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BRCA2 and MSH6: Family finds it hard to discuss cancer & feelings

Posted by ali1974 @ali1974, Oct 8, 2020

Hello:
My name is Alice, I am 47 yrs old. I am curious if anyone out there has both tested positive for BRCA2 and MSH6 genes? I had breast cancer in my early 30’s that resulted in a double mastectomy after treatment. I also had a hysterectomy for atypical cancer cells before the cancer diagnosis. I am very curious if this is common? I am currently being tested for PBC and have bleeding of non gynecological issues. I went to a urologist yesterday and I have to have additional testing. I am so overwhelmed with all these tests and can’t keep up with everything. I honestly, at this point want to say no more drs.

Does anyone have these feelings too? My family doesn’t want to discuss any of my feelings or possible diagnosis and it’s something I have to process. Any suggestions?

Thank you for listening

Interested in more discussions like this? Go to the Breast Cancer Support Group.

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yuviii | @yuviii | Apr 3 7:10am

Hello @ali1974. I am 58 and recently diagnosed with breast cancer. I have mutations in BRCA2 and MSH6 and it is of uncertain significance. I am yet to discuss the report with my oncologist. Can you share what additional genetic test you did for this?

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jmab | @jmab | Apr 4 11:42am
In reply to @yuviii "Hello @ali1974. I am 58 and recently diagnosed with breast cancer. I have mutations in BRCA2..." + (show)
Profile picture for yuviii @yuviii

Hello @ali1974. I am 58 and recently diagnosed with breast cancer. I have mutations in BRCA2 and MSH6 and it is of uncertain significance. I am yet to discuss the report with my oncologist. Can you share what additional genetic test you did for this?

Jump to this post

@yuviii this is not a direct answer to your question, but I've learned here that the basis for excellent care is finding a great cancer center & a great oncologist. That's half the battle. Sending best wishes.

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Moderator
Colleen Young, Connect Director | @colleenyoung | Apr 16 7:07pm
In reply to @yuviii "Hello @ali1974. I am 58 and recently diagnosed with breast cancer. I have mutations in BRCA2..." + (show)
Profile picture for yuviii @yuviii

Hello @ali1974. I am 58 and recently diagnosed with breast cancer. I have mutations in BRCA2 and MSH6 and it is of uncertain significance. I am yet to discuss the report with my oncologist. Can you share what additional genetic test you did for this?

Jump to this post

@yuviii, how did the appointment go with your oncologist? What treatment plan has been recommended for you?

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