At Mayo Clinic, do pathologists always check IDC, report it if found?

Posted by benzo @benzo, Aug 20 10:06am

I got back biopsy report show "large cribriform" but not others, like IDC (Intraductal carcinoma of the prostate (IDC-P)). Since "large cribriform" has strong connection with IDC, I am wondering if the IDC is not omitted in the report or not checked at all at Mayo.

Anyone has knowledge on this?
Thanks

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@benzo, this is a question best asked on your Mayo patient portal account. It may not be the same for everyone. Do you have the patient portal set up?

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My post surgery report just started "cribriform: present"

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It is possible to have large cribriform Without intraductal. I am pretty sure they would’ve included it if it had been found.

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Profile picture for Colleen Young, Connect Director @colleenyoung

@benzo, this is a question best asked on your Mayo patient portal account. It may not be the same for everyone. Do you have the patient portal set up?

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@colleenyoung yes, I sent a message already. But the person is out of office

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No - they do not always come together at all.
I am pretty sure that Mayo has very good pathology lab .

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My post surgery said cribriform: present, but no IDC identified. Which they had said how large the cribriform was, just said present. I may still get that answer, going to get appointment soon with pathologist.
Sometimes wonder if I shouldn't get prostate sent to a place like mayo for testing, doubt Medicare would pay for that second opinion.

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Profile picture for diverjer @diverjer

My post surgery said cribriform: present, but no IDC identified. Which they had said how large the cribriform was, just said present. I may still get that answer, going to get appointment soon with pathologist.
Sometimes wonder if I shouldn't get prostate sent to a place like mayo for testing, doubt Medicare would pay for that second opinion.

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@diverjer my post surgery pathology stated the same as yours and that was a Mayo.

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As a recent graduate of the RALP program At Mayo Rochester I can share that if you have both IDC and Large Crib as I do, it would be listed in your post surgical interpretation as follows:

Intraductal Carcinoma (IDC): Present, incorporated into the Gleason grade
Large Cribriform Glands: Present

Not sure if all of the Mayo Facilities report identically. My experience in the last few months is that nothing is standardized in the PC world and you should get second and third opinion on everything.
Send your slides to Epstein at https://advanceduropathology.com

Hope that helps.

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Profile picture for byelliq6 @byelliq6

As a recent graduate of the RALP program At Mayo Rochester I can share that if you have both IDC and Large Crib as I do, it would be listed in your post surgical interpretation as follows:

Intraductal Carcinoma (IDC): Present, incorporated into the Gleason grade
Large Cribriform Glands: Present

Not sure if all of the Mayo Facilities report identically. My experience in the last few months is that nothing is standardized in the PC world and you should get second and third opinion on everything.
Send your slides to Epstein at https://advanceduropathology.com

Hope that helps.

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@byelliq6 I contacted Mayo and the pathologist said that when he saw cribriform, he did not complete the rest on idc stain. He said the cribriform gives enough of pathologic significance. I requested to finish it all, but I did not hear back yet. It is concerning.

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This was summery of my biopsy report:

Summary of additional features:
Perineural invasion: absent
Cribriform pattern 4: present
Intraductal prostatic adenocarcinoma: absent

When I asked the "chief" pathologist at Univ of Penn who did 2nd opinion of my biopsy slides about cribriform on original report this was her reply: In summary, the presence of cribriform pattern is documented in all cancers that have pattern 4.

I didn't know to ask about large or small cribriform because I never heard about it until months later when Jeff started to mention large or small cribriform on this forum.

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