Anyone still struggling with urinary incontinence after prostatectomy?

@edinmaryland

I had a RP in early June 2026. I am 99% continent, but must do kegels daily. I notice stress incontinence recurring whenever I slack off. Best wishes to you.

@retireddoc thank you for the book title for helping with continence. I am heading for RARP in 4 months and want to prepare as much as possible so that I can minimize incontinence, improve health and fitness. I do have a choice b/W SBRT without ADT or surgery and after many many months of research have decided on RARP at 68 years old.

I was 68 years old when I had my RP. I did extensive research and was fortunate enough to have numerous colleagues in the field of urologic surgery and radiation oncology to confer with. Obviously, I chose surgery. Multiple reasons but primarily I wanted the cancer out ASAP and wanted to hold in abeyance the option of radiation if I had a local recurrence.

I pretty much recovered full continence around 9 months after surgery but because of a recurrence outside of the pelvis I eventually underwent pelvic radiation. The radiation is what worsened my incontinence.

Another suggestion. I don't know if you are sexually active and if that's important to you. Some men recover erectile function immediately after surgery and some later down the road. Unfortunately, I had total ED after surgery. Many urologists recommend taking 5mg Cialis shortly after surgery to enhance blood flow to the penis. Some also recommend using a vacuum erection device starting 4-6 weeks after surgery if you aren' having nightly erections. It helps stimulate the erectile tissue and keep every healthy.

Good luck to you!

Seconding the use of a pump, even if you don’t plan on using the included tension bands to maintain an erection (of sorts) for sex.

The pump will help with keeping the tissue healthy, it may help disrupt the formation of internal scar tissue (I think), and it helps reduce shrinkage (at least in my case).

My RARP was in January 2025; I have been doing Kegels since then, and was seen by a pelvic floor therapist, and I still have what I consider to be considerable incontinence. Urine discharge during orgasm is another side effect of my surgery that I would love to be rid of. I'm going back to MD Anderson, where my surgery was done, to have some tests done on my bladder and associated parts to see if they can find the cause and possibly a cure. Good luck in your journey.

@ramblinman
We’re in a very similar boat. I had my RALP at the same time, and I do have leakage, and I do have leakage during orgasm.

I had three months of pelvic floor PT with a male incontinence specialist, and that helped, but now I’m back with another therapist (also a specialist in male incontinence) for a refresher.

Just curious…if you’re weighing your pads, do you mind sharing how much you’re leaking? I’m interested in what you’re defining as considerable incontinence.

I’m currently averaging about 55ml a day, which I think is very manageable and little more than minor annoyance, but I’ve read posts here from others who have a fair bit less than that and find it nearly intolerable. I’m curious where you fall, if you don’t mind sharing.

@turtbean thanks for sharing. To be honest I don’t weigh anything. Currently I wear a medium pad and by the end of the day I’m usually dry without experiencing any leakage. But I’m not confident enough to not wear anything. During the day I control what I drink but if I play tennis, or any sport I leak quite a bit, also if I have a mocktail or cocktail in the evening I start to randomly have tiny spurts. Then when exiting the shower and boreparing for bed I still leak randomly until I lie down and I’m dry throughout the night. So I’m not in the worse condition compared to some of these gentleman sharing—I’m discovering that as I read. I just want better.. without having any additional surgery. I never had official PT just did on my own which I’m also discovering that I might be doing the exercises incorrectly. Btw I anal about hygiene so every time I leak I run and wipe down and change my pad hence no opportunity to weigh.

@retireddoc thanks for sharing, I’m discovering we all have different challenges. I’m fortunate to only be dealing with minor inconveniences from incontinence. I have other major health issues that I’m coping with involving major nerve pain and multiple surgeries to fix so I guess I’m want the annoying one to go away. But I’m counting my blessings.

@ramblinman thanks for sharing and wishing you the best on your journey as well. I’m dealing with major spine issues and have been tolerating this annoying side effect since surgery but I’m realizing that I’m pretty fortunate.

@turtbean thanks for sharing. Fortunate I’m only dealing with minor incontinence as I have other major health issues I’m coming with. Wishing you the best.