You might want to check on Natera. They take a DNA test on your previous cancer biopsy and after that, you can do a simple blood test to determine recurrance. FDA approved. Far less invasive than surgery. These DNA tests are becoming more common. MAYO has the Galleri test which looks for up to 50 different cancers.
Hi everyone. I was newly diagnosed with hi grade aggressive bladder cancer in August of 2022. It was noninvasive. I had a TURP removal of the tumor followed by 6 weeks of BCG treatments. Then a cystoscopy and another small cancerous bladder tumor. March 3, 2023 had surgery to remove the 2nd smaller tumor which was still noninvasive. I am currently waiting to undergo a 2nd round of BCG. If cancer returns Doctor wants me to go to Dana Farber in Boston for further treatment. I am an 80 year old female and never saw any of this coming my way. It was an incidental finding on a CT Scan for diverticulitis initially. I had no bladder symptoms. So that is where I am right now. Any comments I would greatly appreciate. My name is Leslee.
Hello everyone, maybe I'm just here to talk to someone, so excuse me if the story is long Twelve years ago, my husband was diagnosed with bladder cancer in his home country, Syria. It's in the Middle East. He didn't know a cancer patient because his brother had kept that secret from him. On the basis that it is a normal mass, even the doctor did not inform him under his brother’s instructions. After the diagnosis, he traveled to Canada a Year After , symptoms appeared, and he went to the doctor, and he was treated first with chemotherapy, and then a Dr. decide removing the bladder with the prostate, but now, after ten years, appearing in the body during the examinations, a lump appeared in the ureter and decided The doctors removed the ureters because the mass made a blockage of the kidneys, so they decided to remove them, and there is no spread in the body. My question is, is it possible that it will spread soon, or what is this stage for him? Because I searched for a case similar to his, and I did not find it. Thank you, even if you could not answer me, I just need some support
Hi everyone. I was newly diagnosed with hi grade aggressive bladder cancer in August of 2022. It was noninvasive. I had a TURP removal of the tumor followed by 6 weeks of BCG treatments. Then a cystoscopy and another small cancerous bladder tumor. March 3, 2023 had surgery to remove the 2nd smaller tumor which was still noninvasive. I am currently waiting to undergo a 2nd round of BCG. If cancer returns Doctor wants me to go to Dana Farber in Boston for further treatment. I am an 80 year old female and never saw any of this coming my way. It was an incidental finding on a CT Scan for diverticulitis initially. I had no bladder symptoms. So that is where I am right now. Any comments I would greatly appreciate. My name is Leslee.
Surgery”blue light” biopsy on April 24. Good news: I get a two-fer. They will do some TURP work which is needed (again!) as well as cancer cell hunting. Best case: the dye lights up cells in situ, we do some more chemo. Worst case: they find nothing, yet bad cells still show up in urine and they determine I am a Martian.
Immune therapy did not work at all, been thru two years chemo, and that left me clear for only a year. Dye biopsy surgery will reveal if it’s still in situ, as it has always been thus far.
Hi @cairo20, I'm tagging @kathrynmc@sandielegal@pameladstone, who are women with experience with bladder cancer. I'm not sure if any of them had neobladder surgery or if they have experience with incontinence to share.
I'm sorry that you're still dealing with significant incontinence. Daytime incontinence can take 6-12 months to improve. Were pelvic floor exercises suggested for you?
Lest I sound to negative, I have few symptoms, otherwise good health, met a lot of terrific people in the cancer fight, and have not been unable to do things. I am not running the high hurdles, but then I never did😮
Yes
Started them immediately after catheter was removed. Seeing a 2nd Physical Therapist who specializes in Pelvic Floor exercises.
I’m still hopeful but it’s been 6 months and it doesn’t seem to make any difference 😞
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You might want to check on Natera. They take a DNA test on your previous cancer biopsy and after that, you can do a simple blood test to determine recurrance. FDA approved. Far less invasive than surgery. These DNA tests are becoming more common. MAYO has the Galleri test which looks for up to 50 different cancers.
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1 ReactionHang in there. Monday I have biopsy surgery scheduled for recurrance. They do not know where cells are coming from. Hoping for a clear path ahead.
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2 ReactionsHello everyone, maybe I'm just here to talk to someone, so excuse me if the story is long Twelve years ago, my husband was diagnosed with bladder cancer in his home country, Syria. It's in the Middle East. He didn't know a cancer patient because his brother had kept that secret from him. On the basis that it is a normal mass, even the doctor did not inform him under his brother’s instructions. After the diagnosis, he traveled to Canada a Year After , symptoms appeared, and he went to the doctor, and he was treated first with chemotherapy, and then a Dr. decide removing the bladder with the prostate, but now, after ten years, appearing in the body during the examinations, a lump appeared in the ureter and decided The doctors removed the ureters because the mass made a blockage of the kidneys, so they decided to remove them, and there is no spread in the body. My question is, is it possible that it will spread soon, or what is this stage for him? Because I searched for a case similar to his, and I did not find it. Thank you, even if you could not answer me, I just need some support
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3 ReactionsHi everyone. I was newly diagnosed with hi grade aggressive bladder cancer in August of 2022. It was noninvasive. I had a TURP removal of the tumor followed by 6 weeks of BCG treatments. Then a cystoscopy and another small cancerous bladder tumor. March 3, 2023 had surgery to remove the 2nd smaller tumor which was still noninvasive. I am currently waiting to undergo a 2nd round of BCG. If cancer returns Doctor wants me to go to Dana Farber in Boston for further treatment. I am an 80 year old female and never saw any of this coming my way. It was an incidental finding on a CT Scan for diverticulitis initially. I had no bladder symptoms. So that is where I am right now. Any comments I would greatly appreciate. My name is Leslee.
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3 ReactionsSurgery”blue light” biopsy on April 24. Good news: I get a two-fer. They will do some TURP work which is needed (again!) as well as cancer cell hunting. Best case: the dye lights up cells in situ, we do some more chemo. Worst case: they find nothing, yet bad cells still show up in urine and they determine I am a Martian.
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2 Reactions@bruceb, any update from the biopsy? How are you doing?
I did not have bladder cancer personally, my sister did.
Lest I sound to negative, I have few symptoms, otherwise good health, met a lot of terrific people in the cancer fight, and have not been unable to do things. I am not running the high hurdles, but then I never did😮
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1 ReactionCancer is a journey; mine is in the 7th year.
6 years ago, blood in urine led to my discovery