Breast cancer spread to lymph nodes. Would you choose chemo?

Hi, I'm 47. I had a bilateral mastectomy October 13th, just got the pathology report a couple days ago. Final diagnosis: Invasive lobular carcinoma with micrometatasis in node. My oncologist is recommending 5 months of chemotherapy. I'm trying to make the best decision for myself. For those of you who have done chemotherapy, would you choose this therapy? What have you gained or lost by doing chemo? My oncologist said that chemo would increase my survivorship by 8-14%. Is it worth it? Long term?

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@kware75

@lisakinpa thank you for your response, information, and words of encouragement! All of this is so overwhelming for sure. I'm happy to hear you had minimal side effects. Reading about yours and others journeys has been helpful. ❤️🙏

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@kware75 If you are HER2- and ER+, the Oncotype will be an important factor in deciding on your treatment. Women with one positive node don't necessarily have chemo. Radiation is another story.

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@seathink

I was in a slightly different boat as the triple negative cancer I had was very fast and had spread to my lymph nodes within a month between mammograms and then the cancer got into my skin and chest wall, but I had a similar regiment as you: 5 months of chemo and then 35 rounds of radiation (although with surgeries and a year-long chemo pill I also took).

For me chemo was the easiest thing I did. I had found a study online either through Harvard or the Mayo clinic where they had people fast during chemo - basically at 12 hours before and a few hours after. This really helped my side effects although I ended up fasting longer I had infusion on Wednesdays so I would have a dinner Monday night and then not eat anything until dinner Wednesday night. It kept my nausea down. It definitely recommend taking all the bowel movement medicines they give you, I skipped it for a bit and was in misery.

There's lots of great advice out here for managing the symptoms. I also lost weight but that was because I was 38 and had just had a baby so I was slowly shedding that as I went through chemo. The surgeries were harder on my body and the radiation, since it was every day, was too.

Good luck!

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@seathink how are you feeling now? Please share your story.

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@windyshores

@kware75 If you are HER2- and ER+, the Oncotype will be an important factor in deciding on your treatment. Women with one positive node don't necessarily have chemo. Radiation is another story.

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Thank you @windyshores . I am anxiously awaiting that score.

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@chopin51

If you don’t find a naturopathic practitioner near you, some chiropractic clinics may offer iv infusions.

There’s also a phenomenon of iv infusion-only clinics popping up around the country that cater to people wanting to maximize their health but they aren’t able to give the super-high dose you need to kill cancer; women need up to 100g.

I wonder if an osteopathic doctor would consider this, too. If you search PubMed “high dose iv C cancer” there are studies that show the safety and efficacy. Perhaps showing these studies to a doctor would persuade them to accommodate you.

Yes, I’ll keep this group posted as to my outcome.❤️

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@chopin51 after searching yesterday, I did notice the pop up clinics but no other clinics near me. I am going to do more checking. Thanks for the additional ideas. I appreciate your help ❤️

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@seathink

I was in a slightly different boat as the triple negative cancer I had was very fast and had spread to my lymph nodes within a month between mammograms and then the cancer got into my skin and chest wall, but I had a similar regiment as you: 5 months of chemo and then 35 rounds of radiation (although with surgeries and a year-long chemo pill I also took).

For me chemo was the easiest thing I did. I had found a study online either through Harvard or the Mayo clinic where they had people fast during chemo - basically at 12 hours before and a few hours after. This really helped my side effects although I ended up fasting longer I had infusion on Wednesdays so I would have a dinner Monday night and then not eat anything until dinner Wednesday night. It kept my nausea down. It definitely recommend taking all the bowel movement medicines they give you, I skipped it for a bit and was in misery.

There's lots of great advice out here for managing the symptoms. I also lost weight but that was because I was 38 and had just had a baby so I was slowly shedding that as I went through chemo. The surgeries were harder on my body and the radiation, since it was every day, was too.

Good luck!

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@seathink thank you for sharing ❤️ this is very interesting and will definitely be researching this today. I appreciate your help. You were so young!! How are you doing good now? I hope well! 🙏

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@polianad22

@kware75 . How many nodes did they find positive? Were they axillary or sentinel nodes? How many nodes the surgeon remove ?

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@polianad22 HI, they only removed the sentinel node and it showed positive micromet .5mm. Only one was removed. The radioactive material they injected before the surgery only showed the path to that one. But my oncologist said we can "assume" that it traveled to others and elsewhere I'm my body. I am getting a second opinion and also have another appointment with my current oncologist.

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@kware75

@seathink thank you for sharing ❤️ this is very interesting and will definitely be researching this today. I appreciate your help. You were so young!! How are you doing good now? I hope well! 🙏

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Aw, thank you. It's been a crazy two years, for sure! I am doing much better - I got my port out recently and am done with my chemo pill. Now just 3 month blood work and 6 month imaging.

We're still shellshocked, though. I had a lump in the other breast a month ago that turned out to be breast tissue and my husband and I flat out didn't believe the radiologist. The doc very kindly took us back into the imaging room and showed us, but even then it took a while to sink in.

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This is a decision you must make for yourself. I went though chemo and it wasn’t pleasant… but I got through it! Lost my hair and everything else that others say will happen, but I got through it! If chemo is what you decide, you will get through it. You have to decide whether to trust in your medical team and go with that. In the end you must be sure you did all you could do to save your life.
Please remember, none of us are doctors! We just give our opinions
I wish you peace in your decision Kristi♥️🙏

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@kware75

@polianad22 HI, they only removed the sentinel node and it showed positive micromet .5mm. Only one was removed. The radioactive material they injected before the surgery only showed the path to that one. But my oncologist said we can "assume" that it traveled to others and elsewhere I'm my body. I am getting a second opinion and also have another appointment with my current oncologist.

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@kristi even if cells travelled to other parts of the body, if your cancer is highly responsive to estrogen, a hormonal med be what's needed and chemo may not be needed. Let us know!

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I was diagnosed on April 22 with stage2 her2+ grade3 as well. Did chemo for 6mo, mastectomy, started on kadcyla due to positive lymph nodes left. They did shrink in size by third. Starting radiation in couple weeks for 15 sessions. Please keep me posted on how much your tumors shrink. When I ask my oncologist about supplements, she says to only take vit d3 as the liver processes the supplements and she doesn’t want it to get too overworked due to chemo.

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