Connect
Axonal peripheral neuropathy: Finally, a diagnosis!
Hello!
I know I've been here before, but probably not for many months For the past few years, I have seen specialist after specialist hoping to finally receive a diagnosis. Only last Monday I was told by the most recent of several neurologists that I have axonal (loss) peripheral neuropathy. Now that I have a name to attach to my problem, I would love to talk with others who have received similar diagnoses. I have such basic questions: What to do now? What should I expect? Where do I go from here?
Ray (@ray666)
Denver
Like
Helpful
HugInterested in more discussions like this? Go to the Neuropathy Support Group.
Connect
Check out my story here
https://connect.mayoclinic.org/comment/645606/
What is the cause of your neuropathy?
Have you had the biopsy for small fiber neuropathy?
Here are some labs ordered by Dr Oaklander.
https://www.google.com/search?q=dr+Oaklander&ie=UTF-8&oe=UTF-8&hl=en-us&client=safari&sei=bCK9Z6DWE_W5wN4P0NidqAU#
Here is another one
https://www.google.com/search?q=dr+Oaklander&ie=UTF-8&oe=UTF-8&hl=en-us&client=safari&sei=bCK9Z6DWE_W5wN4P0NidqAU#
It does move into your organs.
https://www.foundationforpn.org/
Mine is autoimmune severe axonal sensorimotor peripheral polyneuropathy
Small fiber neuropathy
Dysautonomia