Brain Mets

Posted by chrissy1 @chrissy1, Mon, Mar 4 1:23pm

Hi all , new to the group but hoping for some support & that I can support others ? I have 3 or 4 Tumours on my Brain , Breast Cancer diagnosed 2 half years ago. Nothing ever found in Breasts but we’re Breast Cancer Cells found in Hip , Femur & Liver . Tratuzamab & Pertuzamab every 3 weeks had Radiotherapy just before Christmas & it’s left me really tired & miserable. I’m terrified that I might start having Epileptic Fits & I’ve found myself staying Home in Bed all Day, frightened . I sometimes take my Sleeping Tablet or a
Dose of Morphine to hopefully send me to sleep so I don’t have to think about things. Woke up startled earlier with what I call a sweet smell which I had when first told it had spread to my Brain. I was in Hospital, confused & had a Brain Scan but kept
smelling this smell & smelt it tonight so terrified something’s going to happen ? How do others live with Brain Mets ? Was getting on pretty well with life before this developed Sepsis a couple of times, had been poorly a few times , but then once Home was quite active & Happy Radiotherapy has knocked me for six !
How’s others coping ? Any advice would be most welcome , Thanks X
I

Hi @chrissy1 and welcome to Connect. I have added your message to the Cancer group and the Breast Cancer group. I'd like to introduce you to some other members who are dealing with metastatic breast cancer, like @saltis @wandering and @karenatmayo.
You can read more about each of them and other members here:
> Breast Cancer group > Metastatic breast cancer: Anyone else? https://connect.mayoclinic.org/discussion/metastatic-breast-cancer-to-the-bone/

@trixie1313 also talked about smelling cancer here:
> Smelling cancer! https://connect.mayoclinic.org/discussion/smelling-cancer/

Chrissy, were you in ICU with sepsis? Are you home now?

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@colleenyoung

Hi @chrissy1 and welcome to Connect. I have added your message to the Cancer group and the Breast Cancer group. I'd like to introduce you to some other members who are dealing with metastatic breast cancer, like @saltis @wandering and @karenatmayo.
You can read more about each of them and other members here:
> Breast Cancer group > Metastatic breast cancer: Anyone else? https://connect.mayoclinic.org/discussion/metastatic-breast-cancer-to-the-bone/

@trixie1313 also talked about smelling cancer here:
> Smelling cancer! https://connect.mayoclinic.org/discussion/smelling-cancer/

Chrissy, were you in ICU with sepsis? Are you home now?

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No wasn’t in ICU had got to Hospital before it went to far . Really poorly for first 2/3 Days but pick up pretty quick once IV Antibiotics get into my system. I’ve had it about 4 times & have also had Cellulitis, these illnesses are due to a low immune system because of Chemotherapy. Apart
from pain after major surgery, I’d gone at least a year with Cancer & not knowing. It’s the treatment’s that make you so ill & OMG don’t they make you poorly X

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@chrissy1, I'm so sorry about your huge challenges! I have breast cancer that spread to my liver and brain. I never smelled anything unusual. It can be a constant worry about a new cancer location, but I try to not worry about what I don't know (such as until biopsy results confirm cancer – no worries about cancer until confirmation), but most cancer patients do worry. Connecting here is a great step. Also check in your community for cancer support groups, or the Livestrong program (you can Google it) – it's a 12 week exercise program for cancer patients. Illness, especially cancer, can be overwhelming. I was reading about talking with people with other situations, including, "at least it's not cancer." Nobody's told me that, because it IS cancer. We can get through this! Keep asking questions and listening to your body. Please let us know how you're doing. Blessings!

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@wendeth

@chrissy1, I'm so sorry about your huge challenges! I have breast cancer that spread to my liver and brain. I never smelled anything unusual. It can be a constant worry about a new cancer location, but I try to not worry about what I don't know (such as until biopsy results confirm cancer – no worries about cancer until confirmation), but most cancer patients do worry. Connecting here is a great step. Also check in your community for cancer support groups, or the Livestrong program (you can Google it) – it's a 12 week exercise program for cancer patients. Illness, especially cancer, can be overwhelming. I was reading about talking with people with other situations, including, "at least it's not cancer." Nobody's told me that, because it IS cancer. We can get through this! Keep asking questions and listening to your body. Please let us know how you're doing. Blessings!

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Thank you Wendeth, is comforting to know their are people around who will advice & support you 👍
I have the most Amazing Hubby , Andy & 2 Daughter’s & a Son their fabulous. I find though that when they ask how I am I just say fine thanks as I don’t like to worry or upset them. That’s why sites like this one is Fabulous , Take Care Hun & Thanks for getting in touch X X X

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