Breast cancer prevention

Posted by bepsie @bepsie, Jul 15 2:31pm

To start, thank God I've never had breast cancer though my mother and maternal grandmother did have it. I have MRIs every 6 months to a year, ABUS and mammograms. I am extremely proactive. My doctor suggested talking to a medical oncologist about going on a cancer drug to cut my chances of getting cancer. I'm 65 so post-menopausal. I am on Prolia shots for osteoporosis. I am active walking every day. I've read about the side effects of AI inhibitors I don't want to take a medicine if not needed. I would appreciate any help in making this decision, Thank you

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@meeshodge

I was dx with high grade HR+ DCIS back in April. I've had no treatments as of yet. I have NO risk factors. My DCISion results were 9.2 which suggests I would benefit from radiation. The oncologist suggested Tamoxifen due to being HR+. However, I want to avoid both. I did a 48 hour water fast over the weekend and have switched to 90% whole foods/plant based (I will eat grass fed or wild caught on occasion). I have began juicing fruit and veges. I will also add in 30 minutes of moderate to vigorous exercise 5x week along with weigh bearing exercises using weights). These things have shown to help prevent cancer and/or recurrence.
Just know that just because you may carry the genes, does not mean you will get BC. Reducing inflammation is key.

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Meeshodge- I am very worried that you are not doing anything about your diagnosis, except lifestyle changes. My opinion is that once this starts, you cannot eat your way out of it. Your program may help to prevent it from starting, but cannot cure it. Hope you will have it treated and continue with what you are doing to prevent it from returning.

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@meeshodge I just want to echo the concerns expressed by @drummergirl. Did you have a lumpectomy? Isn't 9.2 a high score? And your DCIS was grade 3? Did you have an Oncotype for your DCIS as well? What do you mean by saying you have "NO risk factors"?

Side effects for treatment with an aromatase inhibitor were very tolerable for me. I have not taken tamoxifen but I do know from the Oncotype report that it cuts risk in half.

I know two women who took a natural approach and did not do well. I believe that relying on things like diet, exercise, lifestyle, attitude etc. indirectly imply that our cancers are somehow caused by us. The causes of cancer are so complex. We all can determine our own path, but I feel scared for anyone relying on those approaches. Hoping you can come back and tell us you did fine, in a few years.

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@meeshodge

I was dx with high grade HR+ DCIS back in April. I've had no treatments as of yet. I have NO risk factors. My DCISion results were 9.2 which suggests I would benefit from radiation. The oncologist suggested Tamoxifen due to being HR+. However, I want to avoid both. I did a 48 hour water fast over the weekend and have switched to 90% whole foods/plant based (I will eat grass fed or wild caught on occasion). I have began juicing fruit and veges. I will also add in 30 minutes of moderate to vigorous exercise 5x week along with weigh bearing exercises using weights). These things have shown to help prevent cancer and/or recurrence.
Just know that just because you may carry the genes, does not mean you will get BC. Reducing inflammation is key.

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I'm going to strongly agree with drummergirl. Healthy eating and a healthy lifestyle can reduce your chances of developing cancer BUT once it's there, it's there. It's not going away (or even slow) without more traditional treatment.

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@windyshores

@bepsie just want to make sure you know that Prolia has a very strong rebound when stopped, resulting in bone loss back to where you were before treatment and increase in fracture risk. You have to go on Reclast to address the rebound. If you only do 1-3 Prolia shots, you might be able to do Fosamax. My doctors don't use Prolia because of the rebound risk.

If your osteoporosis was severe, an anabolic medication like Tymlos, Forteo or Evenity might be better but I believe that Tymlos and Forteo, at least, won't work well after Prolia. Not sure about Evenity

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I appreciate your participation on this site and the experiences you share. However this reply troubles me as it skirts dangerously close to medical advice. I've read your past comments which are all highly critical of Prolia, but Prolia works very well for a lot of people and has been shown to be effective in usage up to 10 years. I understand the rebound effect, bit that is not limited to Prolia and there are drugs for transitioning off it. I've used Prolia successfully for 4 years and will transition off it in December with Zometa. I trust my oncologist, and expect a good outcome. I hope you take this in the spirit it's meant as I do appreciate reading your posts.

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Just to add another voice to this conversation. There is a big difference between prevention and treatment. There is also a difference between modifying risk factors and looking for ways to blame yourself for your cancer.
None of us want a relapse, and all of us want to survive this, we might have different drugs that we tolerate or don’t tolerate and the reasons for doing so.
What are you doing to modify your risk factors? Can you understand that no one really knows why most of these cancers happen for sure, and give yourself grace?

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@dlmdinia

I appreciate your participation on this site and the experiences you share. However this reply troubles me as it skirts dangerously close to medical advice. I've read your past comments which are all highly critical of Prolia, but Prolia works very well for a lot of people and has been shown to be effective in usage up to 10 years. I understand the rebound effect, bit that is not limited to Prolia and there are drugs for transitioning off it. I've used Prolia successfully for 4 years and will transition off it in December with Zometa. I trust my oncologist, and expect a good outcome. I hope you take this in the spirit it's meant as I do appreciate reading your posts.

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@dlmdinia I totally agree with your criticism. I once asked the moderators to delete a post when I slipped like that. I usually write "according to my doctors" or according to McCormick" or a"ccording to this or that video" and in that post I had two separate sentences, with one saying my doctors won't use Prolia, which was ineffective in making it clear that the previous sentence came from my doctors.

I try to go slowly on the forum but sometimes I agree it can veer too closely to "advice" and I do try to be careful about attributing anything I say to either personal experience or to advice from professionals. I think this particular issue has been discussed so much, so often, that I just kind of wrote it by rote. I'll ask mods to fix it!

Prolia is a great drug for increasing bone density. My doctors are vehemently against it but you are right, transitioning is possible and I hope it has done well for you.

I have two friends who stopped cold turkey and their doctors didn't tell them about rebound. I am glad yours did!

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@windyshores

@meeshodge I just want to echo the concerns expressed by @drummergirl. Did you have a lumpectomy? Isn't 9.2 a high score? And your DCIS was grade 3? Did you have an Oncotype for your DCIS as well? What do you mean by saying you have "NO risk factors"?

Side effects for treatment with an aromatase inhibitor were very tolerable for me. I have not taken tamoxifen but I do know from the Oncotype report that it cuts risk in half.

I know two women who took a natural approach and did not do well. I believe that relying on things like diet, exercise, lifestyle, attitude etc. indirectly imply that our cancers are somehow caused by us. The causes of cancer are so complex. We all can determine our own path, but I feel scared for anyone relying on those approaches. Hoping you can come back and tell us you did fine, in a few years.

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Yes, 9.2 is a high score. 10 is the highest.
No oncotype score.
I do not have a family history. I do not have the BRCA genes. I was late to start my period (age 15), I had my youngest child at age 18. I breastfed. I only took BC off and on for a few years. I reached Meno at age 51. All these things are actually suppose dot be in my favor for NOT getting BC.
I will have surgery, haven't made up my mind which one yet as I am still researching. I MIGHT consider the 5 day radiation. The Tamoxifen is not something I am considering, it is carcinogenic. I am really starting to add in lifestyle changes to help NOT get a recurrence.

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@windyshores

@meeshodge I just want to echo the concerns expressed by @drummergirl. Did you have a lumpectomy? Isn't 9.2 a high score? And your DCIS was grade 3? Did you have an Oncotype for your DCIS as well? What do you mean by saying you have "NO risk factors"?

Side effects for treatment with an aromatase inhibitor were very tolerable for me. I have not taken tamoxifen but I do know from the Oncotype report that it cuts risk in half.

I know two women who took a natural approach and did not do well. I believe that relying on things like diet, exercise, lifestyle, attitude etc. indirectly imply that our cancers are somehow caused by us. The causes of cancer are so complex. We all can determine our own path, but I feel scared for anyone relying on those approaches. Hoping you can come back and tell us you did fine, in a few years.

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I have not had any treatment to date. I was diagnosed in April.

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@meeshodge

I have not had any treatment to date. I was diagnosed in April.

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I am very anxious for you. All the things you mentioned may make feel like you should not get it, BUT you DO have it and this is something to take seriously. Nothing good will come of putting off your treatment.
Sorry, I know I am over stepping with my advice, but you make me worried for you.

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@drummergirl

I am very anxious for you. All the things you mentioned may make feel like you should not get it, BUT you DO have it and this is something to take seriously. Nothing good will come of putting off your treatment.
Sorry, I know I am over stepping with my advice, but you make me worried for you.

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No worries. I understand. I have a friend who just listened to her Dr without even researching for herself. She just said do whatever he thought was best. She had DMX with DIEP flap. She also liked the idea of a tummy tuck. That is just not me. I want to have all the info I can to make a choice based on what is right for me and my lifestyle.
I will be better informed after my MRI next week. Then I will be able to make a plan.

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