverticulitis healed....but I still need to take mira lax because if I get constipated, that leads to Diverticulitis. I'm 79 and I have a feeling this will eventually end my life if I have another episode.

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@vjs

I’m sorry you are going through that! I’m 70, had diverticulitis episodes for around 20 years. Some more serious than others, no perforations but always put on antibiotics. Two years ago, I ended up in hospital on and off for 5 months. I had diverticulitis and suffered three bouts of cdiff. Pain, weakness, depression, constant bathroom visits, weight loss of 40 pounds, isolation, fear!!! In Feb a year ago I had colon resection to remove the diseased section. It hasn’t been all sunshine and roses since but it was the best thing to do. I live in fear of having to go on antibiotics again for anything. I believe I have PTSD because of cdiff. Every time I have a bit of diarrhea my anxiety arises thinking oh no what if…. Hopefully yours resolved quickly. You’re very young to have diverticulitis.

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After my first diverticulitis episode in my 50's, it took a while to figure it out...I don't run fever...but my GP has a stat lab and the quick white count check had me in the ER quickly. My GP sent a Gastro doc to meet me at the hospital and he saw me annually. but between times, when I had diverticulitis, I went to my GP because the gastro didn't have a stat lab and the GP did. I was treated for 20 years by white count and symptoms. My gastro told me that I should have had a colon resection after three episodes....and I've had at least 15! Now, I'm 79 and I don't want to risk a resection....something is wrong that these docs aren't communicating. My gastro doc retired. I have a new one. I thought I had diverticulitis and the new doc scoffed that the white count meant anything (??!!) when I'd been diagnosed with white count and symptoms for years. This gastro schedules a CT scan if I have symptoms without treating me...So it is a day or two before I can get the cat scan....if you have symptoms on Friday, you get nothing until Monday which is so risky. Then after a week of antibiotics, another rCT scan to see if "i'm well" I'd love to know what others think. This hanging around for ct scans when my family doc has a stat lab makes no sense.

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I certainly hope you don’t have C Diff. I had it in 7/2024. After I completed a course of vancomycin I developed post-infectious IBS due to destroyed microbiome. Everything I ate went right through me, I developed fear of food, never left the house and lost ~35 lbs. (Low FODMAP diet helped to find foods tolerable with IBS.) I was told to eat yogurt and drink kefir - which I could not do due to casein intolerance. I was told to take a probiotic, but no one could provide guidance on which one and which potency. A doctor finally recommended ProBio Med (250 billion, expensive, order from their website) within a day of taking that probiotic I felt a drastic change and could start to eat some foods again. I saw a gastro doc who recommended Visbiome (112.5 billion - has to be refrigerated - can get from Costco, grocery store pharmacies over the counter, but they may need to order for you), and Florastor (can order from Amazon). So I discontinued ProBio Med and started the Visbiome/Florastor every day with excellent results. I slowly re-introduced foods one at a time. If I had started this regime of probiotics in the beginning I could’ve greatly reduced the “crap” I went through. I am now 8 months from diagnosis date and almost back to normal (still taking probiotics - doctors disagree on when to stop). Restaurants with questionable food quality are a challenge for me (I seem to be sensitive to msg, other things they put on food now). I do much better with higher end restaurants or just eating at home.

I feel like I now have a terrible disease that is currently in remission, but I am a ticking time bomb because the next UTI will require antibiotics and that will bring C Diff back. 🫤

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@maggybird

After my first diverticulitis episode in my 50's, it took a while to figure it out...I don't run fever...but my GP has a stat lab and the quick white count check had me in the ER quickly. My GP sent a Gastro doc to meet me at the hospital and he saw me annually. but between times, when I had diverticulitis, I went to my GP because the gastro didn't have a stat lab and the GP did. I was treated for 20 years by white count and symptoms. My gastro told me that I should have had a colon resection after three episodes....and I've had at least 15! Now, I'm 79 and I don't want to risk a resection....something is wrong that these docs aren't communicating. My gastro doc retired. I have a new one. I thought I had diverticulitis and the new doc scoffed that the white count meant anything (??!!) when I'd been diagnosed with white count and symptoms for years. This gastro schedules a CT scan if I have symptoms without treating me...So it is a day or two before I can get the cat scan....if you have symptoms on Friday, you get nothing until Monday which is so risky. Then after a week of antibiotics, another rCT scan to see if "i'm well" I'd love to know what others think. This hanging around for ct scans when my family doc has a stat lab makes no sense.

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There should be another gastro that you could consult.

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