Bladder cancer: Anyone treated at Mayo Clinic?
I love this site, lots of kind folks here….
I’m not looking for sympathy, just sound advice.
I’m an Air Force vet, 1961-1965. Until recently the VA has been a blessing.
In 2000 a small bladder tumor was discovered, which was removed.
From what I gather via Google, Mayo and the Cleveland Clinic are excellent sources of reliable information.
Bladder tumors tend to return. So periodic cystoscopes at least once a year is recommended.
All of which were performed at least 5 times. However, the last at least 10 years ago.
About a year ago, I had lower back surgery. The surgeon mentioned that within a few days I should be walking normally, without pain.
That hasn’t happened.
Since then, I also started having pain in the lower abdominal area.
From what I gather, pain there along with lower back pain are common symptoms of bladder cancer.
Long story short, several VA doctors were baffled by my “problem.” All they ever did was poke and stare with blank faces.
All that changed about a month ago, when I started passing blood and urine. That seemed to catch their attention.
A CT scan noted thickening of the bladder wall, and a “closer” look was advised.
After light blood levels were noted, a second CT scan, with contrasting fluid, was performed. That’s when the tumor was discovered.
However, only the worst part of the tumor could be removed at that time.
Followup CT scans, with contrast, were performed on the lower abdomen and upper chest.
They found no evidence of cancer cell invasions. Sure hope they know a lot more than the VA doctors.
About a week ago they started Chemo. Three weeks from now I’m scheduled for another exam at the VA hospital in Madison, Wisconsin.
Here’s where my request for “sound advice” comes in. In short, I no longer trust the VA.
Has anybody here had major surgery performed at Mayo, while covered by VA benefits?
Thanks for your kind attention.