1. < Thyroid Cancer
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Anyone taking Lenvima (lenvatinib)?

Posted by tonbra32 @tonbra32, Apr 23, 2024

Is anyone taking Lenvatinib? How is it? How is it financially?

Interested in more discussions like this? Go to the Thyroid Cancer Support Group.

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meghansa65 | @meghansa65 | Oct 9, 2025
In reply to @emmanuel1 "Hi, good morning. I have to get some more test done on Wednesday. I also have..." + (show)
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Hi, good morning. I have to get some more test done on Wednesday. I also have to see a kidney specialist. Because I am having some GI issues. I had to be taken off the lenvima because of these issues. After the endocrinologist gets these results, he said he may but me back on lenvima on a smaller dose.

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@emmanuel1 how are you? have you seen a kidney specialist already?

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meghansa65 | @meghansa65 | Oct 8, 2025
In reply to @emmanuel1 "Hi, l am so happy your lung mets are stable. I will be praying it stays..." + (show)
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Hi, l am so happy your lung mets are stable. I will be praying it stays that way. The side effects of lenvima is bad, but the doctors monitors you very closely. I have some good days , and others not as well. But we have to keep holding on and pray for the best. I have been on lenvima for a month and the systems are getting better. Please let me know how the CT scan turns out. I see my doctor on 9/30/ 25 l will keep you posted.

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@emmanuel1 Hei! how are you doing now? I will have my CT tomorrow and I am scared. Er you still taking Lenvima?

.

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meghansa65 | @meghansa65 | Oct 6, 2025
In reply to @emmanuel1 "Hi, good morning. I have to get some more test done on Wednesday. I also have..." + (show)
Profile picture for emmanuel1 @emmanuel1

Hi, good morning. I have to get some more test done on Wednesday. I also have to see a kidney specialist. Because I am having some GI issues. I had to be taken off the lenvima because of these issues. After the endocrinologist gets these results, he said he may but me back on lenvima on a smaller dose.

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@emmanuel1 Hei, i will have my CT on the 9th of october. And we wll be talking with my oncologist 13. of october. As i mentioned earlier, I am scared but you mentioned your markers is in the right direction. good to hear that the result is positiv. I hope mine will be positive, too. How many days/months have you been using Lenvima. Can I ask again what kind of thyroid cancer do you have. Do you have lung mets? What were your symptims of your kidney problem? I hope to hear more from you soon, and thanks for your reply- BEst wishes and prayers for you, too.

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emmanuel1 | @emmanuel1 | Oct 6, 2025

Hi, good morning. I have to get some more test done on Wednesday. I also have to see a kidney specialist. Because I am having some GI issues. I had to be taken off the lenvima because of these issues. After the endocrinologist gets these results, he said he may but me back on lenvima on a smaller dose.

REPLY
2 replies
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meghansa65 | @meghansa65 | Oct 5, 2025
In reply to @emmanuel1 "Hope you feel better soon. I am still struggling with the side effects of Lenvima. Some..." + (show)
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Hope you feel better soon. I am still struggling with the side effects of Lenvima. Some days it is tuff. But pushing through it. I go back to endocrinologist on the 30th of September. I will keep you updated.

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@emmanuel1 god sunday, have you gotten your result?

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emmanuel1 | @emmanuel1 | Oct 3, 2025
In reply to @emmanuel1 "Hi, yes my markers is going in the right direction. I am so very grateful for..." + (show)
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Hi, yes my markers is going in the right direction. I am so very grateful for that. How are you have you started your treatments?

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@emmanuel1 the Lenvatinib is rough, but the results is positive it is worth it to push through it. Everyone body adjust different to medication. Keep holding on.

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emmanuel1 | @emmanuel1 | Oct 3, 2025

Hi, yes my markers is going in the right direction. I am so very grateful for that. How are you have you started your treatments?

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meghansa65 | @meghansa65 | Oct 3, 2025
In reply to @emmanuel1 "Hi, am not sure at the moment. My indo is going to check my markets at..." + (show)
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Hi, am not sure at the moment. My indo is going to check my markets at the end of September. But the gold is to shrink the tumor and my markers to be at normal levels. But l will discuss on my next visit, that is definitely a good question. I did not ask l was so sad that the cancer spread to my lungs and now chemotherapy my mind just went. I will keep you updated.

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@emmanuel1 Hei! How are you and how are you dealing with Lenvima. Is it working?

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meghansa65 | @meghansa65 | Oct 3, 2025
In reply to @meghansa65 "@bfrank hei, how is your husband doing? I hope he is ok. I will have my..." + (show)
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@bfrank hei, how is your husband doing? I hope he is ok. I will have my CT scans on october 9, and as i mentioned earlier I am scared. By the way, when did your husband start taking Lenvatinib?

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@bfrank I read again your reply to me earlier and i found out that he started for 15 months ago.

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meghansa65 | @meghansa65 | Oct 3, 2025
In reply to @bfrank "@meghansa65 my husband falls asleep very quickly, but never sleeps for very long" + (show)
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@meghansa65 my husband falls asleep very quickly, but never sleeps for very long

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@bfrank hei, how is your husband doing? I hope he is ok. I will have my CT scans on october 9, and as i mentioned earlier I am scared. By the way, when did your husband start taking Lenvatinib?

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