1. < Breast Cancer

Blurry eyes after starting Tamoxifen?

Posted by mchler73 @mchler73, Jan 24 11:26am

Hello,
I started Tamoxifen 2 weeks ago and a couple days ago I started having blurry vision. The first day it happened, it lasted about 4 hours.
I called my Oncologist and he said to stop taking the Tamoxifen for now and has me scheduled to see an Ophthalmologist.
Anyone else experienced this?
Thanks!

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Rubyslippers | @triciaot | Jan 27 11:40am

I didn’t realize there was such a thing as “tamoxifen retinopathy”. It seems to be dose dependent, and accumulative.
Here’s a quick synopsis:
https://www.sciencedirect.com/science/article/abs/pii/S0039625723000383

BTW I’ve found Science Direct a very useful site. I had some of the latest research on radiation when I walked into my radiology oncologist appointment for the first time. She noticed my notes on the Italian study on 5 day radiation treatment - and told me that was an option for me. We were able to have a good discussion because I had read so much about the research.

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1 reply
mchler73 | @mchler73 | Jan 27 12:08pm
In reply to @triciaot "I didn’t realize there was such a thing as “tamoxifen retinopathy”. It seems to be dose..." + (show)
@triciaot

I didn’t realize there was such a thing as “tamoxifen retinopathy”. It seems to be dose dependent, and accumulative.
Here’s a quick synopsis:
https://www.sciencedirect.com/science/article/abs/pii/S0039625723000383

BTW I’ve found Science Direct a very useful site. I had some of the latest research on radiation when I walked into my radiology oncologist appointment for the first time. She noticed my notes on the Italian study on 5 day radiation treatment - and told me that was an option for me. We were able to have a good discussion because I had read so much about the research.

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@triciaot
Thank you so much for that link. It is very helpful to know Tamoxifen Retinopathy has occurred as early as 3 weeks and while patients were taking a 20mg/day dose.

REPLY
cax75 | @cax75 | Jan 27 3:06pm
In reply to @gemjaynes "I started having blurry vision after we moved to Scottsdale and found out that my eyes..." + (show)
@gemjaynes

I started having blurry vision after we moved to Scottsdale and found out that my eyes were "too dry." The desert and chemo both are drying. Lubricating eyedrops solved that problem. My eye doctor also told me to take alginate oil -- skipping the middle fish. But the symptoms for these 5-10 year meds like estrogen suppressors seem endless and multifarious. I'm switching from Letrozole to something else because my neuropathy from chemo got markedly worse after a couple of days on that med.

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I take tomoxafen and had dry eyes pprevious to this. Now I have infections in both eyes. I didn't eve think of the medication. I think unrelated

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