Anyone have pain after BCG Treatments, especially with urination?

@tom26, how did the next treatments go? How are you doing?

I just completed my first BCG treatment yesterday and did not have any side effects. I got a reduced 1/2 dose, same volume but less concentrated as there is a shortage currently but Dr said the 1/2 doses were just as effective. It was A bit sore to pee first time but other than that no issues. Hoping the next few will be similar with no major issues.
Tom

Sandy
Thanks for the reply. God bless you. I hope I am as fortunate as you were. I wish you the best life possible.
Fran

No, thankfully it did not. U did have one exam that showed a benign cyst and they just cauterized it.
Good luck, Fran.
Sandy

I talked with the nurse who gives the treatments, all I get is the symptoms are to be expected and get worse towards the end

The 1st was February 2024 I had a large tumor, went every 3 months for the scope in November, I had three spots they burned them off and February 2025. I had five more tumors started the treatment. I did my fifth treatment one to go and was told the scope would be 6 to 8 weeks after my last treatment, I am so ready to get it over with the pain has been excruciating the first day some of the second day.

Sandy
Did your cancer ever come back?
Fran

Finished my six treatments last month and editing for the evaluation cystoscopy later this month. No pain during treatments. Some flu like symptoms after the fourth and fifth treatment but otherwise ok. I think you need to talk to your urologist.

My pain is not burning. It is a sharp pain that radiates. What type of pain were you having?

I just finished my 6 week BCG. I had a good bit of pain urinating and lasted about 3-4 days, My doctor prescribed Phenazopydine. That really helped with the pain. You can also buy this drug OTC. A smaller dose but I take 2 pills a day for the pain. Several of the drug stores and some grocery stores carry AZO with Phenazopydine. I got mine at walmart. Now don't laugh but it turns your pee orange. That is normal. OK you can laugh, I laughed the first time I peed orange.