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Anyone with early anal cancer have partial response at 3 months
Hi.
I have early T2N0 stage anal canal cancer. At my 3 month scan it has appeared to have shrunk from 2.2 centimeters to 1 centimeter and from on the circumference from 9oclock to 12 oclock to 9 to 10 so about 2/3rds. The pet suv went from 5.9 to noted as faint. The radiologist called it as partial response likely residual tumor. I am of course disappointed as with what was deemed a small early tumor I had hoped (and statistically expected) it would have shown complete response. My question is has anyone had this experience and did it go on to complete response. Also did your drs have any input or advice or insight/opinions as to the prognosis? Thanks for any and all input
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I was diagnosed with anal cancer in 2022. My tumor was large and painful to the point where sitting was difficult. After the first week the pain was gone. It was pretty amazing that it started working so quickly. I just completed my yearly surveillance testing and there’s no sign of cancer. My doctors are excellent.
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2 ReactionsMe diagnosticaron cancer en estadio 2, en el año 22 me operaron de una vez, ya tengo 4 años de esto, me han hecho todos los exámenes y desde hace dos años no tengo nada en el cuerpo gracias a Dios, todo ha seguido excelente, la vida es bella y hay que disfrutarla suerte.
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1 ReactionGood that you are getting response…that is s win…I believe through my own experience that it is a good sign…i had a great response-at first, slowish, added another med to the cocktail and then a great response, all in a few months…good luck !
@nycmusic thank you for the encouragement. May I ask was yours an anal cancer? In my case (anal cancer) there is a fairly tight protocol no addition meds or radiation sadly the only next step is radical surgery. If you had additional meds for anal cancer I would be curious about that? Thank you
@apinzonc0627 hello thank you for replying. May I ask did you have anal cancer and if so what prompted you to go straight to surgery? Thank you!
@juliem25 no, it was colon cancer. …At MSK , my friend’s docs are always adjusting, according to response / tests ,and any bad reactions…neither of us had/are having radiation.
@nycmusic thank you for sharing!
I had anal cancer that could not be resolved with surgery because it was wrapped on my spinster muscle. was told at the time that my only option was the negri protocol. It took me a year but I finally found someone to do proton radiation. I started taking chemo, but didn't continue after a week. continued with the proton radiation only. it has been 2 years now and I am still NED. also just had my HPV 16th check and I am clear of that too, which is what the radiologist said would most likely be the case.
@samclembeau hi, did you mean ‘‘sphincter muscle’’ ? Never heard of ‘spinster muscle’.
yes. sent before checking.