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Hi,I’m taking nulasta the day after chemo to help boost white cells. The bone pain is horrible! Anyone have any suggestions for lessening the pain.
I am very curious about your NETs. Did they present in your breast then? My second breast tumor was neuroendocrine and there is very little in the literature of a breast presentation. On my last PET scan 2 months ago, there was a very small lung nodule, too small to biopsy, so am awaiting another PET scan in a month. Hoping against hope that cancer hasn't spread there.
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I was reading your posts and saw the nodules on the lung. Can you keep us posted on the outcome on that?? I had breast cancer in 2007, at the Mayo dr Tran was my surgeon. I had a skin sparing double mastectomy and had multiple complications from the expanders to the silicon implants, which are very painful because they cut the pectoral mussel, small slice down the middle to put the silicone in and the left side went into spasm mode. Now I have pain from that and the capsules the body makes. Anyhow I went to the mayo clinic in 2019 in September for 12 year check up and I complained about my love side of my chest I had a lot of pain and they just sent me home the doctor said you’re always complaining about pain and did nothing. By November I was so sick I had double pneumonia in my lungs and they found large cancer mass in my left long so we just remove the lobe a couple months now and I just had a CT scan And Dr. man’s Field called me back and said there’s problems with the nodules in my lungs looking like there’s cancer again, so I would love to see what you’re going to do with the nodules. Thanks for listening to me Trixie I’m really blue right now very sad that I have to keep fighting this stuff but I’m gonna do it I want to see my first grandchild born if I could ever get My son married.🤣😂😂 he is only 25. I go back September 17 and I’ll find out what they’re going to do about that, have a good night
Hi Susie – I will mention what happens next. What I am hoping is that this nodule is due to bronchiectasis or atelectasis. A few years ago I was hospitalized due to bronchiectasis with atelectasis where my lungs basically glued together. I was quite ill with the flu in the beginning of March so I'm hopeful that what showed up was inflammation from that, but time will tell. I am so very sorry you have gone through so much. As an aside, I was VERY LUCKY so far as my daughter invited me into the delivery room last June and I was there to see her daughter born. My main goal is to be here to see all my grandchildren grow up. Let us know how you do on 9/17…only think positive thoughts. I sure do wish you the best.
Prayers for you. Stay well and take care.
@ahurlbert30 I have had you in my thoughts and wondering if you have thought of any other way that we can help or support you from here at Connect. Conversations so often bring up thoughts and questions that seemingly come out of nowhere. I hope your treatments are going better.
I’m just taking it a day at a time right now. I’m looking for others with TNBC to share their stories. Everything I read is about how aggressive it is and how hard it is to treat but the statistics for 5 year survival are pretty good. I am hoping to talk with people who are past that 5 year mark.
I found this just the other day and it appears to be a breakthrough in the treatment of TNBC… something to share with your oncologist who will be familiar with the prestigious international journal NJP Nature Precision Oncology:
I’m glad you came to Connect and certainly hope that you find help, feel heard. I don’t have your particular disease but understand the need for support and understanding. For now, having relief from bone pain can help you enjoy better quality each of those days. Please continue to visit us and let us know how else we can help you. Blessings, Nancy
Thank you Trixie!! I will keep you posted and I am so happy you were able to see your grand baby born!! How exciting
Hi Susie – I was finally able to have a virtual meeting with my oncologist. The lesion in the upper lobe that they were concerned being a metastasis has gotten smaller and so is not cancer. Then there is apparently a nodule in the lower lung that is stable and so oncologist and radiologist feel is benign. Nothing had been mentioned of that nodule on all my previous PET scans, but oncologist reassured me this radiologist looked at all and noted in his findings. So instead of every 3-month PET scans, I am back to every 6 months. What did you find out at your visit on 9/12? I hope it was good news for you.
@trixie1313 Congratulations on your promotion!
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