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markmor456

Been recently diagnose with meseteric panniculitis 2 months ago been dealing with [...]

Posted by @markmor456 in Digestive Health, Jun 26, 2014

Been recently diagnose with meseteric panniculitis 2 months ago been dealing with it since Oct 2013.looking for input,
Thanks

Tags: sclerosing mesenteritis, Mesenteric Panniculitis, gastroenterology

Posted by @Margaret_Marie, Jun 27, 2014

Hi, @markmor456. I'm sorry to hear about your recent diagnosis. Here is some information about treatment of sclerosing mesenteritis at Mayo Clinic: http://www.mayoclinic.org/diseases-conditions/sclerosing-mesenteritis/care-at-mayo-clinic/treatment/con-20037148.

markmor456

Posted by @markmor456, Jun 27, 2014

Thank you, my case is unique as they put it, I have been experience the severe abdominal pain, back pain just recently, nausea, vomiting, fatigue, inflammation of the joints. They still haven't figure out what is contributing to the mesenteric.
Again thank you on the website been helpful.

Mark

markmor456

Posted by @markmor456, Jul 2, 2014

Good Evening, thank you so much on the web site of sclerosing. I can't get enough information.
I will be coming soon to Mayo clinic in Rochester.

Thanks

lisas444

Posted by @lisas444, Jul 30, 2014

I am a mom of one of the peds kids with it . . and aggressive unfortunately. Inpatient frequently, severe malnutrition. We have a group of 57 of us in a private group with SM and MP . . . very supportive and discuss everything and questions welcome, etc. Sharing treatments, suggestions, and ALL degrees and stages of SM in there. We've had a couple recent deaths from SM in our group. There is another who has been inpatient since diagnosis in April. Another diagnosed in January and spent Jan-April inpatient with a 100# weight loss. We have a diverse group if interested.

lisas444

Posted by @lisas444, Jul 30, 2014

She was diagnosed in 2008 . . . age 14.

lisas444

Posted by @lisas444, Jul 30, 2014

and yes pathology was done when they had her open on the table . . . sent to 4 pathology sites with the same diagnosis. Thru Children's in OKC, St. Louis, Vanderbilt and Salt Lake . . . she's still alive . . but the outcome isn't good.

marip

Posted by @marip, Jul 2, 2014

I was diagnosed last year with abdomen pains. Had cat scan done and was told by a GI doctor I had mesenteric panniculitis. I still don't know what caused it. I do have eczema and diverticulosis. I didn't ask my doctor if he thought if either of these conditions can be the cause.

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