Living with autonomic neuropathy
I would like to connect with people who have autonomic neuropathy
Interested in more discussions like this? Go to the Neuropathy Support Group.
I would like to connect with people who have autonomic neuropathy
Interested in more discussions like this? Go to the Neuropathy Support Group.
Hi,
All I can do is live for today. Each day I wake I deal with the day ahead, the day I don't wake I assume I won't be having to deal with it at all! ANS has changed the way I look at my future, I'm now reluctant to take on long term projects for fear I won't get to finish them, instead opting for shorter quicker projects I at least have a chance of completing. Instead of precision work I now just fumble my way through as best I can. I'm blown away by people who tell me I have done good work when I know it is not up to my previous quality, all my life has been working to extreme precision, not being able to attain that is destroying me as I know it was possible not so long ago. I try to be happy that at least I can still work, walk, talk and be argumentative when I feel the need. Luckily I'm past the pain bought about by thinking of my plight, I'm more concerned about fitting everything in before the faitful day ANS decides it is time to stop the heart muscle because it can.
Cheers
I have had those symptoms, but not since I started taking one 1000 units of Magnesium supplement each night (Swisse brand)
This site is absurdly depressive. PD,dyskenesia, ataxia control my abilities and I'm surprised how aggressive it is.
I'm taking a rest from this forum. Thanks for your participation. My interest is neuro modulation to integrate body movement and discard freeze of gait.
I actually posted somewhere else that is all too depressing and it’s depressing watching people be depressed, and most of the time I’m not depressed. I’m living pretty you know fucking great life the dealing with the setbacks. I need to take a break from these forums everybody stay positive take whatever meds make you feel better and get the most out of what you can get the most of it’s a beautiful sunny day in the Hudson Valley
Hi everyone, I just wanted to reach out and ask if anyone is dealing with autonomic neuropathy? Much different from the recognizable name of peripheral neropothy.
Thanks, and hope to hear from anyone.
Hi,
Can't say I'm dealing with it but am definitely putting up with it, being incurable and untreatable there is not much else one can do. I have Autonomic polyneuropathy which is all the nervous systems and just to make sure I have them all covered I also experience peripheral neuropathy for good measure. Just what symptoms relates to which are a mine field of opinions. All I know is I'm the sum total left to find my own way through each day. I have discovered consentrating I what I'm doing helps rather than relying on natural responses to certain things. My digestive system is total corrupted and out of my control and I'm just along for the ride. I try to focus on what I can do and get on with my life for as long as I can. I go hard and fast while I can, pushing the body to extremes. Yes it may well be shortening my life but at least I gain some comfort in life while I can. I don't allow myself to sit around and dwell on the what if's and maybes, that eats me alive and can cause anxiety. I never asked why me and I don't really care, this is me and what I am, I just get on with what I can while I can.
Cheers
@duckski44, I moved your post about autonomic neuropathy to this active discussion
- Living with autonomic neuropathy: https://connect.mayoclinic.org/discussion/living-with-autonomic-neuropathy/
I did this so you can see previous posts and connect with members talking about autonomic neuropathy like @andyjustin @cheyne and others.
Thank you so much, I hope to connect with others dealing with this disorder