Beyond Breast Cancer - new Mayo Clinic book

Posted by Laurie, Volunteer Mentor @roch, Oct 9, 2023

I just received my copy of a new book by Mayo Clinic "Beyond Breast Cancer" - A Mayo Clinic Guide to Healing & Wellness. I have not read, but Table of Contents looks like will be very helpful in dealing with all those "What now?" questions.

I was diagnosed 5 years ago, Had surgery, chemo, radiation, and rechecks since then. Next week have my 5 year post treatment recheck. It always brings up so many emotions and new questions. Definitely going to read book prior to appt.

Laurie

From about this book:
"Beyond Breast Cancer: A Mayo Clinic Guide to Healing and Wellness is a supportive, practical guide to life after diagnosis and initial treatment for breast cancer. In this short, accessible book, Mayo Clinic breast cancer specialists Tufia C. Haddad, M.D., and Kathryn J. Ruddy, M.D., and colleagues offer their insights on how to navigate this new phase of the journey, including monitoring for signs of recurrence; optimizing diet, sleep and exercise habits; coping with lingering treatment effects; improving sexual health; managing money and insurance issues; and much more.

Use this book to help you through those months after treatment is over and when treatment is ongoing. Return to it as needed. Life after a diagnosis of breast cancer is rarely the same as it was before. But that doesn’t mean it can’t be richer, more meaningful and perhaps even healthier. It’s about more than just surviving. It’s about living the life you were meant to live.

Softcover • 5 x 8 Inches • 224 Pages • Mayo Clinic Press • 2023 • ISBN 798887700267

Interested in more discussions like this? Go to the Breast Cancer Support Group.

@leculdesac

I hope they've included up to date diet advice. There's strong, growing literature (animal studies, case studies, and inference) from very respected researchers/clinicians in support of carefully managed intermittent fasting and keto diet to starve cancer of glucose/fructose. But it's important to do the keto carefully so as not to feed cancer w/ too much protein either. Unfortunately, a lot of oncologists (and even nutritionists in cancer centers, as I've found out) aren't familiar w/ literature.

I strongly believe every patient shoulddecide for herself (and himself) w/ their drs' input as to their treatment w/o absolutes pushed by docs or online, but it disappoints me to keep seeing certain diets pushed (mediterranean--lots of high glycemic pasta--or low fat) as if there's clear science behind them w/r/t cancer. Seyfried's paradigm-changing work on metabolism as the central common pathway for cancer (much more than genetics) shows great promise, particularly in combination w/ standard of care. The case studies they've demonstrated w/ glioblastoma in particular are astonishing. There's all this focus in the mainstream these days on how cancer feeds off of estrogen to the point wherein some women endure terrible, disabling side effects, but none on how cancer feeds off of glucose/fructose (and glutamine, though that's more difficult to get at).

I mean, who knew until recently that we evolved to process fructose as part of an upcoming winter hibernation strategy, such that it spikes insulin when in high concentrations, appetite, and fat storage. Makes sense, really, and the researchers working on this make the point that whole fruits have great nutritional and fiber value, but that we weren't meant to drink the juice of 20 apples or more at one sitting, however organic. We all know to avoid high fructose corn syrup, but glasses of OJ? I feel awful for giving juice to my kids, thinking it completely safe--it'll be seen in the future like I gave them cigarettes or something. 🙂

Something as simple as continuing on the same diet but keeping it to 6-10 hrs a day to give the liver a break was shown in a 2016 study w/ breast cancer to reduce recurrence in a dose-dependent matter. That's an adjuvant therapy that's free and has health benefits apart from cancer.

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I can tell you feel strongly about this topic. It sounds as if it could take up many books on this piece alone. This book is more about ALL the ways we have to deal with transitioning from active treatment to survivorship.
You should start a thread with this topic so that it can be discussed by the many folks who feel strongly about changing and or maintaining a certain diet.

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@leculdesac

I hope they've included up to date diet advice. There's strong, growing literature (animal studies, case studies, and inference) from very respected researchers/clinicians in support of carefully managed intermittent fasting and keto diet to starve cancer of glucose/fructose. But it's important to do the keto carefully so as not to feed cancer w/ too much protein either. Unfortunately, a lot of oncologists (and even nutritionists in cancer centers, as I've found out) aren't familiar w/ literature.

I strongly believe every patient shoulddecide for herself (and himself) w/ their drs' input as to their treatment w/o absolutes pushed by docs or online, but it disappoints me to keep seeing certain diets pushed (mediterranean--lots of high glycemic pasta--or low fat) as if there's clear science behind them w/r/t cancer. Seyfried's paradigm-changing work on metabolism as the central common pathway for cancer (much more than genetics) shows great promise, particularly in combination w/ standard of care. The case studies they've demonstrated w/ glioblastoma in particular are astonishing. There's all this focus in the mainstream these days on how cancer feeds off of estrogen to the point wherein some women endure terrible, disabling side effects, but none on how cancer feeds off of glucose/fructose (and glutamine, though that's more difficult to get at).

I mean, who knew until recently that we evolved to process fructose as part of an upcoming winter hibernation strategy, such that it spikes insulin when in high concentrations, appetite, and fat storage. Makes sense, really, and the researchers working on this make the point that whole fruits have great nutritional and fiber value, but that we weren't meant to drink the juice of 20 apples or more at one sitting, however organic. We all know to avoid high fructose corn syrup, but glasses of OJ? I feel awful for giving juice to my kids, thinking it completely safe--it'll be seen in the future like I gave them cigarettes or something. 🙂

Something as simple as continuing on the same diet but keeping it to 6-10 hrs a day to give the liver a break was shown in a 2016 study w/ breast cancer to reduce recurrence in a dose-dependent matter. That's an adjuvant therapy that's free and has health benefits apart from cancer.

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leculdesac | @leculdesac
The book does not suggest or endorse any specific diet. It has chapter titled "Staying Healthy", and includes general guidelines on eating healthy. Has chart on suggestions on what to eat and what to eat less of.

This book does not provide detail diet information for cancer patients.

Laurie

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@leculdesac and anyone interested in discussion diet, healthy living with and after cancer may wish to join this discussion:
- Healthy diets for cancer patients
https://connect.mayoclinic.org/discussion/healthy-diets-for-cancer-patients/

Also see this recorded event where Mayo Clinic's Dr. Dawn Mussallem, a diagnostic breast specialist and contributor to the book, delivers a presentation for breast cancer survivors on achieving optimal well-being through diet, exercise, and stress management.
- Video Q&A about Breast Cancer Survivorship: Attaining Renewed Vitality
https://connect.mayoclinic.org/event/video-qa-about-breast-cancer-survivorship-care-planning/
- Cancer-Fighting Foods
https://connect.mayoclinic.org/event/cancer-fighting-foods/

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@colleenyoung

And many thanks to the members of the Breast Cancer support group here on Mayo Clinic Connect who were interviewed for the publication of this book. Thank you for sharing your insights and experiences!

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How can I get a copy of this for my daughter's best friend, who was diagnosed in April, has undergone chemo, surgery, radiation and is just finishing round 2 of her chemo next month?
Sue

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@eaglewings22

Which cancer marker tests did you use to monitor your ILC? Thank you!!

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@eaglewings22
If I remember correctly it was CA27.29 for breast cancer and CEA for colon cancer since this cancer more frequently appears with breast cancer.
There may be different monitoring now.

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@sueinmn

How can I get a copy of this for my daughter's best friend, who was diagnosed in April, has undergone chemo, surgery, radiation and is just finishing round 2 of her chemo next month?
Sue

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It can be ordered directly from Mayo Clinic Press.
https://mcpress.mayoclinic.org/product/beyond-breast-cancer/

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@windyshores

@roch I am 9 years out and had double mastectomy. I am not really anxious so to speak, but it does sit on the back burner and affects how I think about the rest of my life to some degree (I am72).

My oncologist discharged me at 5 years. But risk with hormonal cancers goes up! No scans, no blood tests- that is the usual practice.

I have arthritis, several spinal fractures, kidney issues, neurological issues. migraines, and COPD. So how the heck am I supposed to be alerted to possible cancer? Pain is an everyday thing for many of us. I guess if there is a big change....

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Since I also had a double mastectomy and went flat, it was easy to feel the new lump on my chest wall 7 years later. I also had been having annual ultrasounds, but I caught it first.

Now, I have regular CT scans, first every 3 months and now every 6. Like you, I have so many other medical ailments including another type of cancer, neurological issues, diverticulitis issues, etc. Lots of pain and symptoms that have nothing to do with cancer. A familiar pain is not worrisome, but every new pain that pops up, I think, "It that the cancer? Is that? What about that?" It think it's natural to worry about that. But so far, all new pains are not due to the cancer. Phew!

I think I'll order the Mayo book on breast cancer. 🙂

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@leculdesac

I hope they've included up to date diet advice. There's strong, growing literature (animal studies, case studies, and inference) from very respected researchers/clinicians in support of carefully managed intermittent fasting and keto diet to starve cancer of glucose/fructose. But it's important to do the keto carefully so as not to feed cancer w/ too much protein either. Unfortunately, a lot of oncologists (and even nutritionists in cancer centers, as I've found out) aren't familiar w/ literature.

I strongly believe every patient shoulddecide for herself (and himself) w/ their drs' input as to their treatment w/o absolutes pushed by docs or online, but it disappoints me to keep seeing certain diets pushed (mediterranean--lots of high glycemic pasta--or low fat) as if there's clear science behind them w/r/t cancer. Seyfried's paradigm-changing work on metabolism as the central common pathway for cancer (much more than genetics) shows great promise, particularly in combination w/ standard of care. The case studies they've demonstrated w/ glioblastoma in particular are astonishing. There's all this focus in the mainstream these days on how cancer feeds off of estrogen to the point wherein some women endure terrible, disabling side effects, but none on how cancer feeds off of glucose/fructose (and glutamine, though that's more difficult to get at).

I mean, who knew until recently that we evolved to process fructose as part of an upcoming winter hibernation strategy, such that it spikes insulin when in high concentrations, appetite, and fat storage. Makes sense, really, and the researchers working on this make the point that whole fruits have great nutritional and fiber value, but that we weren't meant to drink the juice of 20 apples or more at one sitting, however organic. We all know to avoid high fructose corn syrup, but glasses of OJ? I feel awful for giving juice to my kids, thinking it completely safe--it'll be seen in the future like I gave them cigarettes or something. 🙂

Something as simple as continuing on the same diet but keeping it to 6-10 hrs a day to give the liver a break was shown in a 2016 study w/ breast cancer to reduce recurrence in a dose-dependent matter. That's an adjuvant therapy that's free and has health benefits apart from cancer.

Jump to this post

Exactly what i discovered in my own research . If estrogen was the main cause of breast cancer why would God create us with it. Hey but who decided that fructose and many other things we are not meant to eat fuel the cells to change to cancer cells. I lead a very healthy life then got hit with weight gain and so much stress in 2022. My diet was not the most healthy and boom 2023 i have breast cancer. A healthy lifestyle, avoidance of stress, eating whole foods as much as we can like our grandparents and those before them did is of great help. It has to be diet related since there are more and more young women below the age of 30 getting breast cancer.

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@melaniesherman

Thank you so much for sharing this new "survivorship" resource. I had a double mastectomy in December 2022, multi-focal DCIS in my left breast and small DCIS in my right, and am currently in year long chemo/targeted therapy treatment receiving Kadcyla, aka, TDM1, for an early stage 1A, HER2+, hormone negative tumor found in post surgical pathology since January of this year. I have less than 3 months to go until treatment end, having completed 13 of 17 rounds, and since there are no more mammograms for me, and HER2+, a marker for greater chance of recurrence and aggression, I imagine I will be managing anxiety of cancer's return against living presently and fully for some time. Dr Kathryn Ruddy, the co-author of this new book, is also my oncologist! I'm purchasing the Kindle version today. I'll need to thank her as well when I see her next.

Melanie

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@melaniesherman, welcome. Fear of recurrence is a real fear that many cancer survivors contend with. I don't think it ever truly goes away, but people have shared how they live with it and their coping strategies. You may wish to join these related discussions:
- Facing Cancer Recurrence, PTSD & Acknowledging Mental Health
https://connect.mayoclinic.org/discussion/facing-cancer-recurrence-ptsd-acknowledging-mental-health/

- Emotional aftermath following breast cancer treatment https://connect.mayoclinic.org/discussion/emotional-aftermath-following-breast-cancer-treatment/

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favorite source material on the right keto diet that you could share?

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