Asthma like symptoms after engine fume inhalation

Posted by acid2come @acid2come, Mon, Jan 13 9:51am

Hello everyone, I can’t get any help or information! I’ve been to primary doc, pulmonologist, ERS, and Gastroenterologist..So I’m sorry in advance for the long story..but this is how it’s went so far.. in August I helped my husband work on a high performance motor in our shop.. It was over heating so it was a lot of starting it and letting it run until over heating (work on it) then start it up again and let it run until it over heated again.. thus went on for about 7-8 hrs.. shop doors were open..it was about 100 degrees we also had fans going..but the fumes were bad..I started coughing that night and felt bad the next week. Thought it was the flu…the nx wkend it was still over heating so we wrapped the headers with fiberglass. I still didn’t fell good.. but I helped anyway.. it was a 7-8 hr job also..my cough got worse, had muscle fatigue..but now I cldnt talk or drink anything with out coughing..I couldn’t Stand the taste of soft drinks it burned my mouth..or if it was cold it made me cough..with coughing come no air.. I cld breath in but couldn’t breathe out… my oxygen level is good so I get no help from doctors..had s lung function test it showed restricted air way..plus my GURD started back up.. had a EGD doc said from throat down to stomach is not bleeding but very red and inflamed..I’ve had a Nissan fundo surgery about 10yrs ago wasn’t hvin any trouble with acid.. until all of this…never had any breathing trouble..until all of this.. I hv a nebulizer but it doesn’t seem to help..
Any suggestions or help I would appreciate it very much..
My life has been put on hold
My profile is (Acid2come)

@becsbuddy

@acid2come
I think I have to agree with @lioness and @merpreb . You really need to see a second doctor. It’s been a couple of months since your problem started! I’m glad that the fungus is being treated, but has anyone discussed where you might have gotten it from?
You’ve been a great advocate for yourself; just wish the doctors were working as hard. I keep thinking about you and hope you’re getting better.

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Thank you so much for taking the time to listen to me..this type of fungus grows outdoors and indoors.. I have read that it s very uncommon for it to be on vocal cords..but the doctor removed it from r lung and vocal cords..I don’t think the new doc
i seen last week believed me..but I mean I can hardly talk because my voice is weak.. and I told him that.. plus he had already done the scope and showed me how bad my throat and stuff is swollen and inflamed..
I’ve already called a different doctor I’m not going back to him.. I can’t get in for 2weeks..I’ve been upset worrying about it. I can’t sleep bed or recliner the acid is so bad it’s coming up in my sinus.. it feels like it’s eating my face off..the burn in my chest is almost unbearable.. I’m taking 2 omeprazole 40mg plus a Zantac, rolaids.. But if I bend over acid instantly comes up into my mouth.. my Nissan is not working right, but doctors don’t believe me…
I’m going to get all records then it’s not me telling them, that’s what it is…sorry every time I just go on and on.. but it’s been 7months…a lot of appointments and me telling the same story.. trying to make doctor believe me..or begging…

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@merpreb

@acid2come– Wasn't all of your present meds in your chart? How could he not know what medicines that you are taking?

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Yes. The nurse was putting all information in I gv her my list of old meds and then new meds.. but when the doc come n room it seemed like he already had his mind made up as to what is was going to do for me.. he was actually walking out the door and I said hold on I hv a nothing question for you.. he said I don’t take care of that and walked away

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@acid2come– When he acted like this and closed that door he shut you out. Have you begun to look for another doctor?

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@acid2come

Yes. The nurse was putting all information in I gv her my list of old meds and then new meds.. but when the doc come n room it seemed like he already had his mind made up as to what is was going to do for me.. he was actually walking out the door and I said hold on I hv a nothing question for you.. he said I don’t take care of that and walked away

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@acid2come Have you called a infectious Dr. I cant believe that Dr did this to you. Look for an infectious Dr you need a specialist not just a G.P Till you get to Dr. lemon juice is alkaline and will counter the acid . Research it on the internet you should find some things that can help get rid of the acid . I for myself like baking soda in warm water and lemon juice you can drink this it wont hurt you this is what has helped me lemon juice is like apple cider vinegar that you drink for weight lose . Research . You should find a specialist who can help a infectious Dr .

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@lioness

@acid2come Have you called a infectious Dr. I cant believe that Dr did this to you. Look for an infectious Dr you need a specialist not just a G.P Till you get to Dr. lemon juice is alkaline and will counter the acid . Research it on the internet you should find some things that can help get rid of the acid . I for myself like baking soda in warm water and lemon juice you can drink this it wont hurt you this is what has helped me lemon juice is like apple cider vinegar that you drink for weight lose . Research . You should find a specialist who can help a infectious Dr .

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Ok thank you,, I will definitely try backing soda and lemon.. The acid is so bad I’m scared to eat anything..It’s so bad if I bend over it instantly comes up..It’s constantly in my throat and mouth..I’ve never had it like this..I’m going to research for a doctor now..
Thank you
Very much

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@acid2come

Ok thank you,, I will definitely try backing soda and lemon.. The acid is so bad I’m scared to eat anything..It’s so bad if I bend over it instantly comes up..It’s constantly in my throat and mouth..I’ve never had it like this..I’m going to research for a doctor now..
Thank you
Very much

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I feel lost, I found a infectious doctor about 2 hrs from me which I will call Monday for app..
But I don’t know where to start with them.. I think I over whelm them..I mean all of this started in July.. It’s took me 7 months to finally figure out I hv a fungus in lungs and vocal cords.. I’ve tried to tell them (within about 3-4 weeks) I fell VERY hard on my stomach rib cage..then the fumes, and fiberglass..that’s when I started coughing uncontrollably and acid started coming up and at the same time my air shut off..
I think when I fell it moved my Nissan fundoliption.. I wasn’t hvin any trouble before
with acid.. I had 9-10yrs without any acid
I guess I’m asking how do I approach them with all of the above??

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@acid2come

I feel lost, I found a infectious doctor about 2 hrs from me which I will call Monday for app..
But I don’t know where to start with them.. I think I over whelm them..I mean all of this started in July.. It’s took me 7 months to finally figure out I hv a fungus in lungs and vocal cords.. I’ve tried to tell them (within about 3-4 weeks) I fell VERY hard on my stomach rib cage..then the fumes, and fiberglass..that’s when I started coughing uncontrollably and acid started coming up and at the same time my air shut off..
I think when I fell it moved my Nissan fundoliption.. I wasn’t hvin any trouble before
with acid.. I had 9-10yrs without any acid
I guess I’m asking how do I approach them with all of the above??

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@acid2come With a new Dr Im glad you found a infectious Dr to go to . In the mean time . make a list of all your conditions from when this all started . Write down also any questions you might have for the Dr. Usually the nurse comes in first give her the list of your conditions so he can have it before he sees you. Tell him about the Nissan fundoliption also . Make sure you tell him all about the fumes. The medications you are on . Maybe others will have more information here for you but this is all I can think of for now.

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@lioness

@acid2come With a new Dr Im glad you found a infectious Dr to go to . In the mean time . make a list of all your conditions from when this all started . Write down also any questions you might have for the Dr. Usually the nurse comes in first give her the list of your conditions so he can have it before he sees you. Tell him about the Nissan fundoliption also . Make sure you tell him all about the fumes. The medications you are on . Maybe others will have more information here for you but this is all I can think of for now.

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Thank you ☺️

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@merpreb

@acid2come– Wasn't all of your present meds in your chart? How could he not know what medicines that you are taking?

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I don’t know how he didn’t know because I gave the nurse a list of all meds.. plus we went over all of them..my answer is he didn’t take time to look or just didn’t care..I wld like a answer myself

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@acid2come

I feel lost, I found a infectious doctor about 2 hrs from me which I will call Monday for app..
But I don’t know where to start with them.. I think I over whelm them..I mean all of this started in July.. It’s took me 7 months to finally figure out I hv a fungus in lungs and vocal cords.. I’ve tried to tell them (within about 3-4 weeks) I fell VERY hard on my stomach rib cage..then the fumes, and fiberglass..that’s when I started coughing uncontrollably and acid started coming up and at the same time my air shut off..
I think when I fell it moved my Nissan fundoliption.. I wasn’t hvin any trouble before
with acid.. I had 9-10yrs without any acid
I guess I’m asking how do I approach them with all of the above??

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@acid2come– After so many months and doctor's visits that weren't satisfying I don't blame you for feeling lost. My answer to you is much like @lioness' answer. One foot at a time. Jot down your medical history and this story, including all tests and appointments. Get ahold of your results so that you can bring them with you. Make a list starting from your symptoms and what they feel like. Have you found a new doctor?

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@merpreb

@acid2come– After so many months and doctor's visits that weren't satisfying I don't blame you for feeling lost. My answer to you is much like @lioness' answer. One foot at a time. Jot down your medical history and this story, including all tests and appointments. Get ahold of your results so that you can bring them with you. Make a list starting from your symptoms and what they feel like. Have you found a new doctor?

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Yes, It just so much to tell, and doctors hv so little time..I understand we’re they are coming from..wish we as individuals that don’t fit the normal medical book wld get the same consideration..I hv struggled for 7months to breath..over all the docs ERS I’ve been to basically said, I was making it up..If I was making it up I wld hv give it up a long time ago it takes up way to much of my time and money..
I really do appreciate your time..finding this support has helped me a lot..

REPLY

@acid2come– You will need to find out from your insurance company what you need to do before you set up an appointment- do you need a referral? The find your new doctor and set up an appointment. They will probably have you sign release forms so that all of your tests, images, treatments and doctor's notes will be sent before you see him/her. Make lists of what you want to know, the most important question first and a list of other concerns. But you need to sit down and do these things and I think that you will feel more in control!

Please look at these conversations to help you get started
https://connect.mayoclinic.org/discussion/your-tips-on-how-to-get-off-to-the-best-start-with-a-new-specialist/?pg=1#comment-240813

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@acid2come

Hello, first I would like to say thank you very much.. Sometimes I feel like I’m crazy.. so I try to ignore everything that’s going on.. But then my air shouts off and I know I can’t give up..but the medical professionals that I have seen some of them think(well I’m not sure what they think)One pulmonologist that I seen turned and ask my husband how does she usually act.. my husband said just fine when she can breath… this incident has even impacted my throat down into the esophagus..
My vocal cords, my voice, I’ve even got pain under right breast (but I’ve had gallbladder surgery a long time ago) so it can’t be gallbladder hurting) The biggest question I usually get is.. are you under a lot of stress..yes I am, but know more than usual..
I had a EGD last week with biopsy but no results yet.. I think my GI focus leaning towards (barrettes esophagus)(eosinophils asthma) but so far all asthma meds I’ve tried either makes it worse..or just makes me feel sick.. some have even caused blisters on tung.. But if I talk or drink something cold it makes me cough..coughing makes it feel like something swells up and that makes my breathing worse..my oxygen is good… but it’s so hard to push my air out…my cough sounds awful.. but they say my lungs are clear..but I’ve started coughing up some whit stuff..
I called to make appointment with pulmonologist but they can’t get me in until March 27… I saw my primary doctor and they are going to see if maybe they can get me in sooner.. primary doc said she would like them to do lung biopsy and flush lungs.. I definitely don’t know anything about that…
Sorry I didn’t mean to go on for ever…
I would love to go to Mayo but I live in Oklahoma… plus I’m afraid they will tell me the same thing.. which is nothing…I don’t want my life to end like this!! But at times I can’t hardly get myself to bed it simply takes to much air..
Then I wonder if I will wake back up or not.
I really do appreciate your time and I’m reading the information you sent..
Thank you very much

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my son in law is going through same thing, use humidifier and and congestion pill coridedin is good

REPLY
@merpreb

@acid2come– You will need to find out from your insurance company what you need to do before you set up an appointment- do you need a referral? The find your new doctor and set up an appointment. They will probably have you sign release forms so that all of your tests, images, treatments and doctor's notes will be sent before you see him/her. Make lists of what you want to know, the most important question first and a list of other concerns. But you need to sit down and do these things and I think that you will feel more in control!

Please look at these conversations to help you get started
https://connect.mayoclinic.org/discussion/your-tips-on-how-to-get-off-to-the-best-start-with-a-new-specialist/?pg=1#comment-240813

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Ok thanks

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@lindagirl

my son in law is going through same thing, use humidifier and and congestion pill coridedin is good

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Will definitely try!! Thank you

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