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Diagnosed with Low Renin Hypertension. When should I see an endocrinologist?
Been alittle while since I have visited the group. Several to Mayo clinic & hospitalizations. Still the endocrine system baffles me! Left adrenal gland over producing aldosterone with level 32 but right side has approx 2cm myolypoma,level 4. Hyponatremia, hypokalemia, 5 HTN drugs to try to control blood pressure. When or do you consult with an endrocrinologist?
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Dawn, I have been waiting for this welcome update on your status and see solid grounds for encouragement. I had similar experience with my urologist and anaesthesiologist; within a few days after biopsy in my bladder, they were joined by my nephrologist and her chosen endocrinologist for post-operative care and diagnosis focused mainly on my blood pressure. It didn't act up as expected! Differences between us metabolically obviously will lead to different experiences, but I am strongly confident that you'll come through this with renewed confidence of your own that your doctors are getting things right and under control. Best wishes for your cystoscope procedure and your new relationship with Dr. Chang!
Martin
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1 Reaction@predictable Thank you Martin. It's been a bit rough lately. Heart rate this morning 180 - horrible headache but normal sinus rhythm. 🙂 But God is good and it says he only gives us what we can handle. So I will dig deep and get through this. 🙂
Headed to the doc to get the results of my weekend testing. 24hr urine & CPK. Weekend was full of severe muscle cramps all over my legs and my abdomen.
Heading back up to Mayo Clinic Rochester in 2 weeks. 🙂
Update:
Back to Mayo clinic Aug 4 & 5
@colleenyoung It's so strange looking back at these posts. Hard to believe it's 2023 and I'm still battling. All those theories and tests. Now as I sit here and look back at my journey it's unbelievable. This week I will be having my adrenal gland removed. All these years it's taken and hundreds of doctor's appointments and lots and lots of money on tests. Find out the tumor that was in my adrenal gland is actually a pheochromiocytoma. I will be heading to Florida to have it removed. I sure pray everyone is doing well. I miss you like crazy!
Continued prayers for you!
Dawn
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2 ReactionsDawn!!! Hello. So nice to connect with you again (pun intended). The other day, a member asked why older posts remain on Mayo Clinic Connect. This is a very good reason. It can be helpful to see one's journey.
I'm sorry to hear that your search for answers continued during all this time. But, eureka, you finally have a diagnosis: pheochromocytoma. You may be interested in joining this discussion as you prepare for your trip to Florida and for surgery.
- Pheochromocytoma: Anyone being treated for an adrenal mass? https://connect.mayoclinic.org/discussion/pheochromocytoma/
Do you mind sharing your surgery date?
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