Atypical facial pain that affects nerves in cornea

@gracie71
That is so painful!

I have Polyneuropathy. Of course that’s a lot different than what you are battling. However, I am wondering if you can take the same Supplement I take that eases the pain from the neuropathy. It sounds like you have nerve damage. If so, you could try taking this supplement that was recommended by neurologist.
It’s, alpha lipoic acid (ALA). I take 600mg twice a day with food.
It’s available most places that sell vitamins etc including Amazon, and Walmart. I don’t get any side effects from it at all.

Blessings

I have damage to my maxillary sinus that eroded the bone and exposed my intra- orbital nerve to the sinus and have nerve on bone contact. It also affects my eye. I have done 3 sinus surgeries and 7 neurosurgeries with little relief. I finally after 3 years of begging was prescribed a 4% lidocaine nasal spray and it is a big deal. If there is any interaction with the sinus it might help. I’m not pain free but if I catch flares early I can keep them
From escalating. I got mine from a compound pharmacy but Bayview pharmaceutical makes it and can ship or will give you a pharmacy that can compound for you. Good luck

Have you considered RFA? Here is what a Google search provided.

Yes, you can burn certain cranial nerves to stop severe chronic pain. This medical procedure is officially known as radiofrequency ablation (RFA) or thermal rhizotomy. Instead of using an open flame, a specialist inserts a tiny, hollow needle guided by real-time imaging and applies a controlled electrical current to heat and destroy a specific section of the nerve. This stops the nerve from sending pain signals to your brain.While you cannot burn just any cranial nerve—as many control vital functions like vision, eye movement, and facial muscles—this technique is highly effective for specific conditions:Primary Conditions TreatedTrigeminal Neuralgia: This is the most common use of RFA on a cranial nerve. The trigeminal nerve (Cranial Nerve V) carries sensation from your face to your brain. When it misfires, it causes agonizing, shock-like facial pain. Ablating a portion of this nerve near the base of the skull provides immediate, substantial relief for patients who do not respond well to medications.Glossopharyngeal Neuralgia: Less common than trigeminal neuralgia, RFA can target Cranial Nerve IX to stop severe pain radiating deep within the throat, back of the tongue, and ear.Pros and Cons of Cranial Nerve AblationBecause cranial nerves sit directly at the base of the brain and skull, weighing the balance of this treatment requires careful thought:ProsCons & RisksRapid Relief: Many patients experience up to 95% pain reduction almost immediately after the procedure.Facial Numbness: Intentionally damaging the sensory nerve means you will likely experience a loss of sensation or persistent numbness in parts of your face.Minimally Invasive: It is an outpatient procedure done under local anesthesia with light sedation, avoiding open brain surgery.Corneal Numbness: If the ablation affects the upper branch of the trigeminal nerve, it can deaden the eye's protective blink reflex, risking severe corneal ulcers.Repeatable: If the nerve slowly regenerates over several months or years and the pain returns, the procedure can safely be performed again.Muscle Weakness: High heat can accidentally spread to motor fibers, temporarily weakening your jaw or chewing muscles.If you are exploring this option, you will want to consult a neurosurgeon or an interventional pain specialist. They typically evaluate your response to nerve-blocking medications first to ensure they are targeting the exact right path before proceeding to thermal ablation.To help provide more specific information, are you researching this for yourself or a loved one? Knowing the exact location of the pain (e.g., jaw, cheek, forehead) or a diagnosed condition would help narrow down the most relevant treatment options.