Bronchiestatis and albuterol

Posted by gaylesunflower1 @gaylesunflower1, Oct 6, 2020

Hi everyone – my doctor has me on albuterol to control my bronchiestatis – has anyone else used this?

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@windwalker

@gaylesunflower1 Hi Gayle! Welcome to our group! Yes, many of us in this group use albuterol to open our airways. In fact, I am nebulizing some right now. If you find it makes you too jittery or gives you heart palpitations; you can ask that it be switched to 'levalbuterol'. Have you tried it out yet?

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Terri do you use albuterol everyday?? In a plain nebulizer ?

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@judyhodgern

Terri do you use albuterol everyday?? In a plain nebulizer ?

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Yes, Judy, I use it every day. I am supposed to do it twice a day, but I only do it in the mornings. I am too exhausted later in the evening to do it. I plan to get back on a better schedule and do it twice a day as prescribed. When I was sick with active mac; then I was religious about doing it twice a day along with the 7% saline. I have found that nebulizing the albuterol works way better than the handheld rescue inhaler.

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@windwalker

Yes, Judy, I use it every day. I am supposed to do it twice a day, but I only do it in the mornings. I am too exhausted later in the evening to do it. I plan to get back on a better schedule and do it twice a day as prescribed. When I was sick with active mac; then I was religious about doing it twice a day along with the 7% saline. I have found that nebulizing the albuterol works way better than the handheld rescue inhaler.

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Thanks Terri I really appreciate you getting back to me.
I wondered what you think took care of your Mac. and what was your symptoms when you had the active Mac? Now that you are better, how are your symptoms better? When you used the saline with the albuterol did you put them in the same nebulizer or did you do them separately?
Thanks so much—J

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@windwalker

@ge53, Have you tried switching the albuterol to levalbuterol? That is much more tolerable. I have been on all of these meds for so long; that none of it adversely effects me at all. Guess I am used to it all now.

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Have not tried that. I did order some 7% saline and am just beginning to try that. If can clear my lungs more with that am going to take that one step at a time and ask him about the levabuterol my next appoinment. Thank you for that advice!

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@windwalker

Yes, Judy, I use it every day. I am supposed to do it twice a day, but I only do it in the mornings. I am too exhausted later in the evening to do it. I plan to get back on a better schedule and do it twice a day as prescribed. When I was sick with active mac; then I was religious about doing it twice a day along with the 7% saline. I have found that nebulizing the albuterol works way better than the handheld rescue inhaler.

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@windwalker just wondering how many times you have had MAC,and how many times you have had pseud thanks Heather

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@windwalker

Yes, Judy, I use it every day. I am supposed to do it twice a day, but I only do it in the mornings. I am too exhausted later in the evening to do it. I plan to get back on a better schedule and do it twice a day as prescribed. When I was sick with active mac; then I was religious about doing it twice a day along with the 7% saline. I have found that nebulizing the albuterol works way better than the handheld rescue inhaler.

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Want to ask a question. I think I read somewhere since researching MAC that it could be killed with a temperature of water to 130 degrees. Did I read this at one point on this forum? Have you ever heard this? When people were talking about a new shower head we just adjusted our hot water to 130….hope this helps.

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@gej53

Want to ask a question. I think I read somewhere since researching MAC that it could be killed with a temperature of water to 130 degrees. Did I read this at one point on this forum? Have you ever heard this? When people were talking about a new shower head we just adjusted our hot water to 130….hope this helps.

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@gej53 The higher water temperature setting inhibits the growth of MAC. We had ours raised for that reason. Just be careful that you don’t burn yourself! irene5

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@gej53

Want to ask a question. I think I read somewhere since researching MAC that it could be killed with a temperature of water to 130 degrees. Did I read this at one point on this forum? Have you ever heard this? When people were talking about a new shower head we just adjusted our hot water to 130….hope this helps.

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We set our temp to 135F. Before I shower, I turn the spigot all the way up and run hot water through the shower to flush out the pipes while I leave the room to get undressed. (Exhaust fan running full blast.) I don't think there is MAC in our water because we have pink slime mold (methylobacter) and the two don't usually coexist, but just an extra precaution. The I adjust before stepping in.
Sue

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I have used albuterol and have a supply on hand to nebulize. It works well for me, as does my Atrovent enhaler. I rely more on Perforomist, which I nebulize every 12 hours. It is a medication for longer-term opening of the airways. I rarely use albuterol these days, as I do fine on Perforomist and some occasional use (maybe once daily, rarely twice) of Atrovent.

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@irene5

@gej53 The higher water temperature setting inhibits the growth of MAC. We had ours raised for that reason. Just be careful that you don’t burn yourself! irene5

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THanks!! 🙂 Will do…

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