1. < Gynecologic Cancers

Anyone else been diagnosed with a borderline ovarian tumor?

Posted by EW @ew62, Sep 3, 2022

Two years ago, I underwent a hysterectomy to remove an 11cm tumor on my left ovary, and all the markers pointed to cancer. After my surgery, results showed I had a borderline tumor. Thus I did not need chemo or radiation. I go in every six months for blood work and scans for further tumor development. I am tumor free thus far. Has anyone else been diagnosed with a borderline tumor? I am curious as there is not a lot of information about them.

Thank you!!

Interested in more discussions like this? Go to the Gynecologic Cancers Support Group.

skyegirl | @skyegirl | Apr 12 3:47pm
In reply to @kimberly1006 "Hello, I am 58 yrs old and diagnosed with borderline ovarian tumor, stage 1C2. I had..." + (show)
@kimberly1006

Hello, I am 58 yrs old and diagnosed with borderline ovarian tumor, stage 1C2. I had remaining ovary removed one week ago (total hysterectomy in 2017 to remove everything, but kept one ovary) which had been causing lots of pain for the past 2 months. Gynecologist recommends CA-125 test in 3 months and if all is well, then no further follow up. I'm not really satisfied with this level of follow up and seeking a second opinion. I want to consult with a knowledgeable expert on these tumors and have some resource for follow up if any future issues arise. Thanks to all of you ladies for posting your experiences, as it is very helpful.

Jump to this post

I know it's been awhile since your post but I am curious to know if you got a second opinion and what happened? I also have a diagnosis of borderline tumors on both ovaries after a bilateral Salpingo oopherectomy. Last month. My case was reviewed at our Cancer center in a major city in Canada and I am waiting to discuss the report with my gynecologist but was told by the nurse at the centre that they would not be doing any follow-up other than a CT scan and regularly checks with my gynecologist. It seems a little premature to make that prognosis before I've had the CT scan even.I too I'm not 100% happy with this and wonder if I should look for a second opinion somewhere. I would have at least appreciated a consult with an oncology gynecologist so they could explain more about these tumours. Hope all has gone well with you. Thanks in advance.

REPLY
1 reply
kimberly1006 | @kimberly1006 | May 9 11:00am
In reply to @skyegirl "I know it's been awhile since your post but I am curious to know if you..." + (show)
@skyegirl

I know it's been awhile since your post but I am curious to know if you got a second opinion and what happened? I also have a diagnosis of borderline tumors on both ovaries after a bilateral Salpingo oopherectomy. Last month. My case was reviewed at our Cancer center in a major city in Canada and I am waiting to discuss the report with my gynecologist but was told by the nurse at the centre that they would not be doing any follow-up other than a CT scan and regularly checks with my gynecologist. It seems a little premature to make that prognosis before I've had the CT scan even.I too I'm not 100% happy with this and wonder if I should look for a second opinion somewhere. I would have at least appreciated a consult with an oncology gynecologist so they could explain more about these tumours. Hope all has gone well with you. Thanks in advance.

Jump to this post

Hello Skyegirl,

Sorry for the delay in my reply.

Yes, I did get a second opinion pathology report from MD Anderson. They diagnosed a Seromucinous Borderline Tumor which they did not stage and said that it was not possible to stage based upon the slides alone.

My current follow up protocol is lab tests (C125, CEA and CA19-9) and CT scans with contrast every 6 months for the first five years and annual follow up thereafter. At I write this, two of my lab tests have gone up slightly and of course, I am concerned about a recurrence.

On my own, I had to seek out a gynecologist/oncologist for my follow up. My original gynecologist who was consulting with a gyn/oncologist said that I didn't need follow up after the surgery and first lab tests post surgery. I was very upset by what seemed like a cavalier approach and that is when I researched dozens of gyn/oncologists on my insurance plan and I chose one who actually had done a residency at MD Anderson and she has other credentials that I liked as well.

I hope this helps and I hope that you get the follow up care that you need.

Hugs,
Kimberly

REPLY
View MoreView Less
Please sign in or register to post a reply.