Mayo Clinic Connect
Hi everyone – my doctor has me on albuterol to control my bronchiestatis – has anyone else used this?
Hi Don – yes you are correct – I have been off wixela for 2 days – for the past two days only 3 puffs of albuterol each day. Not sure what has closed my airways. I am also trying to exercise every day. In addition I have back problems due to hitting a semi truck head on so I have been wearing a brace. Doctor said that I have it too tight. I'm trying
Hello gaylesunflower1 I use Alvesco twice daily for bronchiestatis and asthma along with nebulizing Brovana twice daily. Alvesco replaces albuterol for me due to other health issues. I have used it for about 5 years. Sure beats having to use antibiotics every few weeks as I used to have to do before finding an asthma/allergy specialist who tested me. Best of health to you.
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I'm sorry and need to correct my previous answer regarding Alvesco. I use Alvesco in place of Flovent along with the Brovana twice daily, and the rescue inhaler used when needed is Xopenex. Not sure where my brain was when I wrote the first reply and I do apologize for the error. Wishing all a good breathing day! Baz10
@gaylesunflower1 Hi Gayle! Welcome to our group! Yes, many of us in this group use albuterol to open our airways. In fact, I am nebulizing some right now. If you find it makes you too jittery or gives you heart palpitations; you can ask that it be switched to 'levalbuterol'. Have you tried it out yet?
My pulmonologist ordered it for me and I think it is a pretty standard treatment. However, I could not tolerate it and had to quit using it after trying it.
@ge53, Have you tried switching the albuterol to levalbuterol? That is much more tolerable. I have been on all of these meds for so long; that none of it adversely effects me at all. Guess I am used to it all now.
Liked by gej53
I got asthma 18 yrs ago after inhaling a poisonous gas at work and have been on wixela – twice a day with albuterol as my rescue inhaler. After seeing my bronchiectasis dr he told me to stoop taking the wixela and use albuterol as needed. I've been able to get by with 3 puffs a day. Dr said that even with all the tests and blood work I've done – he's still not sure what is causing by shortness of breath and coughing – we are taking it one day at a time
Hi Gayle. May I ask what poisonous gas you inhaled at your job? That sounds wicked.
Terri do you use albuterol everyday?? In a plain nebulizer ?
Yes, Judy, I use it every day. I am supposed to do it twice a day, but I only do it in the mornings. I am too exhausted later in the evening to do it. I plan to get back on a better schedule and do it twice a day as prescribed. When I was sick with active mac; then I was religious about doing it twice a day along with the 7% saline. I have found that nebulizing the albuterol works way better than the handheld rescue inhaler.
Liked by migizii
Thanks Terri I really appreciate you getting back to me.
I wondered what you think took care of your Mac. and what was your symptoms when you had the active Mac? Now that you are better, how are your symptoms better? When you used the saline with the albuterol did you put them in the same nebulizer or did you do them separately?
Thanks so much—J
Have not tried that. I did order some 7% saline and am just beginning to try that. If can clear my lungs more with that am going to take that one step at a time and ask him about the levabuterol my next appoinment. Thank you for that advice!
@windwalker just wondering how many times you have had MAC,and how many times you have had pseud thanks Heather
Want to ask a question. I think I read somewhere since researching MAC that it could be killed with a temperature of water to 130 degrees. Did I read this at one point on this forum? Have you ever heard this? When people were talking about a new shower head we just adjusted our hot water to 130….hope this helps.
@gej53 The higher water temperature setting inhibits the growth of MAC. We had ours raised for that reason. Just be careful that you don’t burn yourself! irene5
We set our temp to 135F. Before I shower, I turn the spigot all the way up and run hot water through the shower to flush out the pipes while I leave the room to get undressed. (Exhaust fan running full blast.) I don't think there is MAC in our water because we have pink slime mold (methylobacter) and the two don't usually coexist, but just an extra precaution. The I adjust before stepping in.
I have used albuterol and have a supply on hand to nebulize. It works well for me, as does my Atrovent enhaler. I rely more on Perforomist, which I nebulize every 12 hours. It is a medication for longer-term opening of the airways. I rarely use albuterol these days, as I do fine on Perforomist and some occasional use (maybe once daily, rarely twice) of Atrovent.
THanks!! 🙂 Will do…
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