Botox for Migranes

Posted by Sundance(RB) @sundance6, May 6, 2019

Despite some of you saying not to try Botox Therapy for Migranes, I did anyway! What a mistake! Toxins such as Botox don't set well in my body.
It has been almost three weeks since my treatment. I have been having the worse headaches than before I started. I have been having severe nick and shoulder pain. I get very lathargic and depressed because I have them all the time. Doctor said it just happens.
Can someone give me some feedback as to if they have had the treatment and any side effects you may experienced. I go to bed with a headache and wake up with one.
I won't do another treatment!
Sundance

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I recently had Botox trigger point injections in my back for chronic pain. Two days later I started having a burning, stinging, cramping pain at the base of my neck and upper back on the right side which is not where the targeted pain is (my back pain is along the shoulder blades). I believe this new pain is being caused by the Botox migrating outside of the area where the injections took place. My doctor has instructed me to apply ice & heat and to do neck stretches. I'm also told to just wait for it to get better. I'm dreading the fact that Botox can last 4-6 months in your system. It's been 3 weeks now and the pain seems to be getting worse (more frequent).

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I tried the Botox injections and all they did was cause more pain. I then started seeing a doctor at a pain clinic and he started me on aimovig. It worked for almost a year but then stopped working. I will be going back to the pain clinic to see if they can try something else. Use ice packs on the back of your neck and wherever your headache hits. This is the only thing that is helping a little to ease the pain. I hope you find something that helps. I have been having headaches for 54 years and have tried just about everything there is so I am hoping something new has come out. Good luck.

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@maeback

I recently had Botox trigger point injections in my back for chronic pain. Two days later I started having a burning, stinging, cramping pain at the base of my neck and upper back on the right side which is not where the targeted pain is (my back pain is along the shoulder blades). I believe this new pain is being caused by the Botox migrating outside of the area where the injections took place. My doctor has instructed me to apply ice & heat and to do neck stretches. I'm also told to just wait for it to get better. I'm dreading the fact that Botox can last 4-6 months in your system. It's been 3 weeks now and the pain seems to be getting worse (more frequent).

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Perhaps you could ask your doctor to try some of the cgrp antagonists (aimovig, emgality, ubrelvy, Vyepti, qulipta) that are on the market. If they work it is wonderful as they are not narcotics, but work by preventing the pain process from happening in the first place. I must say that none of them worked for me but one of them might for you. I hope you find relief. You are not alone. I have had migraines since the age of 8 and I’ m now 77. They aren’t killer migraines anymore -around a 5 or 6, but 24/7. Good luck to you with the new therapies out there!

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@ruislip0416

I tried the Botox injections and all they did was cause more pain. I then started seeing a doctor at a pain clinic and he started me on aimovig. It worked for almost a year but then stopped working. I will be going back to the pain clinic to see if they can try something else. Use ice packs on the back of your neck and wherever your headache hits. This is the only thing that is helping a little to ease the pain. I hope you find something that helps. I have been having headaches for 54 years and have tried just about everything there is so I am hoping something new has come out. Good luck.

Jump to this post

I too am using aimovig injection I started at a low dose and after a year it wasn't working for me so my GP increased my dosage to 140 mg/ML and Ubrelvy 100 mg as needed between monthly injections. It is working for me so far so maybe this may work for you. Wishing you the best.

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@richardfrancine

Perhaps you could ask your doctor to try some of the cgrp antagonists (aimovig, emgality, ubrelvy, Vyepti, qulipta) that are on the market. If they work it is wonderful as they are not narcotics, but work by preventing the pain process from happening in the first place. I must say that none of them worked for me but one of them might for you. I hope you find relief. You are not alone. I have had migraines since the age of 8 and I’ m now 77. They aren’t killer migraines anymore -around a 5 or 6, but 24/7. Good luck to you with the new therapies out there!

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I am finding that they are very expensive and not all are covered. At $1-2k a month, my medicare with additional drug coverage with the doctors valudation forvuse is still $600 for one injection.

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@kpickowitz

I am finding that they are very expensive and not all are covered. At $1-2k a month, my medicare with additional drug coverage with the doctors valudation forvuse is still $600 for one injection.

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Oh my! That is expensive indeed! Medication costs are prohibitive in the US. I live in Ottawa, Canada, and my insurance covers 80% of the balance that is not covered by the province. I do hope you find a solution to your pain! Take care

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@gracie2020

I too am using aimovig injection I started at a low dose and after a year it wasn't working for me so my GP increased my dosage to 140 mg/ML and Ubrelvy 100 mg as needed between monthly injections. It is working for me so far so maybe this may work for you. Wishing you the best.

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I did the same thing and like you it did work for awhile but then it stopped again. Waiting now to get approved for a pain clinic. Hopefully there is something else I can try.

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