Breast disease: What decisions did you make with high risk factors?

I marvel at the breast journey you have been on. With mine, I was small breasted, a big tumor, Brca2 added and a mastectomy on one side my only option. I ended up have the other side removed for prevention.
Having reductions with doctors who were not the best is not uncommon. It feels though, you have experience to share on many breast topics.
My thoughts are that the newest doctor was not there for any of your prior test or surgeries. So not unlike the Biopsy i got at one hospital, the new research hospital wanted their own. Different machines and such. I was happy at the eventual treatment i had at the research hospital.
The best scenario for you is an all clear. Just waiting for results. Do as you seem to have done, be good to yourself as you wait. Keep us posted.

@katgob
You are an angel. I am so abundantly grateful for your response to my question.
You yourself have had quite a journey with your breast issues, and what you’ve gone through.
I consider you a courageous warrior.

I agree, wholeheartedly with you, new doctors, new eyes on things, and a hopeful outcome.

I know I have been fastidious about all of my healthcare.

Especially about my breast health with all the surgeries and exhaustion with each of them, hoping the next time I’d be put together better.

All in all, I would take what I went through over a diagnosis of cancer.

You are a brave woman.

I Messaged my breast surgeon from Massachusetts, fortunately she responded rapidly to me and just said keep me informed on what’s going on. She wants to know what the outcome is, and naturally I told her; just because I left Massachusetts. I still consider her my doctor and I will not hesitate to be on her doorstep if need be.

I know they all have to air on the side of caution, especially, with old history of images from another location, and a new finding.

I am grateful that they are willing to do their job thoroughly because that’s what we all want is a consciousness medical team of people.

Fortunately, I’m at Yale. I was at Boston Lahey clinic before this with a team. I was with for 16 years so naturally, getting new doctors was somewhat daunting..

I do not actually have a new breast surgeon yet they’re reviewing my new patient information, and I’m supposed to hear from them.

The good news is I have two other breast doctors in Massachusetts and one is from Brigham and women’s in Boston.

I always leave the door open to come back to the doctors. I’ve trusted for many years.. even if it’s three hours up and three hours back.

I’m always keeping an open mind and praying and hoping for good results.

I pray also for your continued wellness, and thank you for your kind and generous, compassionate response. It is greatly appreciated.
Hugs and blessings to you.

@calygirl84
For fun, I had a single mastectomy and an expander, as i was supposed to get radiation. My tumor kept growing after chemo, so the breast had to go. Then no radiation!! Instead a blood clot. Derailed. But my breast surgeon was moving 1 hr down the road. The plastics worked at both hospitals. 11 months after my 1st surgery with these two doctors at COH, I headed down to Cedars Sinai as i wanted both doctors to finish what they started. They did and both sides ended up removed. Both drs i would refer and have if they live in So Cal. Bedside manner and skill.
Your 3 hours is so worth it if you trust them. It sounds like all the ducks are lining up.
I will say a prayer for the best results possible. And the willingness to stay on this journey your body has taken you on. You too have courage and strength and a positive spirit.
Massachusetts and now at Yale. You remind me with your dr history that they come to love us and want the cure for us. Being a dr with all cancer patients is a challenge, but your Dr sounds like a blessing.
Keep us posted. Nothing beats sharing with others who know because they know. We understand.

@katgob
You have been down a path, that some may; however many will never, know the shock of a diagnosis such as yours.
Your strength of character and determination to get the best care, and in the mist of battling a serious illness, keeping your witts and Warrior mentality intact, is beyond inspiring, but encouraging to any woman faced with the challenges of a devastating diagnosis.
I am not as tough and resilient as you. I know in every frightening health situation I have gone through, multiple, multiple joint replacements, surviving legionnaires disease. I never experienced anything like what you have been through.
I always say, how can I change worry into something productive.
Worry… What if ? Then what?
We get busy.
As you say, Dr’s you trust, even hours away. It’s about what ever it takes, and that the statement “choose life” means, keep on living and believing for deliverance from the disease, and continued improvement in our health.
I am fortunate to have a tremendous Faith in God, and many people praying for me.

I am beyond blessed however that you have shared your journey with me… It’s personal, and intimate, and it’s your unique story.

I love this support group, with remarkable women such as yourself. We have the courage to tell our stories and what we have been through, and then we can pray and stand strong, and in the gap for each other.

I will keep you updated.
I know right now, I have some concerns. We aren’t human if we don’t. There are some things I am not impervious to, like a frightening diagnosis.
I feel deep down that I am going to be okay. I also keep reminding myself that right now, I just have to show up. My breast surgeon once told me, while I was waiting for my biopsy results.
“ I am your Doctor… I will do the worrying” from that day, those words took me down from high anxiety, to the reality that it’s true. I am in her capable hands.
Blessings and prayers to you 💖