Anyone with similar symptoms & test results for abdominal pain?

Posted by edijoke @edijoke, Feb 6, 2020

Hi there,

I was just browsing through the internet randomly and found this discussion page for digestion issues. I've had abdominal pain problems since 2010. Thankfully I managed to get better after 2 years of constant pain and every test done possible. My problems have returned for the past 2 months, albeit, my pain isn't constant and does go away unlike before. My pain is usually a 4/5 out of 10 and can last for a few hours until it subsides. It is usually around the belly button area(mainly above, but sometimes below).

I have done almost every test possible. I've done an ultrasound, CT scan(with contrast), MRI, endoscopy, colonoscopy, endoscopic ultrasound, cystic fibrosis testing, gastric emptying test, etc. Some of those tests done at Mayo Clinic itself in 2010 in Minnesota. All of those tests were normal. The only thing that's ever been shown in my testing, has been a slightly elevated lipase and amylase. It led doctors into thinking I have pancreatitis, but they've looked at my pancreas extensively(especially during the endoscopic ultrasound at Mayo) and the pancreas looks completely normal. I recently went to the ER and did another blood test + CT scan with contrast. The pancreas was again normal(as was everything else), but my lipase was slightly elevated at 150(normal levels being 90 for that hospital).

I went to a GI doctor today and they told me it could be an abdominal migraine, or a potential vascular problem involving the abdomen. They did schedule a HIDA scan(to check the function of the gallbladder), as that is ironically the only test(or one of the only), I have not done. They want to see the results of the HIDA scan before progressing further and they told me to try out some more bentyl for pain(something I took before and didn't notice relief from it).

Most pain medications do not help. Even back in 2010 when my pain was constant and more severe, I tried almost everything possible in terms of medications, but nothing helped. The only relief I get from the pain is from natural remedies. Tea and 1 small teaspoon of apple cider vinegar mixed with some lemon and baking soda(this helps me the most). I don't have acid reflux like I did in 2010. It's mainly the pain now. It can be described as a squeezing pain just above my belly button mainly(sometimes lower). I do tend to also notice relief when I empty during a bowel movement. I empty usually once a day. I don't have any nausea and vomiting. I don't have a loss of appetite either. No fevers as well.

I am wondering if there's anyone out there with similar symptoms with similar test results to me. Every test I've done comes back negative(thankfully) with the only thing showing is slightly elevated lipase and amylase. I am 26 years of age. I have been dealing with anxiety since July of 2019, so I don't know if that may have caused my gut to act up a bit.

I am just really curious if there's anyone out there with a similar situation to mine in terms of symptoms and test results. Please let me know if you've managed to find out a solution to your problem, if there is someone out there.

Thank you for reading.

Thank you for the link. I need to clarify that the pain I have is located on my left side, right below the rib cage. Eating or not eating does not bring it on. It comes out of no where. The area is tender. Severe; brings on cold sweat, anxiety/panic attack, sometimes nausea, sometimes close to throwing up. I find it hard to think. Creates air in my stomach and major belching, which eventually relieves the pain.

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@amyp304

I recently had a CT Angiogram. I also have a Urostomy. CT showed that I have Parastoma hernia with small bowel now present.
I’m currently awaiting Dr Appt with Vanderbilt Digestive Disease Clinic in Nashville TN

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Just posting a small update.. going for 2nd consult with General Surgeon Sept 3 to discuss my options for removal of my Parastomal hernia. It has tripled in size and is now at times blocking urine flow from the stoma 😞. I really haven’t pushed the surgery issue due to Covid 19, but it’s to the point daily life is really hurting all the time and I’m not to pleasant to be around when it comes to eating with family. ( not to mention making mad dash to the potty and sometimes not getting there quick enough and having “accident” is very embarrassing and depressing for me).

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