Are you getting cancer treatments during COVID-19?

Posted by Colleen Young, Connect Director @colleenyoung, Thu, Mar 26 4:46pm

Are you getting cancer treatments at the moment? What about diagnostic tests, like blood tests, CT scans, mammography, PET scans etc? Is your surgery going ahead as planned or postponed?

I’d like to hear from you. What is like being in treatment during the COVID-19 crisis? How are you doing?

@jeanne5009

@fassbinder
So happy for you! Your birthday, Easter and your anniversary will be better just knowing he is ok.
My friend Gary just had the Whipple done yesterday but not at Mayo. He has insurance different from mine.
I hear all good things of the panceatic group up there. Dr. Meredith at Sarasota Memorial is Gary's dr. and he is top notch in the country for Whipple.
So far so good…
It is so hard not being able to be with him. Do they allow you to visit at Mayo?
We g
The pathology report should be in on Monday and the DR. will call me with the report…very nervous about this as they have not confirmed cancer yet.
Prayers for you..stay in touch we have patients in similar situations.
Happy Birthday, Happy Easter and Happy 33rd Anniversary.
Jeanne

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No visitors at Mayo either but we do video calls and I can also listen in to the Docs when they make rounds, as long as John remembers to patch me in. It's hard but I understand it. Getting a lot done at home though, and it's a break from 24/7 care giving, which is fine since I know he is in good hands. I hope you hear good news on the pathology report! Happy Easter 🙂

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@monroeed

My boyfriend is receiving his blood tests and chemo infusion every 2 weeks at Kaiser Santa Clara w/out interruption during Covid 19. He’s had a kidney, spleen and part of his pancreas removed; the current chemo treatments are related to the pancreas. After he completes 3 more rounds of chemo they will be looking at surgery for the nodules on his lungs. I’m grateful that my boyfriend has a wonderful oncology team for his care. Unfortunately, his immune system is very compromised and he relies on me for grocery shopping (we don’t live together) and I work FT in a healthcare clinic. I realize my boyfriend’s situation is critical but the waiting in lines and his complaints about what I’m able to buy at the store are disheartening. Fortunately, I have a therapist I’m able to see 1 x per month, but do have times when I feel overwhelmed. Thank you for this forum where I can air my feelings.

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Your boyfriend is very lucky to have you. I know sometimes I don't show my husband the gratitude he deserves, going to work everyday and now offering to do the grocery shopping as well. I'm still pretty active/independent and like to do things for myself. Is there possibly a friend you might enlist to help with the shopping while you are at work? Then you could take it to him after. Or maybe you could have your boyfriend try to do an online order, like Walmart, and he would see for himself how many items keep coming up "out of stock". If you aren't out to see for yourself, it's hard to imagine how ridiculous things have gotten at the stores. You hang in there, breathe, and just do the best you can. Take care of yourself.

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@finsmom2018

Please go to u tube and see what Pluto ( mini schnauzer has to say about the Virus– it's really funny and it will bring a smile to everyones face. Enjoy. Keep your therapist appointment and stay safe– I know it is difficult in these trying times. God Bless.

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Thanks, finsmom, for the Pluto cutie on utube. I'm sending the link to my grands.

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You are most welcome– I know it certainly brightened my day when it was sent to me!! I'm glad it brightened your day/ or anyone else who saw it. Happy Easter!

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@monroeed

My boyfriend is receiving his blood tests and chemo infusion every 2 weeks at Kaiser Santa Clara w/out interruption during Covid 19. He’s had a kidney, spleen and part of his pancreas removed; the current chemo treatments are related to the pancreas. After he completes 3 more rounds of chemo they will be looking at surgery for the nodules on his lungs. I’m grateful that my boyfriend has a wonderful oncology team for his care. Unfortunately, his immune system is very compromised and he relies on me for grocery shopping (we don’t live together) and I work FT in a healthcare clinic. I realize my boyfriend’s situation is critical but the waiting in lines and his complaints about what I’m able to buy at the store are disheartening. Fortunately, I have a therapist I’m able to see 1 x per month, but do have times when I feel overwhelmed. Thank you for this forum where I can air my feelings.

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You are a wonderful woman taking care of your boyfriend when you did not even live together. What 's about his family? He is lucky to have you and a good oncologist. Why don't you express your feelings to him? If he loves you, he will understand and stop blaming you. If not, just let him know that as just a boyfriend you don't feel obligated to listen to his complaints and if he is not happy he should find someone else. You need to take care of yourself. We have only one life and do not have the right to waste it. Good luck.

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@monroeed

My boyfriend is receiving his blood tests and chemo infusion every 2 weeks at Kaiser Santa Clara w/out interruption during Covid 19. He’s had a kidney, spleen and part of his pancreas removed; the current chemo treatments are related to the pancreas. After he completes 3 more rounds of chemo they will be looking at surgery for the nodules on his lungs. I’m grateful that my boyfriend has a wonderful oncology team for his care. Unfortunately, his immune system is very compromised and he relies on me for grocery shopping (we don’t live together) and I work FT in a healthcare clinic. I realize my boyfriend’s situation is critical but the waiting in lines and his complaints about what I’m able to buy at the store are disheartening. Fortunately, I have a therapist I’m able to see 1 x per month, but do have times when I feel overwhelmed. Thank you for this forum where I can air my feelings.

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@monroeed sounds like things are a bit tough for you now so, please don’t think you have to do everything. Your boyfriend has a long way to go and if you wear out, he’ll be high and dry. I don’t think that what he wants, or you either. I agree with @mom23boys when she said to try Walmart delivery. When you have some time, sit with him and make a list of every possible thing you can think of. Put the list on the refrigerator and he can mark things that run out. Then, get on line and put in an order with Walmart (or whatever grocery you shop at). Will you try this?

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@becsbuddy

@monroeed sounds like things are a bit tough for you now so, please don’t think you have to do everything. Your boyfriend has a long way to go and if you wear out, he’ll be high and dry. I don’t think that what he wants, or you either. I agree with @mom23boys when she said to try Walmart delivery. When you have some time, sit with him and make a list of every possible thing you can think of. Put the list on the refrigerator and he can mark things that run out. Then, get on line and put in an order with Walmart (or whatever grocery you shop at). Will you try this?

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Thank you, Ginger for your appreciation. You know what suffering multiple health issues meant. But you learned how to enjoy life and beautify your surrounding. You are very special. God bless you.

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@colleenyoung

I'm relieved to hear that most cancer procedures, testing and treatments are going ahead as planned or with some accommodations. As @pameladstone said, "cancer is not going to wait for the virus to pass."

Several of you mentioned tele-visits and phone follow-ups. Do they make you feel comforted that you don't have to travel to the hospital for care or concerned whether they will be sufficient or thorough enough?

For those of you who have had some procedures postponed, what concerns might you have?

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My concern is about precautions, not about postponement. I check in with Mayo's hematology doc twice a year for guidance. But my chemo treatments are done locally, a three hour drive from Mayo. I get infusions for 7 days on, then 21 days off. Those 7 days are frightening.

My local oncologist has a very loose disinfecting program. People go in and out the door, touching on door handles, the door, the door jamb – then they fail to use hand sanitizer, even though there is hand sanitizer in sight. There's no one watching to make sure they sanitize. The front desk lady – when she has a chance every hour or so – sprays and wipes door handles and the countertop at the window to her desk. With the same cloth she keeps laid on top of the spray bottle between wipedowns. There are no signs or notices to tell patients and caregivers exactly how to conduct themselves to help prevent virus spread. Nothing.

No one sanitizes the chair arms or the toilet rooms. Patients and caregivers sit in the waiting room, sometimes pull their masks down for comfort; no one is making sure they wear them properly or keep them on. Caregivers are not allowed into the infusion room where I'm told sanitizing takes place between patients; but seeing how the waiting room is handled, I have doubts about the procedure.

I am frustrated. I wear a mask, a shield, disinfectant wipes on my hands, a bottle of disinfectant spray in my pocket which I use every time I touch something with my wipe-covered hand. I spray my shoes after leaving, before I get into my car.

Imagine what would happen if I told the doctor all he's failing to do to prevent COVID-19 virus spread. I'd never have a decent relationship with him again, no matter how nicely I present this.

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@5qdeletion

My concern is about precautions, not about postponement. I check in with Mayo's hematology doc twice a year for guidance. But my chemo treatments are done locally, a three hour drive from Mayo. I get infusions for 7 days on, then 21 days off. Those 7 days are frightening.

My local oncologist has a very loose disinfecting program. People go in and out the door, touching on door handles, the door, the door jamb – then they fail to use hand sanitizer, even though there is hand sanitizer in sight. There's no one watching to make sure they sanitize. The front desk lady – when she has a chance every hour or so – sprays and wipes door handles and the countertop at the window to her desk. With the same cloth she keeps laid on top of the spray bottle between wipedowns. There are no signs or notices to tell patients and caregivers exactly how to conduct themselves to help prevent virus spread. Nothing.

No one sanitizes the chair arms or the toilet rooms. Patients and caregivers sit in the waiting room, sometimes pull their masks down for comfort; no one is making sure they wear them properly or keep them on. Caregivers are not allowed into the infusion room where I'm told sanitizing takes place between patients; but seeing how the waiting room is handled, I have doubts about the procedure.

I am frustrated. I wear a mask, a shield, disinfectant wipes on my hands, a bottle of disinfectant spray in my pocket which I use every time I touch something with my wipe-covered hand. I spray my shoes after leaving, before I get into my car.

Imagine what would happen if I told the doctor all he's failing to do to prevent COVID-19 virus spread. I'd never have a decent relationship with him again, no matter how nicely I present this.

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@5qdeletion i am so sorry that you’re feeling uncomfortable when you see the oncologist. Have you asked to speak to someone in the office to express your concerns? I’m sure many of the others feel the same as you. Please try to bring it up with the doctor and/or the office manager. Let me know what they say. Becky

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@mom24boys Just wondering how you’ve been doing. Are you getting your doctor visits OK? I read where you said that your 1year checkup wasn’t good—how are you coping with that and isolation? Becky

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I'm concerned about your local oncologist as well. This does not sound like good health care practices during COVID to me. I definitely would speak to someone in the office be it there office manager/ or the oncologist him/herself. My family Doctor even called me not to attend any of my lab appointments until further notice. My oncologist is going to do a telephone interview at the end of the month rather than having me go to the cancer clinic.– this is all fine with me as I have very low immune system. Glad you are taking all the precautions even if they aren't. Stay safe.

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@5qdeletion

My concern is about precautions, not about postponement. I check in with Mayo's hematology doc twice a year for guidance. But my chemo treatments are done locally, a three hour drive from Mayo. I get infusions for 7 days on, then 21 days off. Those 7 days are frightening.

My local oncologist has a very loose disinfecting program. People go in and out the door, touching on door handles, the door, the door jamb – then they fail to use hand sanitizer, even though there is hand sanitizer in sight. There's no one watching to make sure they sanitize. The front desk lady – when she has a chance every hour or so – sprays and wipes door handles and the countertop at the window to her desk. With the same cloth she keeps laid on top of the spray bottle between wipedowns. There are no signs or notices to tell patients and caregivers exactly how to conduct themselves to help prevent virus spread. Nothing.

No one sanitizes the chair arms or the toilet rooms. Patients and caregivers sit in the waiting room, sometimes pull their masks down for comfort; no one is making sure they wear them properly or keep them on. Caregivers are not allowed into the infusion room where I'm told sanitizing takes place between patients; but seeing how the waiting room is handled, I have doubts about the procedure.

I am frustrated. I wear a mask, a shield, disinfectant wipes on my hands, a bottle of disinfectant spray in my pocket which I use every time I touch something with my wipe-covered hand. I spray my shoes after leaving, before I get into my car.

Imagine what would happen if I told the doctor all he's failing to do to prevent COVID-19 virus spread. I'd never have a decent relationship with him again, no matter how nicely I present this.

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@5qdeletio- Good morning. This situation is very bothersome. I agree with both Becky and @fismom2018 that you might want to talk to the office manager about this. I'm sure that they are aware of what they aren't doing. I'm wondering if you should contact the doctor who recommended him and talk with her about this and see what she says. How long have you been in treatments with this particular oncologist?

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@5qdeletion when is your next 7 day cycle of chemo?

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