Bladder Cancer Group: Introduce yourself and connect with others

Hi Colleen, could you tell me how to jump to a post I’ve bookmarked?

Thank!

Greetings all. I’m an 82 yo male diagnosed with aggressive non-invasive BC, and am about to undergo my second TURBT because my oncologist wants to make sure it’s non-invasive. I understand that the invasiveness can determine the type of treatment recommended. I’m being treated at the Anschutz Cancer Center at the University of Colorado Hospital.

I have three questions:
1. What is the typical treatment plan for slightly invasive BC. Would that still be BCG?
2. Can they determine whether BCG will be effective before beginning its use?
3. Assuming it is, what is the typical follow-up treatment?

Thanks!

In the fall of 2025 a CT scan identified a 4.5 cm tumor in my bladder. That was removed by TURBT in October 2025. It was a High grade Ta type cancer. In January, I started a 6 week BCG treatment schedule. I received 3 injections at 1/3 dose and 3 injections at 1/2 dose as I was sharing the BCG with other patients. At the end of March 2026, I had Cystoscopy to have a look see. Another tumor was observed and several areas or concern were noted by my urologist. I just had the tumorous stuff removed last week and several new biopsies done. The urologist is very worried about the health of the bladder. I should receive the results next week of those biopsies. I really do not want to lose my bladder.

@jlopez7868 good to know. Thanks. Cystoscopy seems to be in the future a lot!

@vickipm Mine was non invasive also, had 6 treatments of BCG with no side effects, cystoscopy in May to see if did not return

Husband with UTUC originally went through all sorts of research treatments to no avail. Finally had his kidney removed. Evidently one dang tumor emerged in his bladder. We saw it yesterday at the urologist. Awaiting instructions for removal and once weekly administration of something. I took no notes, just asked if his current Keytruda infusions will continue and Dr. said yes. Just go smacked, cuz last week learned that the PET scan showed no cancer .
The roller coaster continues 🎢.
What have others used to rid bladder tumors... this one is non emergency invasive now.

I did go to the Dr. put a camera in the bladder said it was a cauliflower said it cancer. I go back on the April 22 for a biopsy have to stay all night. I"m not going to have no chemo maybe you can give me more information

Sharon

@sharonlsorrell1953s, how did your appointment go on the 31st? Do you know what treatment you will have?

@pol7
I have Ta, high grade urothelial and CIS. A test of my pathology after TURBT showed BCG would not work for me, so I was put on the GEM/Doce treatment. I did 5 weeks of it, then a few weeks later, cystoscopy and was clear. I've just had the second of 12 4-weekly Gem/Doce and will be having 3-monthly cystoscopy.
Almost no side-effects.

Good luck for April

@sharonlsorrell1953s i am in treatment for low grade noninvasive-first once a week for six weeks. Then a scope which showed no tumors. However, he is continuing treatment for once a month for 9 months with a scope every three months. My oncologist is being extra cautious and although my cancer did not spread outside the bladder wall I am doing what he recommends. I am not risking losing my bladder (which heaven forbid ) could occur but I don’t want any regrets or woulda coulda shoulda.