My husband has exactly the same history. His scope last week was clear. He will receive 3 BCG treatments followed by scope in 3 months. I wish your husband well.
My husband is going for cystoscopy after 2nd TURBT and 2nd round of BCG(12 total). If he is clear, would he likely be advised to have maintenance BCG started? Thanks.
My husband has exactly the same history. His scope last week was clear. He will receive 3 BCG treatments followed by scope in 3 months. I wish your husband well.
My husband is going for cystoscopy after 2nd TURBT and 2nd round of BCG(12 total). If he is clear, would he likely be advised to have maintenance BCG started? Thanks.
My husband is going for cystoscopy after 2nd TURBT and 2nd round of BCG(12 total). If he is clear, would he likely be advised to have maintenance BCG started? Thanks.
After cancer cells detected in bladder was urine, I underwent biopsy surgery PLUS needED TURP. They washed kidneys, ureters, etc. Found nothing. So now science has NO more detecting procedures. I am simply waiting for something unknown. This is at top urology dept. in the midwest. Cells were real, present, double checked. Yes, did BCG, chemo. No symptoms, feel fine. Good news? Define “good.”
After cancer cells detected in bladder was urine, I underwent biopsy surgery PLUS needED TURP. They washed kidneys, ureters, etc. Found nothing. So now science has NO more detecting procedures. I am simply waiting for something unknown. This is at top urology dept. in the midwest. Cells were real, present, double checked. Yes, did BCG, chemo. No symptoms, feel fine. Good news? Define “good.”
My husband had multiple TUR procedures over a two year time period and at every recheck there was another spot to either watch or biopsy. While I know of others who have done this for over 10 years as an acceptable method of controlling their bladder cancer, that was not how my husband wanted to live his life....hence the neobladder surgery. Perhaps with a low grade tumor they would not reappear with such frequency? When tumors returned while on BCG maintenance therapy, he was considered a BCG failure so no more. Good luck to you and your husband.
While your husbands surgery was his choice, I believe it was a wise choice. My husband had a TUR procedure, and one year of BCG treatments. After treatments were complete, he had only 1 maintenance BCG before a very large mass was found into the wall and muscle. At that point, his only option was bladder removal and there's a chance it was a step taken too late. From what I've experienced, those with bladder cancer, especially if an aggressive type, should head right to removal unless the surgery itself is too risky due to other health concerns. Early action would remove the risk of cancer spreading from the bladder, which can happen in a very, very short time. The surgery is a major one, but easier recovery for a healthy person than a person who is ill, and it removes the threat of spreading. We changed doctors since BCG treatments; at some point I intend to discuss this our current urologist. Although I'm not a dr, it was something I pondered earlier and now wish I had questioned. Maybe it's a choice others could benefit from.
Cancer cells have a way of hiding and may become resistant to chemotherapy only to appear again later.
You might want to look at taking 95% standardized curcumin wit black pepper extract to both help recovery and possibly inhibit reccurrance, I would reccomend 1000 mg doses posssibly more than once a day. It is know to reduce side effects of treatment. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6277549/ https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5840955/
Also "timed release" vitamin C is helpful for building the immune system.
Connect
Connect
Like
Helpful
Hug
Thank you for the info. How long is he waiting to begin BCG? It’s good to know that “clear” is possible after round two!
My husband has exactly the same history. His scope last week was clear. He will receive 3 BCG treatments followed by scope in 3 months. I wish your husband well.
I forgot to say- Mayo Rochester
My husband is going for cystoscopy after 2nd TURBT and 2nd round of BCG(12 total). If he is clear, would he likely be advised to have maintenance BCG started? Thanks.
-
Like -
Helpful -
Hug
1 ReactionSurgery used state of art blue light detection using dye.
bladder wash, that is.
After cancer cells detected in bladder was urine, I underwent biopsy surgery PLUS needED TURP. They washed kidneys, ureters, etc. Found nothing. So now science has NO more detecting procedures. I am simply waiting for something unknown. This is at top urology dept. in the midwest. Cells were real, present, double checked. Yes, did BCG, chemo. No symptoms, feel fine. Good news? Define “good.”
While your husbands surgery was his choice, I believe it was a wise choice. My husband had a TUR procedure, and one year of BCG treatments. After treatments were complete, he had only 1 maintenance BCG before a very large mass was found into the wall and muscle. At that point, his only option was bladder removal and there's a chance it was a step taken too late. From what I've experienced, those with bladder cancer, especially if an aggressive type, should head right to removal unless the surgery itself is too risky due to other health concerns. Early action would remove the risk of cancer spreading from the bladder, which can happen in a very, very short time. The surgery is a major one, but easier recovery for a healthy person than a person who is ill, and it removes the threat of spreading. We changed doctors since BCG treatments; at some point I intend to discuss this our current urologist. Although I'm not a dr, it was something I pondered earlier and now wish I had questioned. Maybe it's a choice others could benefit from.
-
Like -
Helpful -
Hug
3 ReactionsCancer cells have a way of hiding and may become resistant to chemotherapy only to appear again later.
You might want to look at taking 95% standardized curcumin wit black pepper extract to both help recovery and possibly inhibit reccurrance, I would reccomend 1000 mg doses posssibly more than once a day. It is know to reduce side effects of treatment.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6277549/
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5840955/
Also "timed release" vitamin C is helpful for building the immune system.
University Of Iowa. Investigate and ask about GemDoce chemo bladder infusions. Research Dr. Mike O'Donnel research on Gem Doce treatment.