Are you getting cancer treatments during COVID-19?

Are you getting cancer treatments at the moment? What about diagnostic tests, like blood tests, CT scans, mammography, PET scans etc? Is your surgery going ahead as planned or postponed?

I’d like to hear from you. What is like being in treatment during the COVID-19 crisis? How are you doing?

@merpreb

@seaspray– Hi. I'm glad that your CT scan and infusion went smoothly. I hope that in 3 weeks you will be well and able to go back for more! After a day like yours, I'm done in the next couple of days. I travel by train 1 hr both ways. Does this tucker you out?

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@merpreb – I did not have a scan yesterday but yes the infusion went smoothly. I am very fortunate to have NO side effects from my infusion. I came home, walked the dog a mile and made dinner!

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I'm going to write here about our good friend who has Cholangiocarcinoma and has been treated at UC San Francisco and Mayo. He needs frequent (every 5 weeks) stent replacements with ERCP and UC San Francisco has been slow to schedule. He will be going to Mayo in Rochester next week for this which he and we hope will be one of the last ERCP before his liver transplant. He is on the transplant list at Mayo. Mayo has not cancelled or delayed any treatments for him. I am frightened for him because he must travel to Mayo in Rochester. But, quite honestly, the alternative of no travel, thus no treatment is worse. We are encouraged by Mayo's responsiveness to him.

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@colleenyoung Treatment during this COVD19 has continued with regular appointments of blood draws, oncology office visits, and CT scans. However, Mayo Clinic in Rochester was eerily empty in comparison to a normal visit. My oncologist let me know I may not see him but another oncologist on staff when I come for treatment next month. Mayo is dividing the staff and doctors into teams and rotating work schedules so it is less likely that an entire specialty field becomes infected. Clinical trials are on hold too which worries me regarding possibly limiting options when I need a treatment change – surgery, radiation, etc. likely in May. 3 out of 4 of my last scans showed progression and if it continues in May, I ve been told we have to consider another treatment. I'm on my 3rd, 4th tier of treatment – surgeries, radiation, hormone therapies, new immunotherapies, etc. and my list of options continue to grow smaller.

However, one of the hardest things for me is deciding to travel from out of state at this time and risk exposure and the extra stress that comes from likely a treatment change in the midst of this! I have a rare cancer that cannot easily be treated or decisions made locally with a very complicated medical history. I have several high risk factors for COVD19. My anxiety over the cancer has ramped up even further with COVD19. Because of complications, I don't see any relief in site for complicated risky travel, treatment options and systems being complicated, possibly limited treatment in priority or focus, and living the future in hiding until we come up with treatments and a vaccine for COVD19.

If you're diagnosed or in treatment now, I feel it's a very difficult time on top of all the hurts that come with cancer. Don't be afraid to ask someone for help or just talk. I've been guilty of this. Everyone is coping with their own fears of COVD19 so I find myself not wanting to bother anyone. But find that someone who can listen, we're not alone in this. ❤

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@naturegirl5

I'm going to write here about our good friend who has Cholangiocarcinoma and has been treated at UC San Francisco and Mayo. He needs frequent (every 5 weeks) stent replacements with ERCP and UC San Francisco has been slow to schedule. He will be going to Mayo in Rochester next week for this which he and we hope will be one of the last ERCP before his liver transplant. He is on the transplant list at Mayo. Mayo has not cancelled or delayed any treatments for him. I am frightened for him because he must travel to Mayo in Rochester. But, quite honestly, the alternative of no travel, thus no treatment is worse. We are encouraged by Mayo's responsiveness to him.

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I was diagnosed with CC 3 years ago. Your status is familiar to mine as I didn't have a match so we had to wait for a deceased donor and was transplanted in June of 2018. Thruout this journey I had 12 ERCPS and I know what you are and will be going thru. You will be taken care by the elite in healthcare. I offer you much hope and strength as you navigate this critical challenge. God Bless you, Happy Easter..

Liked by moonlightlady

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@leannn

@colleenyoung Treatment during this COVD19 has continued with regular appointments of blood draws, oncology office visits, and CT scans. However, Mayo Clinic in Rochester was eerily empty in comparison to a normal visit. My oncologist let me know I may not see him but another oncologist on staff when I come for treatment next month. Mayo is dividing the staff and doctors into teams and rotating work schedules so it is less likely that an entire specialty field becomes infected. Clinical trials are on hold too which worries me regarding possibly limiting options when I need a treatment change – surgery, radiation, etc. likely in May. 3 out of 4 of my last scans showed progression and if it continues in May, I ve been told we have to consider another treatment. I'm on my 3rd, 4th tier of treatment – surgeries, radiation, hormone therapies, new immunotherapies, etc. and my list of options continue to grow smaller.

However, one of the hardest things for me is deciding to travel from out of state at this time and risk exposure and the extra stress that comes from likely a treatment change in the midst of this! I have a rare cancer that cannot easily be treated or decisions made locally with a very complicated medical history. I have several high risk factors for COVD19. My anxiety over the cancer has ramped up even further with COVD19. Because of complications, I don't see any relief in site for complicated risky travel, treatment options and systems being complicated, possibly limited treatment in priority or focus, and living the future in hiding until we come up with treatments and a vaccine for COVD19.

If you're diagnosed or in treatment now, I feel it's a very difficult time on top of all the hurts that come with cancer. Don't be afraid to ask someone for help or just talk. I've been guilty of this. Everyone is coping with their own fears of COVD19 so I find myself not wanting to bother anyone. But find that someone who can listen, we're not alone in this. ❤

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@leannn You have so much to be concerned about, and you're right, Mayo Connect is a great place to come and vent. We are all on our health journeys, and who else can comprehend our hesitations and worries, than fellow patients?! Drop by at any time and let us know how we can help you, even having a virtual shoulder to lean on. You're not alone, here.
Ginger

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I agree with Ginger's reply. We are here and ready to listen.

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Well, to share some good news, my husband's Whipple procedure on Wednesday was a success in spite of some complications once underway. Dr. Truty and his team are truly skilled surgeons who care – I feel they are just amazing. John is doing well and may even come home by this coming Wednesday, just one week later, cancer-free after a treatment program we began last June (diagnosis was in May, symptoms had begun in Feb/March). I know we are very lucky that he responded so well to chemo and radiation and that he was able to be scheduled for this procedure amid the virus crisis. Although we are apart for our wedding anniversary (33 years today), Easter, and my birthday (this Monday), I feel like we've been given the greatest gift of all. He had so many people praying for him – I know that had a lot to do with this outcome as well. Thank you everyone, God Bless you on your journeys.

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@fassbinder

Well, to share some good news, my husband's Whipple procedure on Wednesday was a success in spite of some complications once underway. Dr. Truty and his team are truly skilled surgeons who care – I feel they are just amazing. John is doing well and may even come home by this coming Wednesday, just one week later, cancer-free after a treatment program we began last June (diagnosis was in May, symptoms had begun in Feb/March). I know we are very lucky that he responded so well to chemo and radiation and that he was able to be scheduled for this procedure amid the virus crisis. Although we are apart for our wedding anniversary (33 years today), Easter, and my birthday (this Monday), I feel like we've been given the greatest gift of all. He had so many people praying for him – I know that had a lot to do with this outcome as well. Thank you everyone, God Bless you on your journeys.

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@fassbinder How great to hear! Please keep us informed how things go for you both. Congratulations on your anniversary, and here's to many more! Happy birthday [early]!
Ginger

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@gingerw

@leannn You have so much to be concerned about, and you're right, Mayo Connect is a great place to come and vent. We are all on our health journeys, and who else can comprehend our hesitations and worries, than fellow patients?! Drop by at any time and let us know how we can help you, even having a virtual shoulder to lean on. You're not alone, here.
Ginger

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I think this is a wonderful site that provides information, comfort to many, encouragement and yes, maybe a place to vent!

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@gingerw

@leannn You have so much to be concerned about, and you're right, Mayo Connect is a great place to come and vent. We are all on our health journeys, and who else can comprehend our hesitations and worries, than fellow patients?! Drop by at any time and let us know how we can help you, even having a virtual shoulder to lean on. You're not alone, here.
Ginger

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@gingerw @colleenyoung @harriethodgson1 Thank you, I certainly have found that to be true. It's good to have the perspective and support.

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@fassbinder

Well, to share some good news, my husband's Whipple procedure on Wednesday was a success in spite of some complications once underway. Dr. Truty and his team are truly skilled surgeons who care – I feel they are just amazing. John is doing well and may even come home by this coming Wednesday, just one week later, cancer-free after a treatment program we began last June (diagnosis was in May, symptoms had begun in Feb/March). I know we are very lucky that he responded so well to chemo and radiation and that he was able to be scheduled for this procedure amid the virus crisis. Although we are apart for our wedding anniversary (33 years today), Easter, and my birthday (this Monday), I feel like we've been given the greatest gift of all. He had so many people praying for him – I know that had a lot to do with this outcome as well. Thank you everyone, God Bless you on your journeys.

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@fassbinder Congratulation to your husband on his Whipple procedure . So happy for him and you . Congratulations on your anniversary I hope you have Skype so you can see each other or facetime . Great news and God is good . Happy Easter

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My boyfriend is receiving his blood tests and chemo infusion every 2 weeks at Kaiser Santa Clara w/out interruption during Covid 19. He’s had a kidney, spleen and part of his pancreas removed; the current chemo treatments are related to the pancreas. After he completes 3 more rounds of chemo they will be looking at surgery for the nodules on his lungs. I’m grateful that my boyfriend has a wonderful oncology team for his care. Unfortunately, his immune system is very compromised and he relies on me for grocery shopping (we don’t live together) and I work FT in a healthcare clinic. I realize my boyfriend’s situation is critical but the waiting in lines and his complaints about what I’m able to buy at the store are disheartening. Fortunately, I have a therapist I’m able to see 1 x per month, but do have times when I feel overwhelmed. Thank you for this forum where I can air my feelings.

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Please go to u tube and see what Pluto ( mini schnauzer has to say about the Virus– it's really funny and it will bring a smile to everyones face. Enjoy. Keep your therapist appointment and stay safe– I know it is difficult in these trying times. God Bless.

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@fassbinder

Well, to share some good news, my husband's Whipple procedure on Wednesday was a success in spite of some complications once underway. Dr. Truty and his team are truly skilled surgeons who care – I feel they are just amazing. John is doing well and may even come home by this coming Wednesday, just one week later, cancer-free after a treatment program we began last June (diagnosis was in May, symptoms had begun in Feb/March). I know we are very lucky that he responded so well to chemo and radiation and that he was able to be scheduled for this procedure amid the virus crisis. Although we are apart for our wedding anniversary (33 years today), Easter, and my birthday (this Monday), I feel like we've been given the greatest gift of all. He had so many people praying for him – I know that had a lot to do with this outcome as well. Thank you everyone, God Bless you on your journeys.

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@fassbinder
So happy for you! Your birthday, Easter and your anniversary will be better just knowing he is ok.
My friend Gary just had the Whipple done yesterday but not at Mayo. He has insurance different from mine.
I hear all good things of the panceatic group up there. Dr. Meredith at Sarasota Memorial is Gary's dr. and he is top notch in the country for Whipple.
So far so good…
It is so hard not being able to be with him. Do they allow you to visit at Mayo?
We g
The pathology report should be in on Monday and the DR. will call me with the report…very nervous about this as they have not confirmed cancer yet.
Prayers for you..stay in touch we have patients in similar situations.
Happy Birthday, Happy Easter and Happy 33rd Anniversary.
Jeanne

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@finsmom2018

Please go to u tube and see what Pluto ( mini schnauzer has to say about the Virus– it's really funny and it will bring a smile to everyones face. Enjoy. Keep your therapist appointment and stay safe– I know it is difficult in these trying times. God Bless.

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Thank You !! Humor can never be over-rated ❤️

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