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By what percentage did your T-scores improve after a round of TYMLOS?
I am trying to decide whether to make the commitment to try TYMLOS. I have read reactions to the side effects and some saying their scores did increase in this support group.
I would like to ask those that took TYMLOS reply to this post with percentage increase or their improved T-score. Likewise, if you didn’t seen any change (or decrease), can you let me know that too?
I am thinking that if the majority saw high improvement then maybe the side effects are worth it!
Thank you!
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I'm in the same boat as you on the fence about starting. The side effects sound daunting at best. I have read that hyperbaric chamber and the PEMF (electromagnetic pulse) Bemer treatments have had some results. Seems crazy in this day and age we don't have better options. I am active, eat super healthy with perfect blood tests yet here I am. It is depressing. I have heard some that have had NO results from Tymlos and others that have gone from a -4.7 to a -3.4 so its a crap shoot!
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1 ReactionAccording to my doctor, the research shows that a 12% increase in BMD of the lumbar spine is expected after 2 years on Tymlos, and it is similar or slightly less of an increase at the hips. (I started 9 months ago and haven't had a dexa since I started, so I won't know until next year.)
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1 ReactionThank you for your reply! That is encouraging! I hope it goes well with you.
Thanks for your reply! I am giving myself 1 year to see if I can increase my T-score. During that time, I am upping my calcium intake, adding weight training to my exercise routine and walking more. I am also exploring working with a Dietitian and a Doctor of Osteopathy.
Like you, my blood and urine tests were in the ‘normal’ range with no red flags. I have not had a fracture or ever broken a bone.
It is depressing - which we should acknowledge - but not let it rule our lives! Enjoy the summer!
The side effects of dizziness, orthostatic hypotension (blood pressure drops when standing), nausea were too much for me. I switched to Evenity after 4 mos. With far fewer symptoms. So far though Dexa Scan was disappointing so I’m waiting for the next plan.
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2 ReactionsI think it is the side effects and after effects that have me concerned with altering your life! But we are between a rock and a hard spot unfortunately.
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2 ReactionsAfter nine months on Tymlos, my bone density increased 16 percent, and my spinal T-score average went from -3.0 to -2.0. No side effects. My doctor was very happy.
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7 ReactionsYou must be so happy! I love to hear that type of result. Thanks for sharing!
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1 ReactionAfter one year, the T-score in my lumbar spine went from -2.3 to -1.5. My hips stayed the same, although my doctor said there is often a change in hip T-scores in the second year. We will see.