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Bronchiectasis and NTM Care Center Network (CCN)
GREAT NEWS!!
We are all concerned that many of us can not get good care in our communities. While some have the resources to travel to centers of excellence like the Mayo Clinic and National Jewish Health, others do not. That is why I am thrilled about this new initiative spearheaded by two incredible non-profits: The COPD Foundation and Bronchiectasis & NTM Info & Research. The following is in a newsletter I just received:
Bronchiectasis and NTM 360, a division of the COPD Foundation, is now accepting applications for clinics to join the Bronchiectasis and NTM Care Center Network (CCN). Led by the COPD Foundation and in collaboration with NTM Info & Research (NTMir) and other advocacy partners, the CCN’s mission is to establish a network of centers across the country, with the goals of reducing the time to diagnosis and supporting high-quality care for those with bronchiectasis and nontuberculous mycobacterial (NTM) lung disease.
The CCN is an opportunity for large health care centers and smaller pulmonary clinics and infectious disease clinics to participate in a network of nationally recognized centers that share our vision and strategic goals.
Members accepted into the CCN will have increased visibility as well as the following opportunities:
*National recognition as experts in the field.
*Start-up funding to support and maintain the CCN infrastructure.
*Access to free educational materials developed by the COPD Foundation in close partnership with leading experts and CCN partner advocacy groups.
*Opportunity to network among leading experts in the field.
*Opportunity to participate in clinical trials and research studies, as well as assistance with study recruitment.
*Access to patient resources, including a nationwide network of patient support groups provided by NTM Info & Research, a CCN advocacy partner.
If you have questions about the Bronchiectasis and NTM Care Center Network, please emailCCN@BronchiectasisandNTM360.org.
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Help is on the way!
Best,
Linda Esposito
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Clinics accepted to participate in the Bronchiectasis and NTM Care Center Network will receive one of the following designations, depending on their institutional resources and infrastructure:
*Bronchiectasis and NTM Care Center
*Bronchiectasis and NTM Clinical Associate Center
The designation criteria and requirements for each type of center has been established by the Bronchiectasis and NTM Care Center Network Steering Committee.
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2 ReactionsIt is wonderful that you do and are able to give the news and information that you post .
I heard from a friend that one has been designated in Texas and associated with Baylor in Texas. Have you heard anything about that?
Have you heard if there is a list, as of this date, of where they may have been created, established? Thanks
Barbara
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1 ReactionHi Barbara, They’ve just started to form the steering committee. However, I do know an excellent doctor at Baylor. I had been following him through a couple of educational webinars and then I met him last July at the world bronchi conference. His name is Sanjay Devarajan. There was talk about having an ID doctor and a respiratory therapist as well. I would definitely look him up. Linda
https://www.bcm.edu/people-search/sunjay-devarajan-35051
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