Anyone been diagnosed with arachnoiditis after spine surgery?

Thank you for the prayers!
Never meant to frighten anyone, only meant to prepare and lower expectations regarding treatments
I can still enjoy life. I have friends, family and grandkids who have taken my cane, , scooter etc as toys. I even give them rides in the scouter haha. t as long as I am having a “decent day.”
There are better days and really bad days
I will be seeing one of ny neurologist in June. If I am due for new treatment I will pist it for sure

PS : meditation is really good for me
You can download the free app
Inside Timer they have free meditation sessions

Thank you so much for your knowledge and support. I wish you good luck. It has been a pleasure meeting you.

Hi Several years ago, I had the same situation. My doctor did the same back surgery. I complained about pain after the surgery but my arrogant doctor kept saying you need time to heal. My story is also long so I will just say that Doctor Arrogant handed me a piece of paper and told me to go see a pain doctor. I asked what the problem was and he told me that the pain doctor would explain. It was arachnoiditis. Went to a neurosurgeon and had a milogram which confirmed diagnose. Since then have been seeing a pain doctor. Had a neurostimulator put in and after many years it is doing absolutely nothing. Pain getting much worse and anxious that my pain doctor will not be increasing my pain meds. I take 1 5 mg oxycodone 2x/day and 1 5 mg methadone 2x/day. I think my pain doctor is hesitant to increase meds and I don't know what to do now. I understand what your going through.

I have arachnoiditis also and I’m on a buprophene patch and it does help. Ask bout this Good luck to you

I have arachnoiditis also and I’m on a buprophene patch and it does help. Ask bout this Good luck to you

Thank you for your post!
What kind of med Is ibuprophene patch?
Thank you in advance !

I was diagnosed with arachnoiditis several years ago. As I have seen in many ofyour group discussions there is nothing other than pain management for my problem. I take 1 10 oxycodone and 1 Methadone 5 megs twice a day. They don't do much but I have no other choices. I must ask the group, do any of you sweat constantly during the day and night. It is so uncomfortable and I have to shower and wash my hair often during the day. I have seen different types of physicians and only one of them its because of my medication. Others have told me its menopause, Im 74. Does anyone have this problem. I would appreciate any advice. Thank you

I believe you mean Buprenorphine patch. I take buprenorphine tablets under the tongue (sublingual) and it helps a little. I would like to try the patches, though. I am waiting until I go on medicare and hopefully they will be cheaper.