Are there suggestions for living with pure autonmic failure (PAF)?

For 2.5 years I have been experiencing a constellation of symptoms. I am super grateful for the opportunity to visit Mayo Clinic's Neurology Department and to do the requiste tests (sweat test and autnomic reflex screen) needed to diagnos dysautonomias. My doctor suspects that I have the rather rare pure autonomic failure but apparently there is a chance that the problem could be amylodosis. I am doing a syn-one skin biopsy test to learn more. In the meantime, I am very interested in hear from others who have PAF and to learn about symptom management. Thank you.