Bummed: Colon cancer has metastasized to my liver!

Have you looked into the HAI pump? It pumps chemo directly into your liver and since your liver is where everything is metabolized they can pump something like 400 times the normal dose of chemo without it hurting the rest of your body; only the liver is affected. They will only do it if your colon cancer is contained to the colon and liver. It's not available everywhere. My original Drs. didn't know anything about it. MD Anderson in Houston doesn't do it, but MSK in NYC has been doing it for 15-20 years. I have recently had the pump implanted at MSK in NY. If there's some way to send me a personal msg with your phone number I would happily give you a call tell you all I know about it.

I have not tried vitamin c iv. I do take Metformin, doxycycline, Mebendazole, Lipitor and supplements.

Have you try holistic approch . Vitamisn c i fusion i am looking in that beside chemo

November will be three years for me on Lonsurf but I also take a host of supplements and on the Care Oncology protocol with the blessing of my oncologist. I’ve had several scans and am staying stable but no reduction of disease. I do not have any pain, I stay active, eat a low GI diet, stay positive and look at this as a chronic condition but fight for a cure if that makes sense. It’s all I got at the moment but NOT complaining!

Halo.
Sorry, my english is not very well. You can translate with translator. Next, I speak in my languange to you.

Halo, sangat prihatin sekali mendengar hal ini.
Saya juga saat ini sedang mengalami metatasis stadium 4 dari cancer usus besar yang telah menyebar ke lever.
Saya saat ini sedang mengambil langkah pengobatan kemoterapi, dengan menggunakan obat avamab (target kemoterapi) untuk lever saya.
Saya paham sekali apabila lever sedang kambuh sakitnya. Sangat menyakitkan, dan saya juga saat ini juga sedang mengalaminya. Rasa perih di tambah dengan kontraksi sampai bisa menyebar perihnya ke daerah lain, dimana saaat ini saya sedang mengalami di daerah bahu kanan saya.

Tips saya:
Walaupun bagaimana pun, saat ini rasa sakit bisa tidak konstan timbulnya pada diri saya karena saya mengubah total pola makan saya.
Saat ini saya sudah meninggalkan secara total semua daging, junk food, makanan cepat saji, segala macam snack, minuman bersoda dan beralkohol, dan makanan atau minuman yang mengandung glukosa secara dominan. Minuman yang di proses pasteurisasi (seperti susu, yogurt, es krim).
Ini memang amat sangat tidak mudah, tetapi saya telah mencobanya dan sangat membantu saya.

Makanan saya saat ini lebih banyak ke sayur mayur, buah-buahan, jenis daging yang berdasar daging putih seperti ikan saja (bukan seafood secara garis besar).
Semoga dapat membantu.

I am also stage IV colon. And all other options have been exhausted, doc recommends lonsurf, what is your experience withit?

My husband has stage 4 liver metastasis from colon cancer. Has been on 5 Fu with bev irinoteczn, xeloda, and showed liver metastasis reducing slightly. Then off for a moth and showed increase, diagnosed with hi pylori with antibiotics. In constant pain given morfin and we are going in for the celiac plexus block which hopefully will last .also had Y90 on left lobe snd next week for right lobe. Taking lonsurf. But he has lost a lot of weight 10 kilos and now staring a bit of eating hope these are the right treatments. Also am tired of taking to nurse practioners so next week am asking we speak to an MD from now on. Any advice for getting weight on and prognosis of therapy indicated.

I feel so sorry for you. 🙏🏼 I am going through liver cancer right now with the colon . It started in the colon snd mestasized into the liver by the time they caught it . I have gone through chemo and a illosophy . It is growing n the liver . They told us my livrrr looks like cottage cheese . I have been holding my weight though and go for fluids 6 days a week .
Prsyers that everything turns out in your favor . 🙏🏼 Good Luck

Hi Marshmellowjones, you do not need to @mention a member in your posts unless you want to ensure that a specific person gets an email notification of your reply.

You're right that a liver resection is a complicated surgery. Being only 2 months out, I can imagine you're still having to be cautious about lifting and exerting yourself. I assume you're also not yet able to drive. Any sudden stops with a seatbelt on would not be good. Are you able to add a little more activity each day - a few more steps - to help with fatigue?

@amandaburnett Hi Amanda I hope I'm doing this post more correctly. The liver resection is a massive surgery for anyone to undergo and comes with risks. I was under 4 1/2 hours, it was not laparoscopic bc the surgeon needed to get to a difficult area by blood supply. He described it as "complicated but successful." The surgical drain caused me severe discomfort. It hurt a lot even while in the hospital and I thought that it was normal where is was not. I lasted a week at home with it (in tears with pain on several occasions) and went to the ER to have it taken out. The opinion was that it had to have been touching nerves. In my instance 60% of my liver (the right side is larger) and gall bladder were removed. There was definitely pain and fatigue. Tomorrow is post-op 2 months officially and I still need to be careful about doing too much or lifting too much. Do I need to do @theperson each time?