Asthma and steroids

Posted by km6 @km6, Feb 6 2:37pm

I have asthma, bronchiectasis and possible MAC. I am on Trelegy daily and use nebs, levabuterol and saline daily.
I have recently been on prednisone for 8 weeks. I seem to need it more often in the last few years. I don't wheeze, my 02 is usually 97. Anyone struggle like this?
I feel like I can't go long without the prednisone.

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@km6 Hello, there is a fairly new protocol for treatment of asthma that uses a drug originally approved for COPD. It is twice daily use of Symbicort or its generic equivalent. It was life changing for me, relieving the wheezing and shortness of breath with 2 puffs twice a day. Depending on your insurance it may require prior approval, and your copay may be higher. It has reduced my need for prednisone treatment from 8-10 times per year to only during serious respiratory illness.
Maybe you can ask your doctor about it.

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Hi, @km6 - I used to have to use prednisone for 5 days about 4 times per year when I'd get into a streak of bad coughing spasms I could not break. Coughing is my major asthma symptom. This especially happened when I'd travel, perhaps because of exposure to different allergens. Not sure.

I did not like being on prednisone, as I only slept about 4 hours nightly while on it, and my husband thought it blocked my filter on things I'd say. So, needless to say, he was not a fan of my taking prednisone.

I did find some relief from taking prednisone when I started on a biologic, mepolizumab (Nucala). I don't believe I've needed prednisone for about 1.5 years, which is different for me.

Other Mayo Clinic Connect members who may have some thoughts on needing prednisone include @wsbme74 @liz440 @sweethighland @dstella @bdr @otter2154 @spudmato @wsbme74.

How often do you find you need to take prednisone, km6? Do you notice significant side effects when you are on it?

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Are you clearing your lungs with airway clearance? That will help the mucus buildup from bronchiectasis and MAC.

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Lisa,
Initially I was treated for asthma; I had to use the rescue inhalers, etc.
Prednisone was introduced for Asthma, but i was diagnosed with COP (cognitive Organized Pneumonia),.The prednisone became necessary to control the white cells and granular modulus forming on my lower lobes of my lungs. 10 MGs was my standard for the past seven years; the result was the osteoporosis.
In the las month I have been weaned from 10 to 8, Continuing blood tests have been necessary to watch the CRP (inflammatory levels). I have had signifying spikes up to 40 on the CRP with corresponding dosing of prednisone.
In some emergency situations (internal bleeding) the dosage went to 40MG.
I was on Reclast for four years, and now on Prolia.
My hope is that I can continue to reduce teg level of prednisone.
(I have three compression fractures of my vertebrae).
Best,

John

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@scoop

Are you clearing your lungs with airway clearance? That will help the mucus buildup from bronchiectasis and MAC.

Jump to this post

I try but not able to bring up sputum

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@spudmato

Lisa,
Initially I was treated for asthma; I had to use the rescue inhalers, etc.
Prednisone was introduced for Asthma, but i was diagnosed with COP (cognitive Organized Pneumonia),.The prednisone became necessary to control the white cells and granular modulus forming on my lower lobes of my lungs. 10 MGs was my standard for the past seven years; the result was the osteoporosis.
In the las month I have been weaned from 10 to 8, Continuing blood tests have been necessary to watch the CRP (inflammatory levels). I have had signifying spikes up to 40 on the CRP with corresponding dosing of prednisone.
In some emergency situations (internal bleeding) the dosage went to 40MG.
I was on Reclast for four years, and now on Prolia.
My hope is that I can continue to reduce teg level of prednisone.
(I have three compression fractures of my vertebrae).
Best,

John

Jump to this post

God be with you.

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@sueinmn

@km6 Hello, there is a fairly new protocol for treatment of asthma that uses a drug originally approved for COPD. It is twice daily use of Symbicort or its generic equivalent. It was life changing for me, relieving the wheezing and shortness of breath with 2 puffs twice a day. Depending on your insurance it may require prior approval, and your copay may be higher. It has reduced my need for prednisone treatment from 8-10 times per year to only during serious respiratory illness.
Maybe you can ask your doctor about it.

Jump to this post

Symbicort didn't work for me. And I'm Leary of the side effects
So glad it helped you

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@lisalucier

Hi, @km6 - I used to have to use prednisone for 5 days about 4 times per year when I'd get into a streak of bad coughing spasms I could not break. Coughing is my major asthma symptom. This especially happened when I'd travel, perhaps because of exposure to different allergens. Not sure.

I did not like being on prednisone, as I only slept about 4 hours nightly while on it, and my husband thought it blocked my filter on things I'd say. So, needless to say, he was not a fan of my taking prednisone.

I did find some relief from taking prednisone when I started on a biologic, mepolizumab (Nucala). I don't believe I've needed prednisone for about 1.5 years, which is different for me.

Other Mayo Clinic Connect members who may have some thoughts on needing prednisone include @wsbme74 @liz440 @sweethighland @dstella @bdr @otter2154 @spudmato @wsbme74.

How often do you find you need to take prednisone, km6? Do you notice significant side effects when you are on it?

Jump to this post

For several years, I've only needed prednisone two or three times a year, which would be the taper dosage. For the last few months, I've been struggling and needed it for eight weeks straight. I believe the next thing for me is a bronchoscopy. I'm a little overwhelmed right now with all of this.
They have tried me with a few of the biologic's, and we didn't see any difference. The pulmonologist is considering trying a different one.

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@km6

For several years, I've only needed prednisone two or three times a year, which would be the taper dosage. For the last few months, I've been struggling and needed it for eight weeks straight. I believe the next thing for me is a bronchoscopy. I'm a little overwhelmed right now with all of this.
They have tried me with a few of the biologic's, and we didn't see any difference. The pulmonologist is considering trying a different one.

Jump to this post

With the MAC are you seeing a NTM specialist? They are not everywhere but often can be found with a little digging. teaching hospital settings are a good place to look. They can also help with the asthma and more importantly the bronchiectasis.

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@lisalucier

Hi, @km6 - I used to have to use prednisone for 5 days about 4 times per year when I'd get into a streak of bad coughing spasms I could not break. Coughing is my major asthma symptom. This especially happened when I'd travel, perhaps because of exposure to different allergens. Not sure.

I did not like being on prednisone, as I only slept about 4 hours nightly while on it, and my husband thought it blocked my filter on things I'd say. So, needless to say, he was not a fan of my taking prednisone.

I did find some relief from taking prednisone when I started on a biologic, mepolizumab (Nucala). I don't believe I've needed prednisone for about 1.5 years, which is different for me.

Other Mayo Clinic Connect members who may have some thoughts on needing prednisone include @wsbme74 @liz440 @sweethighland @dstella @bdr @otter2154 @spudmato @wsbme74.

How often do you find you need to take prednisone, km6? Do you notice significant side effects when you are on it?

Jump to this post

I have never used nor prescribed prednisone.

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