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Am just trying to find anyone to have a discussion with that is currently or has had the struggle with either of these cancers.
Hello @shaycoe12 and welcome to Mayo Connect
I appreciate your posting about your successful surgery. I am glad to hear that your recovery went so well.
Please feel free to share more about your surgical experience if you are comfortable doing so. Will you need any follow-up treatment?
I look forward to hearing from you.
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Hi Teresa yes I had robotic thymectomy and although it was quite painful for at least six weeks it was successful with little complications I was taking a medication for a while but now my pulmonologist says that he don't think I will have to worry about it coming back my chest has no feeling and itches a lot on the inside because the nerves we're disturbed the doctor said that my feeling should return soon and I take a nerve medication for that. He said that in my case it was better to remove it.
Yes I had my thymus gland removed in April very painful operation but I recovered very well.
Welcome to Connect, @annesgl
We look forward to getting to know more about you. Do you also have thymoma/thymic carcinoma?
I have an enlarged thymus and the Thoracic surgeon recommended that it should be removed. He recommended not having a biopsy prior to the surgery. He is sending me to another surgeon who I see in a couple of days so I'll get a second opinion. I'm mostly concerned about the procedure and am hoping I can have laparoscopic surgery.
Yes I didn't have a biopsy either and he did robotic surgery it was my thoracic surgeon I hope it goes well please keep me posted.
Can you tell me why robotic surgery was chosen. I'm surprised and sorry that you were left in pain. Nerves were disturbed? I'm looking for a speedy recovery.
has anyone tried Xandia? I've been on it since the 18th.
My recovery time was shortened by the robotics the surgery was in April and I'll say within two months I was back on my feet but my nerves are still recovering it's been about 14 weeks. But because I also have an auto immune disease the recovery time for my nerves are longer. Robotic surgery was less invasive I had four incisions three of which are almost completely gone.
Hello all – I just had an 8cm Thymoma surgically removed, 2 weeks ago. The pathology report just came back and said it was Thymoma AB, Stage IIA and suspicious for focally positive margin. It looks like I will need additional treatment so am looking for the best thymoma doctor/oncologist I can find in the mid-Atlantic area (Baltimore, MD to Richmond, VA) Does anyone have any doctor recommendations?
I received excellent care with Dr. William Levin at Penn Oncology. I was type B2 stage 2b. Surgery plus proton therapy seemed to work. Penn is a center of excellence
Great, thank you Andy. How often and long did you have to go for proton therapy? Just wondering about the amount of travel from the DC area.
There is probably a proton therapy center near dc. It was everyday for 7 weeks, excluding weekends.
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