Bladder Cancer Group: Introduce yourself and connect with others

Thank you for your reply and concern. I never knew their were other options. I will inquire when this episode is over. Thanks

Hello big155 and welcome to Connect Bladder Cancer. My husband has battled an aggressive bladder cancer since 2019. He got tired of all the cystoscopies and followup tumor removals and had his bladder and prostate removed over 2 years ago, with a neobladder surgery done to replace it.
Many people live with and control their noninvasive bladder cancer with regular monitoring and removal of tumors, as bladder cancer does like to return. I hope that yours is very responsive to the chemo so you get a break from surgeries. I am hearing that BCG has become easier to get hold of so maybe when you are finished with your chemo you can use that for a maintenance therapy if needed. Good luck to you and keep looking through the bladder cancer topics here for answers to your questions.

Had my right kidney removed only to find out i also have bladder cancer. I have had it scrapped first and had 2 more timers removed 90 days later. I was placed on a waiting list for BCG treatment and after a month of waiting was offered the gensar chemo and taxotere treatment. I go for my second of six treatments tomorrow. I was not offered any treatment until about 7 months after surgery. I have had no side effects as of today. I am glad my wife found this site. I hope and prey everyone benefits from their treatment.

Thanks Tom
It appears that the BCG worked well for you. I'm having number 4 tomorrow. I have not had many side effects. I'm hoping that it works for me as it did for you. Thank you for the kindness of your reply.
Francis

Hi Fran,

Yes, I had 5+ rounds of BCG treatment ( not able to complete 6th round completely) 7 years ago which seemed to work.
Side effects weee minimal, just a bit uncomfortable until last round, my body started to reject at that point.

like you..i am not worried about me..feel am strong enough to deal..but sure could use someone to talk to..my worry will be for those i leave behind..bladder cancer seems to be unforgiven...as it seems to just about alwyas return..i have a line in sand i wont do..my bladder stays...i wont go out piece by piece..just alot of anxierty and fear of the unknown..it feels like atleast once a month..something is being done to me...i guess am fortunate in that regard as it gets caught early..but each test just heightens the anxiety...and awaiting pathology results is excruciating

I'm sorry to hear of your protracted struggle with cancer, which is difficult, and your struggle with discouragement, which is worse. I am at an earlier stage, involving only the bladder so far, and it began about a year ago when I was 69. The certainty of my mortality and the anxiety I feel for my family and loved ones seem to be ever present. The thought of having to leave the dance fills me with emense sadness. I suspect your are no stranger to these thoughts and feelings, and they are even more immediate and pressing due to the state of your illness and your comparatively young age. Please know that you are not alone. In the quiet, solitary hours when we feel it all weighing in, we are not alone.

just getting statrted.removed my left kidney and ureter last july.cancer came back in the bladder.just had a turbt 11 days ago.will start BCG in 6 to 8 weeks.alot of anxiety and fear over things i read as am only 59

Tom26
What treatment did you get 7 years ago. BCG?
Thanks
Fran

@bethcamp, how are you doing in week 2 of gemcitabine and docetaxel?