Anyone else been diagnosed with a borderline ovarian tumor?

Posted by EW @ew62, Sep 3, 2022

Two years ago, I underwent a hysterectomy to remove an 11cm tumor on my left ovary, and all the markers pointed to cancer. After my surgery, results showed I had a borderline tumor. Thus I did not need chemo or radiation. I go in every six months for blood work and scans for further tumor development. I am tumor free thus far. Has anyone else been diagnosed with a borderline tumor? I am curious as there is not a lot of information about them.

Thank you!!

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@kirstinleigha

@candybeason45
Hey there,
I hope that your surgery goes smoothly and sorry for the bad diagnosis. Maybe your pathology report will come back good.. how are you feeling?

I had my first surgery in January.
I saw my oncologist on Friday, I will be going in for a second surgery to remove my fallopian tube and have biopsy’s done in my abdomen. I’m so afraid something bad will show up on the biopsy’s. I have been having unexplained nausea for years, and pain behind my belly button with lower back pain. I hope he finds what is causing it …

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I hope that you have a really good outcome. It definitely is scary not knowing what could be...I'm not doing ok at the moment. 😭 My periods are so unpredictable. Never on time and I haven't had one since Jan 5 but for the last 4 days I have been spotting very dark brown blood then today I finally started but let me tell u, this is the most painful period I have ever experienced in my life. It has me literally in tears. Not sure if it's from the tumor or the severe endometriosis they say I have but I have never in my life experienced pain like this with a period. My lower back hurts so severely along with my left hip and pain in my lower abdomen that's so intense to the point it brings me to my knees crying. It just feels so unbearable & I can't take this. I have a low tolerance for pain and this pain is something I would never wish upon anyone. I don't even know what to take that will ease this pain. I can't even walk straight due to being doubled over in pain. Does endometriosis do this like this? And what do the Drs do for it

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@candybeason45

I have a tumor on left ovary not sure what kind yet. It's a complex solid cystic tumor measuring 4.4 cm which grew from 3.8 cm in 2 months. Went to OBGYN yesterday having surgery on the 28. He said it doesn't look good that he's afraid it's cancer. Doing a partial hysterectomy with the possibility of a full hysterectomy with radiation & chemotherapy if cancer spread. I have came across your type of tumor while researching. Are you going to have it removed?

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@candybeason45
Hey there,
I hope that your surgery goes smoothly and sorry for the bad diagnosis. Maybe your pathology report will come back good.. how are you feeling?

I had my first surgery in January.
I saw my oncologist on Friday, I will be going in for a second surgery to remove my fallopian tube and have biopsy’s done in my abdomen. I’m so afraid something bad will show up on the biopsy’s. I have been having unexplained nausea for years, and pain behind my belly button with lower back pain. I hope he finds what is causing it …

REPLY
@kirstinleigha

Hello has anyone been diagnosed with Serous Boarderline ovarian tumor?

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Hey everyone,
My appointment went well..
All of my questions were answered and my oncologist was amazing!!
During my first surgery there was spillage.
I will be going back in for another surgery to have biopsies done and he will remove my fallopian tube because for some reason the obgyn left the fallopian tube.

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Hey everyone,
My appointment went well..
All of my questions were answered and my oncologist was amazing!!
I will be going back in for another surgery to have biopsies done and he will remove my fallopian tube because for some reason the obgyn left the fallopian tube.

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@kirstinleigha

Yes I am 24.
I have been diagnosed with serous boarderline tumor. I had it removed and lost my right ovary. I see an oncologist for the first time next Friday

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Thinking of you, Leigha as you prepare for your appointment tomorrow with the oncologist. If you feel up to it, please share what you learn and next steps.

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@colleenyoung

Leigha, thinking of you as you prepare for your appointment on Friday. Have you got your questions for the gyn oncologist ready?

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@colleenyoung
Thank you for that!
Yes I have my pathology report printed and I wrote my questions down on the report so my Dr will see my questions and can answer at my appointment.
I am so glad the appointment is almost here!

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@kirstinleigha

@naturegirl5
What is a cancer survivorship plan?

My appointment with my gyn oncologist is next Friday, thankful!

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Leigha, thinking of you as you prepare for your appointment on Friday. Have you got your questions for the gyn oncologist ready?

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@kirstinleigha

Hello has anyone been diagnosed with Serous Boarderline ovarian tumor?

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@kirstinleigha Oh, I'm so sorry. I meant to include links to describe what a cancer survivorship plan is.

--Cancer Survivorship Plans
https://www.cdc.gov/cancer/survivors/life-after-cancer/survivorship-care-plans.htm
--https://www.mskcc.org/hcp-education-training/survivorship/survivorship-care-plan

Thanks for clarifying when your appointment with the gyn oncologist will be. It will be next week on February 17, right?

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@naturegirl5

@kirstinleigha These are very good questions to ask your doctor.

You can ask your doctor - maybe the Gyn Oncologist for a cancer survivorship plan. I was given this by my doctor after my hysterectomy that was performed for endometrial cancer. Many of your questions could be answered by such a plan.

You could ask the following:

Will I be on a cancer surveillance schedule to check for any signs of recurrence? (By example, my cancer surveillance schedule was to be seen every 6 months for the first few years).

Will I need more treatment? Radiation therapy, immunotherapy or chemotherapy?

You wrote that the pathology report indicates spillage during surgery. I don't know what that is but I think you might be asking if there is further treatment for the spillage. Is that correct?

You wrote in another post here that your appointment with the Gyn Oncology doctor was scheduled for Friday. Was that for today? If so, what information did you get from the GYN Oncologist you saw today?

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@naturegirl5
What is a cancer survivorship plan?

My appointment with my gyn oncologist is next Friday, thankful!

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@kirstinleigha

Hi Helen thank you for responding. Yes I was diagnosed with serous boarderline tumor. I shared my story down below. I have several questions for my doctor

I found out my family history-
Father-had kidney removed because of cancer, grandmother had breast cancer twice and full hysterectomy
Mother-never goes to the doctor but says she’s never had any problems

1.)Will I have any blood work screening done?
2.)Genetic testing?
3.)How often is there reoccurrence? How can I help this not to come back?
4.)Why did the palopian tube get left behind?
5.)Am I going to need treatment?
6.)The pathology report says there was spillage during surgery is anything done about that?

That is the only questions I’ve got so far

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@kirstinleigha These are very good questions to ask your doctor.

You can ask your doctor - maybe the Gyn Oncologist for a cancer survivorship plan. I was given this by my doctor after my hysterectomy that was performed for endometrial cancer. Many of your questions could be answered by such a plan.

You could ask the following:

Will I be on a cancer surveillance schedule to check for any signs of recurrence? (By example, my cancer surveillance schedule was to be seen every 6 months for the first few years).

Will I need more treatment? Radiation therapy, immunotherapy or chemotherapy?

You wrote that the pathology report indicates spillage during surgery. I don't know what that is but I think you might be asking if there is further treatment for the spillage. Is that correct?

You wrote in another post here that your appointment with the Gyn Oncology doctor was scheduled for Friday. Was that for today? If so, what information did you get from the GYN Oncologist you saw today?

REPLY
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