How long do side effects last? - 1 1/2 year survivor

Posted by survivor1 @survivor1, Aug 11, 2016

I am a breast cancer survivor. I had IDC stage 2. I had chemo TAC . Double mastectomy and total reconstruction. Although it has been about a year and a half from my last chemo treatment I feel fatigue, joint pain all over, permanent hair loss, muscle atrophy, arthritis and more. I am told that chemo can stay in your body for 5 years. I also have chemo brain which at 55 is part age I am sure but it is not getting better. How log can these side effects last?

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@survivor1

God bless you. You are so strong and I love your attitude. My doctors all told that attitude is 90% of how you and whatever treatment you hare having. Keep going 🙂

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Hey Lacey by the way my nae is Suzi I am so glad to hear from you. I eel a connection even though it is through cyber space. LOL I am so gad that you enjoyed them program I am definitely going to look into it I feel better as well. I live in the county and am taking time to meditate and find my new normal. I m learning that I have to get my mind right first and the physical will come. I stay busy. The weather is cooler now but my sensitivity to the heat is awful I sweat at the drop of the hat. I have begun to start a routine of getting in bed early around 10 and get up at 8 every morning. I drink coffee and put on some morning soft music and sit on my front porch and watch the birds and just enjoy the moment. I am earning to live in the moment and enjoying the day and the second chance at life that God has given me. I hope that you are doing well. Please stay in touch
Blessings
Suzi

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Hi Suzi, I know where your coming from, we have all been there and done that. I also hate the heat, it has been a very humid summer and looking forward to the cold again. I cannot keep my eyes open past 8pm, but I get a good
8-9 hours sleep, I am an early riser ( 6am) as I have 3 doggies who need to go out, the yard is good until it gets light
out front. I am getting bummed out as my hummingbirds are getting ready to go back to south America and I will miss them, I am a great animal/bird lover. What county do you live in?? Tomorrow is our 3d livestrong class, looking forward to it , will keep you updated on the activities. Have a great Sunday. Lacey

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I’m sorry for what you’re going through and can relate. My oncologist told me that I had every side effect he’d seen in his 30 years of practice plus two he knew were side effects from treatment but never seen. My attitude had to make a major shift. And the treatment almost killed me. I required hospitalization more than once. I realized earlier in my life that we truly have no control over what happens to us, only our attitude about it. I made it through the treatment but needed another attitude adjustment when I realized recovery would not be the fast process I’d always expected. I’m four years out now. I still have issues that may never go away. Recovery is slow, but I press myself to work at it. Due to neuropathy and lung damage from radiation I still have to take life slowly. I take Prevagen which has helped the brain fog. I still have circulation issues from chemo induced blood clots, which I take blood thinners for. My neuropathy improved with two years of taking CoQ10 and PQQ every day. There is no cure, but the worst of the pain is gone. Mayo Connect has been a great help for side effect assistance and people who understand the long road recovery can be. I don’t have the stamina I used to, but stay with it. I was where you were, but I’ve slowly worked up to being able to do fun things with my family again. We all know that I’m still slow and need to rest from time to time, but we are together. Not only the patient lives with cancer, but the family has to make mental adjustments too. I’ve adjusted to the fact that I will never be the same person I was pre-cancer, but am adapting to who I have become. Good luck on your journey

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