Bladder Cancer Group: Introduce yourself and connect with others

Husband with UTUC originally went through all sorts of research treatments to no avail. Finally had his kidney removed. Evidently one dang tumor emerged in his bladder. We saw it yesterday at the urologist. Awaiting instructions for removal and once weekly administration of something. I took no notes, just asked if his current Keytruda infusions will continue and Dr. said yes. Just go smacked, cuz last week learned that the PET scan showed no cancer .
The roller coaster continues 🎢.
What have others used to rid bladder tumors... this one is non emergency invasive now.

I did go to the Dr. put a camera in the bladder said it was a cauliflower said it cancer. I go back on the April 22 for a biopsy have to stay all night. I"m not going to have no chemo maybe you can give me more information

Sharon

@sharonlsorrell1953s, how did your appointment go on the 31st? Do you know what treatment you will have?

@pol7
I have Ta, high grade urothelial and CIS. A test of my pathology after TURBT showed BCG would not work for me, so I was put on the GEM/Doce treatment. I did 5 weeks of it, then a few weeks later, cystoscopy and was clear. I've just had the second of 12 4-weekly Gem/Doce and will be having 3-monthly cystoscopy.
Almost no side-effects.

Good luck for April

@sharonlsorrell1953s i am in treatment for low grade noninvasive-first once a week for six weeks. Then a scope which showed no tumors. However, he is continuing treatment for once a month for 9 months with a scope every three months. My oncologist is being extra cautious and although my cancer did not spread outside the bladder wall I am doing what he recommends. I am not risking losing my bladder (which heaven forbid ) could occur but I don’t want any regrets or woulda coulda shoulda.

Was hoping to get some about bladder cancer. I go to the Dr. urologist May 31 for blood work ab see him. I have read alot about it but not really answer some question.

My husband had a radical cystectomy/prostatectomy 4 years ago after a few years of treatments for highly aggressive urothelial cell carcinoma of the bladder, muscle invasive. He is happy with his neobladder and the new normal has him self cathing 4 times a day to empty completely. Incontinence is only an issue at night. I know how much against losing the bladder we were early in this battle, but aiming for a cure takes different pathways for each one of us. You do what feels right for you. New treatments are being approves all the time and saving the bladder is always the priority. Keep reading and researching and consider second opinions if your treatment options seem limited.

@delavan
BCG didn't work for me. My Dr is talking about doing the Gen/Doce if needed after my next scope in April.

Like to know what people think of not doing chemo for bladder cancer an do you know what the life is without treatment. I have now a 10 cc in my bladder

I’m an 85 year old man, in good general health with a T1 high grade urothelial tumor with possible plasmacytoid features. Not muscle invasive, and Dr Tyson gave me a choice of BCG or cystectomy. For me, since catheterization is painful and cystoscopy is more painful I chose cystectomy. It is more definitive, and I won’t need to be looking at an endless series of treatments and possible eventual cystectomy. Always interested in more info.