Breathing episode after Oxaliplatin?
Went in for my second treatment, and they gave me two different antihistamines because they were going to give me an iron infusion that they knew I had a reaction to previously and because I had had a small reaction to the oxaliplatin The last time. This time he started with the oxaliplatin and went to go into the push of the 5F you and I started almost having an asthma attack. I couldn’t breathe. I was almost hyperventilating. I couldn’t talk. It felt like I couldn’t get oxygen, but my oxygen levels were amazing. I just couldn’t actually breathe in without feeling like my throat was closing, has anybody had this happen to them? And was it related to the oxaliplatin which I ended up having a very bad neuralgia reaction to you as well with my feet I was not able to walk. It felt like they were bricks attached to them so I needed to be wheeled out to the car and have two people walk me to my door and have my son walk me through the house . UGG. They had decided they were not going to give me my ball and chain to carry with me for the two days and see what happens. I also did not get the iron infusion. Next time. We are going to skip the oxaliplatin and do the other two and make sure that it wasn’t, the F5U, that caused it.
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I will add him to prayers! The liver is where it usually goes first. I am glad its shrinking! Do they have him take benedryl before chemo or in conjunction with? I had a hotflash come on with the new part and they administered antinausea medicine and it counteracted that. Weird how stuff does that. The first time I had the Ox they had to give me benedryl because I was reacting weird, and they had to second time it didn’t work to keep it at bay and I had the breathing episode. I also got awful yeast infections and nose bleeds. That was the florauracil part. My face with this new one makes me break out with white pimples all over my face like a teen at its worst stage! Chemo kills the good with the bad! But I will take it!
I was unable to walk out of my chemo sessions, had to be wheeled to the car and two person assist to get me in the house, it would take 5 hours before I could move around on my own. My hands also didn't work and I talked like I was drunk.
The Oxaliplatin did that to me the second round with the breathing episode and they decided not to give it to me again because next time it could be anaphylaxis. Do they think you were allergic as well? Or hypersensitive? I have that as well so thats fun!
The nurses were concerned I was having an allergic reaction, my oncologist just called it a neuro response? I did read about another patient with low potassium who experience a similar reaction, so we tried boosting my potassium for subsequent rounds which seemed to help a bit
How are you doing now?
Good, I finished chemo in May 2021 - so far, so good!
He does get some premeds, including a steroid, but not benadryl. He has been taking an antihistamine (hydroxyzine) along with numerous other things, including Percoset, Zofran/Compazine, etc.
They skipped the last cycle because of the reaction to nivolumab. His next infusion is scheduled for Mon. So will see what happens then.
That is awesome! I am hoping and praying for years! I got the aggressive right side brand that doesn’t behave the way colon usually does. I made it 8 months. They have me on something different this time and I hope for a longer stretch. I want to see my baby get to and thru college. 😊