Anyone with BMT experience for AL Amyloidosis?

Hi @colorslides25 Welcome to Connect! I remember my transplant doctor telling me it is better to have the transplant during the first remission. So you’re at the perfect stage to go ahead.

From what I’m understanding, the SCT for AL Amyloidosis is an Autologous Stem Cell transplant-using your own cells. That is typically the transplant used for multiple myeloma patients.

I have an informational guide from Mayo Clinic for you that might be helpful. It’s a caregiver guide but it covers the gamut to SCT for patient and caregiver.
I believe it should open to autologous transplant.
Caregiver guide:
https://connect.mayoclinic.org/blog/caregivers-for-bmt-car-t-and-hematology/tab/transplant-journey/#ch-tab-navigation
I’m going to direct you to a discussion posted by @justpeachy a few years ago, who was preparing for an autologous SCT. Start with the first reply. It’s lengthy but contains several links to relevant conversations. If you scroll down towards the bottom of that reply, you’ll see @countrygirlusa…who had an SCT for AL Amyloidosis.
Here’s the link:
One-week pre Autogolous BMT: I'm afraid I'm not prepared
https://connect.mayoclinic.org/discussion/1-week-pre-autogolous-bmt-712/
What have you learned about having the stem cell transplant so far? Do you have any specific questions?

Hello! Countrygirlusa here! It has been a while since I have written anything on this forum. I received my SCT for AL Amyloidosis 3 years ago today, April 15, 2022! I would like to tell anyone who has been diagnosed with Amyloidosis to seek out a COE - Center of Excellence for their care. There can be some "harsh" side effects from a SCT, but for me it was all manageable and I did not need to be hospitalized. Recovery time is different for everyone. It's important to have support during the process and be kind to yourself. As I think back on my SCT, I'm thankful it was offered to me. Life returned to normal after a few months of recovery. Good Luck to anyone considering a SCT.